References
- Aged Care Insite. (2013). NDIS will overlook over-65s. Retrieved June 6, 2013, from http://www.agedcareinsite.com.au/?s=NDIS+will+overlook+over-65s
- Ageing, Disability and Home Care. (2012). Client death: Policy and procedures. Retrieved October 15, 2013, from https://www.adhc.nsw.gov.au/__data/assets/file/0005/228065/Client_death_Policy_and_Procedures_April_2012.pdf
- Australian Government Productivity Commission. (2011). Disability care and support. Retrieved June 20, 2012, from http://www.pc.gov.au/projects/inquiry/disability-support/report
- Bigby, C. (2004). Ageing with a lifelong disability: A guide to practice, program and policy issues for human services professionals. London, UK: Kingsley.
- Bigby, C. (2008). Beset by obstacles: A review of Australian policy development to support ageing in place for people with intellectual disability. Journal of Intellectual & Developmental Disability, 33, 76–86. doi:10.1080/13668250701852433
- Bigby, C., & Pierce, G. (2008). The policy challenge of ageing parents of adults with a disability. Disparity: Policy, Practice and Argument, 5(1), 12–16.
- Bittles, A. H., Petterson, B. A., Sullivan, S. G., Hussain, R., Glasson, E. J., & Montgomery, P. D. (2002). The influence of intellectual disability on life expectancy. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 57, M470–M472. doi:10.1093/gerona/57.7.M470
- Bonyhady, B. (2014). Tides of change: The NDIS and its journey to transform disability support. The Australian Journal on Psychosocial Rehabilitation, 7(1), 7–9.
- Commonwealth Government of Australia. (2013). National Disability Insurance Scheme. Retrieved June 11, 2013, from http://www.ndis.gov.au/
- Coppus, A. M. W. (2013). People with intellectual disability: What do we know about adulthood and life expectancy? Developmental Disabilities Research Reviews, 18, 6–16. doi:10.1002/ddrr.1123
- Co-production Steering Group for the UK Modernising Learning Disabilities Nursing Review. (2012). Strengthening the commitment: The report of the UK Modernising Learning Disabilities Nursing Review. Retrieved September 20, 2013, from http://www.scotland.gov.uk/Resource/0039/00391946.pdf
- COTA National Policy Office. (2013). Submission to senate inquiry into National Disability Insurance Scheme Bill 2012. Retrieved October 16, 2013, from http://www.cota.org.au/lib/pdf/COTA_Australia/public_policy/submission_ndis_jan_2013.pdf
- Council of Australian Governments. (2012). High-level principles for a National Disability Insurance Scheme. Retrieved March 28, 2014, from https://www.coag.gov.au/sites/default/files/NDIS_high_level_principles.pdf
- Haveman, M., Heller, T., Lee, L., Maaskant, M., Shooshtari, S., & Strydom, A. (2010). Major health risks in aging persons with intellectual disabilities: An overview of recent studies. Journal of Policy and Practice in Intellectual Disabilities, 7, 59–69. doi:10.1111/j.1741-1130.2010.00248.x
- Hayward, B. (2012, September). Nursing in state disability services: The value of clinical and practice expertise. Paper presented at the 2012 Professional Issues in Practice Conference: The Future is Now, Melbourne, Australia.
- Heslop, P., Blair, P., Fleming, P., Hoghton, M., Marriott, A., & Russ, L. (2013). Confidential inquiry into premature deaths of people with learning disabilities (CIPOLD). Retrieved September 17, 2013, from http://www.bris.ac.uk/cipold/reports/fullfinalreport.pdf
- Lawlink. (2012). In what circumstances must a death be reported to the coroner? Retrieved September 16, 2013, from http://www.coroners.lawlink.nsw.gov.au/coroners/coroner_role/coroners_role.html
- McCarron, M., & Reilly, E. (2010). Supporting persons with intellectual disability and dementia: Quality dementia care standards: A guide to practise. Retrieved November 11, 2013, from http://www.lenus.ie/hse/bitstream/10147/145073/1/Dementia%20Publication%202011.pdf
- National Disability Services. (2012). Inquiry into dementia: Early diagnosis and intervention. Retrieved April 15, 2013, from http://www.nds.org.au/asset/view_document/979320458
- National Disability Services. (2013). NSW passes law transferring government disability services to non government sector. Retrieved March 28, 2014, from http://www.nds.org.au/news/article/2669
- National Task Group on Intellectual Disabilities and Dementia Practice. (2012). ‘My thinker's not working’: A national strategy for enabling adults with intellectual disabilities affected by dementia to remain in their community and receive quality supports. Retrieved January 21, 2012, from http://www.aadmd.org/ntg/thinker
- New Jersey State Law Library. (2003). Legislative history checklist: Laws of 2003 Chapter 191 (“Danielle's law” – Call 911 for persons with developmental disabilities). Retrieved 18 September, 2014, from http://repo.njstatelib.org/xmlui/bitstream/handle/10929.1/11154/ch191.htm?sequence=1&isAllowed=y
- Nirje, B. (1992). The normalization principle papers. Uppsala, Sweden: Uppsala University.
