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Amyotrophic Lateral Sclerosis Volume 12, 2011 - Issue 2
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Research Article

Preparing for a U.S. National ALS Registry: Lessons from a pilot project in the State of Georgia

Michael Benatar Department of Neurology, School of Medicine, Emory UniversityCorrespondence[email protected]
,
Joanne Wuu Section of Neurostatistics, Department of Neurology, School of Medicine, Emory University
,
Sharon Usher Department of Neurology, School of Medicine, Emory University
&
Kevin Ward Department of Epidemiology, Rollins School of Public Health, Emory University, Atlanta, Georgia, USA
Pages 130-135 | Received 27 May 2010, Accepted 09 Aug 2010, Published online: 15 Sep 2010

References

  • ALS Registry Act. 2008 [cited 2009 October 4]. Available from: http://www.govtrack.us/congress/billtext.xpd?bill=s110-1382.
  • Incidence of ALS in Italy: evidence for a uniform frequency in Western countries. Neurology. 2001;56:239–44.
  • Abhinav K, Stanton B, Johnston C, Hardstaff J, Orrell RW, Howard R, . Amyotrophic lateral sclerosis in south-east England: a population based study. The South-East England register for Amyotrophic Lateral Sclerosis (SEALS Registry). Neuroepidemiology. 2007;29:44–8.
  • Beghi E, Millul A, Micheli A, Vitelli E, Logroscino G. Incidence of ALS in Lombardy, Italy. Neurology. 2007;68:141–5.
  • Forbes RB, Colville S, Parratt J, Swingler RJ. The incidence of motor nueron disease in Scotland. J Neurol. 2007;254:866–9.
  • Traynor BJ, Codd MB, Corr B, Forde C, Frost E, Hardiman O. Incidence and prevalence of ALS in Ireland, 1995–1997: a population-based study. Neurology. 1999;52:504–9.
  • Logroscino G, Beghi E, Zoccolella S, Palagano R, Fraddosio A, Simone IL, . Incidence of amyotrophic lateral sclerosis in southern Italy: a population based study. J Neurol Neurosurg Psychiatry. 2005;76:1094–8.
  • Allen KD, Kasarskis EJ, Bedlack RS, Rozear MP, Morgenlander JC, Sabet A, . The National Registry of Veterans with amyotrophic lateral sclerosis. Neuroepidemiology. 2008; 30:180–90.
  • Beghi E. 127th ENMC International Workshop: implementation of a European registry of ALS. Naarden, The Netherlands, 8–10 October 2004. Neuromuscul Disord. 2006;16:46–53.
  • Logroscino G, Traynor BJ, Hardiman O, Chio A, Mitchell D, Swingler RJ, . Incidence of amyotrophic lateral sclerosis in Europe. J Neurol Neurosurg Psychiatry. 2010;81:385–90.
  • The Scottish Motor Neuron Disease Register: a prospective study of adult onset motor neuron disease in Scotland. Methodology, demography and clinical features of incident cases in 1989. J Neurol Neurosurg Psychiatry. 1992;55: 536–41.
  • Khishchenko N, Allen KD, Coffman CJ, Kasarskis EJ, Lindquist JH, Morgenlander JC, . Time to diagnosis in the National Registry of Veterans with Amyotrophic Lateral Scler. Amyotroph Lateral Scler. 2010;11:125–32.

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