685
Views
16
CrossRef citations to date
0
Altmetric
Original Articles

Interaction with a person with profound intellectual and multiple disabilities: A case study in dialogue with an experienced staff member

&
Pages 189-204 | Published online: 09 Jul 2013

References

  • Ainsworth, M. D. S., Blehar, M. C., Waters, E., & Wall, S. (1978). Patterns of attachment: A psychological study of the strange situation. Hillsdale, NJ: Erlbaum.
  • Arthur, M. (2004). Patterns amongst behavior states, sociocommunicative, and activity variables in educational programs for students with profound and multiple disabilities. Journal of Developmental and Physical Disabilities, 16, 125–149. doi:10.1023/B:JODD.0000026611.24306.92 doi: 10.1023/B:JODD.0000026611.24306.92
  • Biringen, Z., Fidler, D. J., Barrett, K. C., & Kubicek, L. (2005). Applying the emotional availability scales to children with disabilities. Infant Mental Health Journal, 26, 369–391. doi:10.1002/imhj.20058 doi: 10.1002/imhj.20058
  • Biringen, Z., Robinson, J., & Emde, R. (1998). The Emotional Availability Scale (3rd ed.). Fort Collins, CO: Department of Human Development & Family Studies, Colorado State University.
  • Carpenter, M., Nagell, K., & Tomasello, M. (1998). Social cognition, joint attention, and communicative competence from 9 to 15 months of age. Monographs of the Society for Research in Child Development, 63(4, Serial No. 255). doi: 10.2307/1166214
  • Carter, M., & Iacono, T. (2002). Professional judgments of the intentionality of communicative acts. Augmentative and Alternative Communication, 18, 177–191. doi:10.1080/07434610212331281261 doi: 10.1080/07434610212331281261
  • Cascella, P. W. (2005). Expressive communication strengths of adults with severe to profound intellectual disabilities as reported by group home staff. Communication Disorders Quarterly, 26, 156–163. doi:10.1177/15257401050260030401 doi: 10.1177/15257401050260030401
  • Daelman, M. (2003). Een analyse van de presymbolische communicatie bij blinde kinderen met een meervoudige handicap [An analysis of the pre-symbolic interaction in blind children with multiple disabilities] (Unpublished doctoral dissertation). Katholieke Universiteit Leuven, Belgium.
  • Dekker, J., Hoogland, M., Eliëns, M., & van der Giessen, J. (2004). Video-interactiebegeleiding [Video interaction guidance]. Houten, the Netherlands: Bohn Stafleu van Loghum.
  • Egeland, B., Erickson, M. F., Clemenhagen-Moon, J. C., Hiester, M. K., & Korfmacher, J. (1990). 24 months tools coding manual. Project STEEP – revised 1990. From mother–child project scales 1978. Minneapolis, MN: University of Minnesota.
  • Emde, R. (1980). Emotional availability: A reciprocal reward system for infants and parents with implications for prevention of psychosocial disorders. In P. M. Taylor (Ed.), Parent–infant relationships (pp. 87–115). Orlando, FL: Grune & Stratton.
  • Forster, S., & Iacono, T. (2008). Disability support workers' experience of interaction with a person with profound intellectual disability. Journal of Intellectual & Developmental Disability, 33, 137–147. doi:10.1080/13668250802094216 doi: 10.1080/13668250802094216
  • Grove, N., Bunning, K., Porter, J., & Olsson, C. (1999). See what I mean: Interpreting the meaning of communication by people with severe and profound intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 12, 190–203. doi:10.1111/j.1468-3148.1999.tb00076.x doi: 10.1111/j.1468-3148.1999.tb00076.x
  • Healy, D., & Walsh, P. N. (2007). Communication among nurses and adults with severe and profound intellectual disabilities: Predicted and observed strategies. Journal of Intellectual Disabilities, 11, 127–141. doi:10.1177/1744629507076927 doi: 10.1177/1744629507076927
  • Hostyn, I., & Maes, B. (2009). Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review. Journal of Intellectual & Developmental Disability, 34, 296–312. doi:10.3109/13668250903285648 doi: 10.3109/13668250903285648
  • Hostyn, I., Daelman, M., Janssen, M. J., & Maes, B. (2010). Describing dialogue between persons with profound intellectual and multiple disabilities and direct support staff using the scale for dialogical meaning making. Journal of Intellectual Disability Research, 54, 679–690. doi:10.1111/j.1365-2788.2010.01292.x doi: 10.1111/j.1365-2788.2010.01292.x
  • Hostyn, I., Janssen, M. J., Daelman, M., & Maes, B. (2009). Scale for Dialogical Meaning Making (S-DMM). Unpublished manual. Leuven, Belgium: Katholieke Universiteit Leuven, Centre for Parenting, Child Welfare, and Disabilities.
  • Hostyn, I., Neerinckx, H., & Maes, B. (2011). Attentional processes in interactions between people with profound intellectual and multiple disabilities and direct support staff. Research in Developmental Disabilities, 32, 491–503. doi:10.1016/j.ridd.2011.07.023 doi: 10.1016/j.ridd.2011.07.023
  • Hostyn, I., Petry, K., Lambrechts, G., & Maes, B. (2011). Evaluating the quality of the interaction between persons with profound intellectual and multiple disabilities and direct support staff: A preliminary application of three observation scales from parent–infant research. Journal of Applied Research in Intellectual Disabilities, 24, 407–420. doi:10.1111/j.1468-3148.2010.00618.x doi: 10.1111/j.1468-3148.2010.00618.x
