First assessment at home of amyotrophic lateral sclerosis (ALS) patients by a nutrition network in the French region of Limousin

References

• Desport JC, Preux PM, Truong TC, Vallat JM, Sautereau D, Couratier P. Nutritional status is a prognostic factor for survival in ALS patients. Neurology. 1999;53:1059–63.
   PubMed Web of Science ®Google Scholar
• Marin B, Desport JC, Kajeu P, Jesus P, Nicolaud B, Nicol M, . Alteration of nutritional status at diagnosis is a prognostic factor for survival of amyotrophic lateral sclerosis patients. J Neurol Neurosurg Psychiatry. 2011;82:628–34.
   PubMed Web of Science ®Google Scholar
• Clavelou P, Guy N. Quels sont les traitements symptomatiques (texte du groupe bibliographique)?Rev Neurol (Paris). 2006;162(Suppl 2):S228–34.
   Google Scholar
• Maugin D. Quels sont les signes cliniques classiques et inhabituels devant faire évoquer une sclérose latérale amyotrophique (SLA)? Rev Neurol (Paris). 2006;162(Suppl 2):S14–6.
   Google Scholar
• Pradat PF, Bruneteau G. Quels sont les signes cliniques classiques et inhabituels devant faire évoquer une sclérose latérale amyotrophique (SLA) (texte du groupe bibliographique)? Rev Neurol (Paris). 2006;162(Suppl 2):S17–24.
   Google Scholar
• Toepfer M, FolWaczny C, Klauser A, Riepl RL, Muller-Felber W, Pongratz D. Gastrointestinal dysfunction in amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 1999;1:15–9.
   PubMed Web of Science ®Google Scholar
• Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, . EFNS Task Force on Diagnosis and Management of Amyotrophic Lateral Sclerosis. EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. Eur J Neurol. 2005;12:921–38.
   PubMed Web of Science ®Google Scholar
• RadunovićA, Mitsumoto H, Leigh PN. Clinical care of patients with amyotrophic lateral sclerosis. Lancet Neurol. 2007;6:913–25.
   PubMed Web of Science ®Google Scholar
• Kasarkis EJ, Elza TA, Bishop NG, Spears AC. The amyotrophic lateral sclerosis (ALS) support network of Kentucky: an informational support group using interactive video. J Neurol Sci. 1997;152 (Suppl 1):S90–2.
   PubMedGoogle Scholar
• Beghi E, Mennini T. Italian Network for the Study of Motor Neuron Disease. Basic and clinical research on amyotrophic lateral sclerosis and other motor neuron disorders in Italy: recent findings and achievements from a network of laboratories. Neurol Sci. 2004;25(Suppl 2):S41–60.
   PubMedGoogle Scholar
• Abdelnour M, Cordesse V. The Ile-de-France amyotrophic lateral sclerosis network, a multidisciplinary partnership. Soins. 2008;726:53–5.
   Google Scholar
• Kondo K. Network to support patients with SLA in the Hyogo prefecture. Rinsho Shinkeigaku 2005;45:991-3.
   PubMedGoogle Scholar
• Kondo K. Network to support patients with SLA in the Hyogo prefecture. No To Shinkei. 2006;58:653–9.
   PubMedGoogle Scholar
• Rodríguez de Rivera FJ, Grande M, García-Caballero J, Muñoz-Blanco J, Mora J, Esteban J, . Development of a clinical pathway for the attention of patients with amyotrophic lateral sclerosis in a regional network. SLA Assistance Network-Comunidad de Madrid. Neurologia. 2007;22:354–61.
   PubMedGoogle Scholar
• Desport JC, Fraysse JL, Massoulard A, Gouraud M, Marchaisseau E, Philippon S, . LINUT: un réseau de nutrition pour les personnes âgées. Nutr Clin Metabol. 2006;20:142–4.
   Google Scholar
• Subcommitee on Motor Neuron Disease/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases, El Escorial ‘Clinical Limits of Amyotrophic Lateral Sclerosis’ Workshop contributors. El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. J Neurol Sci. 1994;124(Suppl):96–107.
   PubMedGoogle Scholar
• Chumlea WC, Roche AF, Steinbaugh ML. Estimating stature from knee height for persons 60 to 90 years of age. J Am Geriatr Soc. 1985;33:116–20.
   PubMed Web of Science ®Google Scholar
• WHO. Obesity: preventing and managing the global epidemic. Report of a WHO consultation. World Health Organ Tech Rep Ser. 2000;894:1–253.
   Web of Science ®Google Scholar
• Desport JC, Preux PM, Bouteloup-Demange C, Clavelou P, Beaufrère B, Bonnet C, . Validation of bioelectrical impedance analysis in patients with amyotrophic lateral sclerosis. Am J Clin Nutr. 2003;77:1179–85.
   PubMed Web of Science ®Google Scholar
• Cynober L, Alix E, Arnaud-Battandier F, Bonnefoy ML, Brocker P. Personnes âgées. In: Martin A. Apports Nutritionnels Conseillés pour la Population Française. 3rd edn. Paris: Tec et Doc; 2001. pp. 308–35.
   Google Scholar
• Conférence de consensus. Prise en charge des personnes atteintes de sclérose latérale amyotrophique: texte des recommandations (version longue). Rev Neurol (Paris). 2006;162 (Suppl)-IIIe couv.
   Google Scholar
• DePippo KL, Holas MA, Reding MJ. Validation of the 3-oz water swallow test for aspiration following stroke. Arch Neurol. 1992;49:1259–61.