- NSW Health. (2005). Advance care directives (NSW). Retrieved 18 September, 2014, from http://www.health.nsw.gov.au/policies/gl/2005/pdf/GL2005_056.pdf
- NSW Ombudsman. (2009). Report of reviewable deaths in 2008 and 2009: Volume 2: Deaths of people with disabilities. Retrieved 18 December, 2012, from http://www.ombo.nsw.gov.au/news-and-publications/publications/annual-reports/reviewable-deaths-vol-1/report-of-reviewable-deaths-in-2008-and-2009-volume-1-deaths-of-people-with-disabilities
- Parmenter, T. R., Hussain, R., Janicki, M., Knox, M., O'Brien, P., … Parmenter, M. (2014, March). NDIS and the aged care system: Assessing the capability of the aged care sector to support people with life-long disability. Paper presented at the 5th Annual National Disability Summit 2014, Melbourne, Australia. Retrieved from http://www.slideshare.net/informaoz/trevor-parmenter
- Parmenter, T., Hussain, R., Janicki, M., Knox, M., Leggatt-Cook, C., Wark, S., … & Edwards, M. (2013, November). Enablers and impediments to successful ageing-in-place. Paper presented at the 48th Australasian Society for Intellectual Disability Conference, Sydney.
- Parnell, D. (2014). National disability insurance scheme: Opportunities and challenges [Editorial]. The Australian Journal on Psychosocial Rehabilitation, 7(1), 4–5.
- POLST. (2014). The physician orders for life-sustaining treatment paradigm. Retrieved March 26, 2014, from http://www.polst.org/
- Shooshtari, S., Naghipur, S., & Zhang, J. (2012). Unmet healthcare and social services needs of older Canadian adults with developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 9, 81–91. doi:10.1111/j.1741-1130.2012.00346.x
- Sullivan, S. G., Hussain, R., Glasson, E. J., & Bittles, A. H. (2007). The profile and incidence of cancer in Down syndrome. Journal of Intellectual Disability Research, 51, 228–231. doi:10.1111/j.1365-2788.2006.00862.x
- Todd, S. (2013). ‘Being there’: The experiences of staff in dealing with matters of dying and death in services for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26, 215–230. doi:10.1111/jar.12024
- Van Den Akker, M., Maaskant, M. A., & van der Meijden, R. J. M. (2006). Cardiac diseases in people with intellectual disability. Journal of Intellectual Disability Research, 50, 515–522. doi:10.1111/j.1365-2788.2006.00797.x
- Wark, S., Hussain, R., & Edwards, H. (2013). Rural and remote area service provision for people aging with intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 10, 62–70. doi:10.1111/jppi.12017
- Wark, S., Hussain, R., & Edwards, H. (2014). The training needs of staff supporting individuals ageing with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27, 273–288. doi:10.1111/jar.12087
- Wiese, M., Dew, A., Stancliffe, R. J., Howarth, G., & Balandin, S. (2013). ‘If and when?’: The beliefs and experiences of community living staff in supporting older people with intellectual disability to know about dying. Journal of Intellectual Disability Research, 57, 980–992. doi:10.1111/j.1365-2788.2012.01593.x
- Wiese, M., Stancliffe, R. J., Balandin, S., Howarth, G., & Dew, A. (2012). End-of-life care and dying: Issues raised by staff supporting older people with intellectual disability in community living services. Journal of Applied Research in Intellectual Disabilities, 25, 571–583. doi:10.1111/jar.12000
- Wolfensberger, W. (2000). A brief overview of social role valorization. Mental Retardation, 38, 105–123. doi:10.1352/0047-6765(2000)038<0105:ABOOSR>2.0.CO;2