  • Jordan, B., & Henderson, A. (1995). Interaction analysis: Foundations and practice. The Journal of the Learning Sciences, 4, 39–103. doi:10.1207/s15327809jls0401_2 doi: 10.1207/s15327809jls0401_2
  • Kennedy, H., Landor, M., & Todd, L. (2010). Video interaction guidance as a method to promote secure attachment. Educational & Child Psychology, 27, 59–72.
  • Linell, P. (1998). Approaching dialogue: Talk, interaction and contexts in dialogical perspectives. Amsterdam, the Netherlands: Benjamins.
  • Maes, B., Lambrechts, G., Hostyn, I., & Petry, K. (2007). Quality-enhancing interventions for people with profound intellectual and multiple disabilities: A review of the empirical research literature. Journal of Intellectual & Developmental Disability, 32, 163–178. doi:10.1080/13668250701549427 doi: 10.1080/13668250701549427
  • Magnusson, D., & Allen, V. L. (1983). Implications and applications of an interactional perspective for human development. In D. Magnusson & V. L. Allen (Eds.), Human development: An interactional perspective (pp. 369–386). New York, NY: Academic Press.
  • Mahoney, G. (1992). Maternal Behavior Rating Scale (revised). Unpublished document, Case Western Reserve University, Cleveland, OH.
  • Mahoney, G. (1998). Child Behavior Rating Scale (revised). Unpublished document, Case Western Reserve University, Cleveland, OH.
  • Marková, I., Graumann, C. F., & Foppa, K. (1995). Mutualities in dialogue. Cambridge, UK: Cambridge University Press.
  • Maxwell, J. A. (1996). Qualitative research design: An interactive approach. Thousand Oaks, CA: Sage.
  • Morse, J. M., Swanson, J. M., & Kuzel, A. J. (2001). The nature of qualitative evidence. Thousand Oaks, CA: Sage.
  • Nakken, H., & Vlaskamp, C. (2002). Joining forces: Supporting individuals with profound multiple learning disabilities. Tizard Learning Disability Review, 7, 10–15. doi:10.1108/13595474200200023 doi: 10.1108/13595474200200023
  • Nind, M. (2009). Promoting the emotional well-being of people with profound and multiple intellectual disabilities: A holistic approach through intensive interaction. In J. Pawlyn & S. Carnaby (Eds.), Profound intellectual and multiple disabilities: Nursing complex needs (pp. 62–77). Oxford, UK: Wiley-Blackwell.
  • Olsson, C. (2004). Dyadic interaction with a child with multiple disabilities: A system theory perspective on communication. Augmentative and Alternative Communication, 20, 228–242. doi:10.1080/07434610400005622 doi: 10.1080/07434610400005622
  • Olsson, C. (2005). The use of communicative functions among pre-school children with multiple disabilities in two different setting conditions: Group versus individual patterns. Augmentative and Alternative Communication, 21, 3–18. doi:10.1080/07434610412331270516 doi: 10.1080/07434610412331270516
  • Patton, M. Q. (1987). Creative evaluation (2nd ed.). Newbury Park, CA: Sage.
  • Petry, K., & Maes, B. (2006). Identifying expressions of pleasure and displeasure by persons with profound and multiple disabilities. Journal of Intellectual & Developmental Disability, 31, 28–38. doi:10.1080/13668250500488678 doi: 10.1080/13668250500488678
  • Petry, K., & Maes, B. (2007). Description of the support needs of people with profound multiple disabilities using the 2002 AAMR system: An overview of literature. Education and Training in Developmental Disabilities, 42, 130–143.
  • Petry, K., Maes, B., & Vlaskamp, C. (2005). Domains of quality of life of people with profound multiple disabilities: The perspective of parents and direct support staff. Journal of Applied Research in Intellectual Disabilities, 18, 35–46. doi:10.1111/j.1468-3148.2004.00209.x doi: 10.1111/j.1468-3148.2004.00209.x
  • Sparrow, S. S., Balla, D., & Cicchetti, D. (1984). Vineland Adaptive Behaviour Scales. Circle Pines, MN: American Guidance Service.
  • Stake, R. E. (1995). The art of case study research. Thousand Oaks, CA: Sage.
  • Tasker, S. L., & Schmidt, L. A. (2008). The “dual usage problem” in the explanations of “joint attention” and children's socioemotional development: A reconceptualization. Developmental Review, 28, 263–288. doi:10.1016/j.dr.2007.07.001 doi: 10.1016/j.dr.2007.07.001
  • Thurmond, V. A. (2001). The point of triangulation. Journal of Nursing Scholarship, 33, 253–258. doi:10.1111/j.1547-5069.2001.00253.x doi: 10.1111/j.1547-5069.2001.00253.x
  • van der Meulen, B. F., Ruiter, S. A. J., lutje Spelberg, H. C., & Smrkovsky, M. (2002). BSID-II-NL. Bayley Scales of Infant Development. Second edition. Dutch translation. Amsterdam: Pearson.
  • Vlaskamp, C. (2005). Interdisciplinary assessment of people with profound intellectual and multiple disabilities. In J. Hogg & A. Langa (Eds.), Assessing adults with intellectual disabilities: A service provider's guide (pp. 39–51). Oxford, UK: Blackwell.
  • Wachs, T. D. (2000). Necessary but not sufficient: The role of individual and multiple influences on human development. Washington, DC: American Psychology Association.
  • Yin, R. K. (2003). Case study research: Design and methods (3rd ed.). Thousand Oaks, CA: Sage.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.