   PubMed Web of Science ®Google Scholar
• Guinvarch S, Preux PM, Salle JY, Desport JC, Daviet JC, Lissandre JP, . Proposal for a predictive clinical scale in dysphagia. Rev Laryngol Otol Rhinol (Bord). 1998;119: 227–32.
   PubMedGoogle Scholar
• Haute Autorité de Santé. Stratégie de prise en charge en cas de dénutrition protéino-énergétique chez la personne âgée. Recommandations avril 2007. Nutr Clin Metabol. 2007;21:120–33.
   Google Scholar
• Logroscino G, Traynor BJ, Hardiman O, Chiò A, Mitchell D, Swingler RJ, . Incidence of Amyotrophic Lateral Sclerosis in Europe. J Neurol Neurosurg Psychiatry. 2010;81:385–90.
   PubMed Web of Science ®Google Scholar
• Marin B, Gil J, Preux PM, Funalot B, Couratier P. Incidence of amyotrophic lateral sclerosis in the Limousin region of France, 1997–2007. Amyotroph Lateral Scler. 2009;10: 216–20.
   PubMed Web of Science ®Google Scholar
• Kasarskis EJ, Berryman S, Vanderleest JG, Schneider AR. Nutritonal status of patients with amyotrophic lateral sclerosis: relation to the proximity of death. Am J Clin Nutr. 1996;63:130–7.
   PubMed Web of Science ®Google Scholar
• Slowie LA, Paige MS, Antel JP. Nutritional considerations in the management of patients with amyotrophic lateral sclerosis (ALS). J Am Diet Assoc. 1983;83:44–7.
   PubMed Web of Science ®Google Scholar
• Worwood AM, Leigh PN. Indicators and prevalence of malnutrition in motor neuron disease. Eur Neurol. 1998;40: 159–63.
   PubMed Web of Science ®Google Scholar
• Bouteloup C, Desport JC, Clavelou P, Guy N, Derumeaux-Burel H, Ferrier A, Couratier P. Hypermetabolism in ALS patients: an early and persistent phenomenon. J Neurol. 2009;256:1236–42.
   PubMed Web of Science ®Google Scholar
• Vaisman N, Lusaus M, Nefussy B, Niv E, Comaneshter D, Hallack R, . Do patients with amyotrophic lateral sclerosis (ALS) have increased energy needs? J Neurol Sci. 2009;279:26–9.
   PubMed Web of Science ®Google Scholar
• Mazzini L, Corra T, Zaccala M, Mora G, Del Piano M, Galante M. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol. 1995;242:695–8.
   PubMed Web of Science ®Google Scholar
• Sanchez-Lara K, Sosa-Sanchez R, Green-Renner D, Rodriguez C, Laviano A, Motola-Kuba D, . Influence of taste disorders on dietary behaviours in cancer patients under chemotherapy. Nutrition J. 2010;9:15.
   Google Scholar
• van Cutsem E, Arends J. The causes and consequences of cancer-associated malnutritrion. Eur J Oncol Nurs. 2005;9:S51–63.
   PubMedGoogle Scholar
• Pronsky ZM, Crowe JP. Assessment: food-drug interactions. In: Mahan LK, Escott-Stump S, editors. Krause's Food and Nutrition Therapy. 12th. St Louis (USA): Saunders Elsevier; 2008. pp. 432–53.
   Google Scholar
• Richter TA, Dvoryanchikov GA, Chaudhari N, Roper SD. Acid-sensitive two-pore domain potassium (K2P) channels in mouse taste buds. J Neurophysiol. 2004;92:1928–36.
   PubMed Web of Science ®Google Scholar
• Cadaveira-Mosquera A, Ribeiro SJ, Reboreda A, Perez M, Lamas JA. Activation of TREK currents by the neuroprotective agent riluzole in mouse sympathetic neurons. J Neurosci. 2011;31:375–85.
   Google Scholar
• Jin LJ, Schlesinger F, Song YP, Dengler R, Krampfl K. The interaction of the neuroprotective compound riluzole and phenobarbital with AMPA-type glutamate receptors: a patch-clamp study. Pharmacology. 2010;85:54–62.
   PubMedGoogle Scholar
• Ahmed T, Haboubi N. Assessment and management of nutrition in older people and its importance to health. Clin Invest Aging. 2010;5:207–16.
   Google Scholar
• Stratton RJ, Green CJ, Elia M. Causes of disease-related malnutrition. In: Disease-related Malnutrition: an Evidence-Based Approach to Treatment. Wallingford, UK: CABI Publishing; 2003. pp. 93–112.
   Google Scholar
• Leigh PN, Ray-Chauduri K. Motor neuron disease. J Neurol Neurosurg Psych. 1994;57:886–96.
   PubMed Web of Science ®Google Scholar
• Fattori B, Grosso M, Bongioanni P, Nacci A, Cristofani R, AlSharif A, . Assessment of swallowing by oropharyngoesophageal scintigraphy in patients with amyotrophic lateral sclerosis. Dysphagia. 2006;280-6. DOI:10.1007/s00455-006-9052/5.
   PubMedGoogle Scholar
• Goeleven A, Robberecht W, Sonies B, Carbonez A, Dejaeger E. Manofluorographic evaluation of swallowing in amyotrophic lateral sclerosis and its relationship with clinical evaluation of swallowing. Amyotroph Lateral Scler. 2006;7:235–40.
   PubMed Web of Science ®Google Scholar