References
- Jenkinson C, Fitzpatrick R, Swash M, Peto V. The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol. 2002; 247: 835–40
- Kaub-Wittemer D, von Steinbuchel N, Wasner M, Laier-Groeneveld G, Borasio GD. Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage. 2003; 26: 890–6
- Hecht MJ, Graesel E, Tigges S, Hillemacher T, Winterholler M, Hilz M-J, et al. Burden of care in amyotrophic lateral sclerosis. J Palliat Med. 2003; 17: 327–33
- Jenkinson, C, Fitzpatrick, R, Swash, M, Levvy, G. ALSAQ User Manual. Health Services Research Unit, University of Oxford. 2001.
- Ware, JE, Kosinski, M, Dewey, JE. How to score version 2 of the SF–36 health survey. Quality Metric Incorporated; 2000.
- Kline, P. A Psychometrics Primer. Free Association Books: London, New York; 2000
- Kline, P. A Psychometrics Primer. Free Association Books: London, New York; 2000
- Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999; 169: 13–21