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Journal of Intellectual & Developmental Disability Volume 43, 2018 - Issue 1: Special issue: Autism: Innovations and risks
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Original Articles

Biographical disruption: Experiences of mothers of adults assessed for autism spectrum disorder

Phillipa Raymond-BarkerCentre for Mindfulness Research and Practice, School of Psychology, Bangor University, Bangor, UKView further author information
,
Gemma Maria GriffithCentre for Mindfulness Research and Practice, School of Psychology, Bangor University, Bangor, UKCorrespondence[email protected]
View further author information
&
Richard P. HastingsCentre for Educational Development Appraisal and Research (CEDAR), University of Warwick, Coventry, UKView further author information
Pages 83-92 | Published online: 05 Dec 2016

References

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp063oa
  • Brugha, T., McManus, S., Meltzer, H., Smith, J., Scott, F. J., Purdon, S., … Bankart, J. (2009). Autism spectrum disorders in adults living in households throughout England: Report from the Adult Psychiatric Morbidity Survey 2007. Leeds, UK: NHS Information Centre for Health and Social Care.
  • Goin-Kochel, R. P., Mackintosh, V. H., & Myers, B. J. (2006). How many doctors does it take to make an autism spectrum diagnosis? Autism, 10, 439–451. doi:10.1177/1362361306066601
  • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. doi:10.1016/j.nedt.2003.10.001
  • Griffith, G. M., Totsika, V., Nash, S., & Hastings, R. P. (2012). ‘I just don’t fit anywhere’: Support experiences and future support needs of individuals with Asperger syndrome in middle adulthood. Autism, 16, 532–546. doi:10.1177/1362361311405223
  • Griffith, G. M., Totsika, V., Nash, S., Jones, R. S. P., & Hastings, R. P. (2012). “We are all there silently coping.” The hidden experiences of parents of adults with Asperger syndrome. Journal of Intellectual & Developmental Disability, 37, 237–247. doi:10.3109/13668250.2012.701729
  • Griffith, G. M., Walker-Jones, E., Fitzpatrick, H., Goodson, L., Pickering, N., Wimpory, D., … Hastings, R. P. (2013). Receiving an assessment and a potential diagnosis on the autism spectrum: A thematic content analysis of parental experiences. Good Autism Practice, 14(2), 59–68.
  • Hines, M., Balandin, S., & Togher, L. (2014). The stories of older parents of adult sons and daughters with autism: A balancing act. Journal of Applied Research in Intellectual Disabilities, 27, 163–173. doi:10.1111/jar.12063
  • Howlin, P., & Asgharian, A. (1999). The diagnosis of autism and Asperger syndrome: Findings from a survey of 770 families. Developmental Medicine & Child Neurology, 41, 834–839. doi:10.1111/j.1469-8749.1999.tb00550.x
  • Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212–229. doi:10.1111/j.1469-7610.2004.00215.x
  • Howlin, P., & Moore, A. (1997). Diagnosis in autism: A survey of over 1200 patients in the UK. Autism, 1, 135–162. doi:10.1177/1362361397012003
  • Jang, J., Matson, J. L., Adams, H. L., Konst, M. J., Cervantes, P. E., & Goldin, R. L. (2014). What are the ages of persons studied in autism research: A 20-year review. Research in Autism Spectrum Disorders, 8, 1756–1760. doi:10.1016/j.rasd.2014.08.008
  • Jones, L., Goddard, L., Hill, E. L., Henry, L. A., & Crane, L. (2014). Experiences of receiving a diagnosis of autism spectrum disorder: A survey of adults in the United Kingdom. Journal of Autism and Developmental Disorders, 44, 3033–3044. doi:10.1007/s10803-014-2161-3
  • Midence, K., & O’Neill, M. (1999). The experience of parents in the diagnosis of autism: A pilot study. Autism, 3, 273–285. doi:10.1177/1362361399003003005
  • Osborne, L. A., & Reed, P. (2008). Parents’ perceptions of communication with professionals during the diagnosis of autism. Autism, 12, 309–324. doi:10.1177/1362361307089517
  • Punshon, C., Skirrow, P., & Murphy, G. (2009). The ‘not guilty verdict’: Psychological reactions to a diagnosis of Asperger syndrome in adulthood. Autism, 13, 265–283. doi:10.1177/1362361309103795
  • Sturges, J. E., & Hanrahan, K. J. (2004). Comparing telephone and face-to-face qualitative interviewing: A research note. Qualitative Research, 4, 107–118. doi:10.1177/1468794104041110
  • Swinth, Y., Tomlin, G., & Luthman, M. (2015). Content analysis of qualitative research on children and youth with autism, 1993–2011: Considerations for occupational therapy services. The American Journal of Occupational Therapy, 69, 1–9. doi:10.5014/ajot.2015.017970
  • Welsh Assembly Government. (2009). The autistic spectrum disorder (ASD) strategic action plan for Wales. Retrieved from http://www.wales.nhs.uk/documents/ASD-strategy.pdf

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