References
- Rowland LP, Schneider NA. Amyotrophic Lateral Sclerosis. N Engl J Med. 2001;344:1688–700.
- Bach JR. Amyotrophic lateral sclerosis: prolongation of life by non-invasive respiratory aids. Chest. 2002;122:92–8.
- Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomized controlled trial. Lancet Neurol. 2006;5:140–7.
- Bach JR, Bianchi C, Aufiero E. Oximetry and indications for tracheotomy for amyotrophic lateral sclerosis. Chest. 2004;126:1502–7.
- Albert SM, Murphy PL, del Bene ML, Rowland LP. A prospective study of preferences and actual treatment choices in ALS. Neurology. 1999;53:278–83.
- Oppenheimer EA. Treating respiratory failure in ALS: the details are becoming clearer. Journal of Neurology Sciences. 2003;209:1–4.
- Albert SM, Whitaker A, Rabkin JG, del Bene M, Tider T, O'Sullivan I, . Medical and Supportive Care Among People with ALS in the Months Before Death or Tracheostomy. Journal of Pain & Symptom Management. 2009;38:546–53.
- Burchardi N, Rauprich O, Hecht M, Beck M, Vollmann J. Discussing living wills: a qualitative study of a German sample of neurologists and ALS patients. Neurology Sciences. 2005;237:67–74.
- Brooks D, Gibson B, de Matteo D. Perspectives of personal support workers and ventilator users on training needs. Patient Educ Couns. 2008;71:244–50.
- Soudon P, Steens M, Toussaint M. A comparison of invasive versus non-invasive full-time mechanical ventilation in Duchenne muscular dystrophy. Chron Respir Dis. 2008;5:87–93.
- Lujan M, Moreno A, Veigas C, Monton C, Pomares X, Domingo C. Non-invasive home mechanical ventilation: effectiveness and efficiency of an outpatient initiation protocol compared with the standard in-hospital model. Respir Med. 2007;101:1177–82.
- Bach JR, Claman DM, Piper A, Sanders MH, Stiller R, Votteri BA. Why be limited to nocturnal non-invasive IPPV? Chest. 1997;111:1471–2.
- Ministry of Health and Long-Term Care. Long-term Ventilation Service Inventory Programme: Final Summary Report. Toronto, ON: Ministry of Health and Long-Term Care; 2008.
- Vitacca M, Grassi M, Barbano L, Galavotti G, Sturani C, Vianello A, . Last three months of life in home-ventilated patients: the family perception. Eur Respir J. 2010;35:1064–71.
- Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, . EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. An evidence-based review with good practice points. Eur J Neurol. 2005;12:921–38.
- Ramsaroop SD, Reid MC, Adelman RD. Completing an advance directive in the primary care setting: what do we need for success? Journal of American Geriatric Society. 2007;55:277–83.
- Bloom BS. Taxonomy of educational objectives. London: Longman; 1972.
- Brooks BR. El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Journal of Neurology Sciences. 1994;124(Suppl):96–107.
- Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2000;1:293–9.
- Les Turner Foundation (Producer) 1994. Ventilation: The Decision Making Process (video).
- Watson D, Clark LA, Tellegen A. Development and validation of brief measures of positive and negative affect: the PANAS scales. J Pers Soc Psychol. 1988;54:1063–70.
- Bourke SC, Bullock RE, Williams TL, Shaw PJ, Gibson GJ. Non-invasive ventilation in ALS: indications and effect on quality of life. Neurology. 2003;61:171–7.
- Bach JR. Bi-level pressure vs. volume ventilators for amyotrophic lateral sclerosis patients. Chest. 2006;130:1949–50.