How common is depression among ALS caregivers? A longitudinal study

References

• Mittelman M, Ferris S, Shulman E, Shulman E, Steinberg G, Ambinder A, et al. A comprehensive support program: effect on depression in spouse caregivers of AD patients. Gerontologist. 1995; 35: 792–802
   PubMed Web of Science ®Google Scholar
• Schulz R, O'Brien A, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia care-giving: prevalence, correlates and causes. Gerontologist. 1995; 35: 771–91
   PubMed Web of Science ®Google Scholar
• Folkman S, Chesney M. Caregiver burden in HIV+ and HIV– partners of men with AIDS. J Consult Clin Psychology. 1994; 62: 746–56
   PubMed Web of Science ®Google Scholar
• Harding R, Higginson I, Donaldson N. The relationship between patient characteristics and carer psychological status in home palliative cancer care. Support Care Cancer. 2003; 11: 638–43
   PubMed Web of Science ®Google Scholar
• Gillen R, Tennen H, Affleck G, Steinpreis R. Distress, depressive symptoms and depressive disorder among caregivers of patients with brain injury. J Head Trauma Rehabil. 1998; 13: 31–43
   PubMed Web of Science ®Google Scholar
• Marsh NV, Kersel A. Caregiver burden in one year following severe traumatic brain injury. Brain Injury. 1998; 12: 1045–59
   PubMed Web of Science ®Google Scholar
• Chipase SY, Lincoln N. Factors associated with carer strain in carers of people with multiple sclerosis. Disability and Rehabilitation. 2001; 23: 768–76
   PubMed Web of Science ®Google Scholar
• Mockford C, Jenkinson C, Fitzpatrick R. A review: carers, MND and service provision. Amyotroph Lateral Scler. 2006; 7: 132–41
   PubMed Web of Science ®Google Scholar
• Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis. J Neurol Sci 1997; 152(Suppl)1–9
   PubMed Web of Science ®Google Scholar
• Goldstein L, Adamson M, Jeffrey L, Down K, Barby T, Wilson C, Leigh P. The psychological impact of MND on patients and carers. J Neurological Sci. 1998; 160(Suppl 1)S114–21
   PubMed Web of Science ®Google Scholar
• Hecht MJ, Graesel E, Tigges S, Hillemacher T, Winterholler M, Hilz M, et al. Burden of care in amyotrophic lateral sclerosis. Palliative Medicine. 2003; 17: 327–33
   PubMed Web of Science ®Google Scholar
• Chio A, Gauthier A, Calvo A, Ghiglione P, Mutani R. Caregiver burden and patients’ perception of being a burden in ALS. Neurology. 2005; 64: 1780–2
   PubMed Web of Science ®Google Scholar
• Le Coco G, Lo Coco D, Cicero V, Oliveri A, Lo Verso G, Piccolo F, La Bella V. Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers (editorial). J Neurol Sci. 2005; 238: 1–2
   PubMed Web of Science ®Google Scholar
• Goldstein LH, Atkins L, Landau S, Brown R, Leigh PN. Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study. Psychological Medicine. 2006; 36: 865–75
   PubMed Web of Science ®Google Scholar
• Gauthier A, Vignola A, Calvo A, Cavallo E, Moglia C, Sellitti L, et al. A longitudinal study on quality of life and depression in ALS patient-caregiver couples. Neurology. 2007; 68: 923–6
   PubMed Web of Science ®Google Scholar
• Rabkin JG, Wagner GW, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med. 2000; 62: 271–9
   PubMed Web of Science ®Google Scholar
• Rabkin JG, Albert SM, Del Bene M, O'Sullivan I, Tider T, Rowland L, Mitsumoto H. Prevalence of depressive disorders and change over time in late-stage ALS. Neurology. 2005; 65: 62–7
   PubMed Web of Science ®Google Scholar
• Druley J, Stephens MA, Martire L, Ennis N, Wojno W. Emotional congruence in older couples coping with wives’ osteoarthritis: exacerbating effects of pain behavior. Psychology and Aging. 2003; 18: 406–14
   PubMed Web of Science ®Google Scholar
• Del Bene ML, Albert SM, Brandis M, Mitsumoto H. Validation of vital capacity as the primary tool for predicting patient timing for formal palliative care intervention. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003; 4(Suppl 1)64–5
   Google Scholar
• Spitzer R, Kroenke K, Williams J. Validation and utility of a self-report version of PRIME-MD: The PHQ Primary Care Study. JAMA. 1999; 282: 1737–44
   PubMed Web of Science ®Google Scholar
• Beck AT, Steer R, Brown G. Manual for Beck Depression Inventory-II. Psychological Corp, San Antonio 1996
   Google Scholar
• Manne S, Taylor K, Dougherty J, Kemeny N. Supportive and negative responses in the partner relationship: their association with psychological adjustment among individuals with cancer. J Behavior Med. 1997; 20: 101–25
   PubMed Web of Science ®Google Scholar
• Zarit SH, Reever K, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980; 20: 649–55
   PubMed Web of Science ®Google Scholar
• Folkman S, Chesney M, Collette L, Boccellari A, Cooke M. Post-bereavement depressive mood and its pre-bereavement predictors in HIV+ and HIV– gay men. J Personality Soc Psychology. 1996; 70: 336–48
   PubMed Web of Science ®Google Scholar
• Cederbaum J, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS Functional Rating Scale that incorporates assessments of respiratory function. J Neurol Sci. 1999; 169: 13–21
   PubMed Web of Science ®Google Scholar
• Chalder T, Berelowitz G, Pawlikowska T, Watts L, Wessely S, Wright D, Wallace EP. Development of a fatigue scale. J Psychosom Res. 1993; 37: 147–53
   PubMed Web of Science ®Google Scholar
• Folkman S, Lazarus R. The Ways of Coping Questionnaire. Consulting Psychologists Press, Palo Alto, CA 1988
   Google Scholar
• Horwitz A, Wakefield JC. The loss of sadness: how psychiatry transformed normal sorrow into depressive disorder. Oxford University Press, New York 2007
   Google Scholar
• Manne S, Pape S, Taylor K, Dougherty J. Spouse support, coping, and mood among individuals with cancer. Annals Behavioral Med. 1999; 21: 111–21
   PubMed Web of Science ®Google Scholar
• Miller RG, Scholtz D, Moore DH, Spitalny G, Fox C, Katz J, et al. Treatment of patients with ALS in the community: new insights from the web-based ALS patient care database. Amyotroph Lateral Scler. Suppl) 2006; 7: 56
   Google Scholar
• van den Berg JP, Kalmijn S, Lindeman E, Veldink J, de Visser M, van der Graaff M, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005; 65: 1264–7
   PubMed Web of Science ®Google Scholar