890
Views
13
CrossRef citations to date
0
Altmetric
Original Articles

Functional disability of children with spina bifida: Its impact on parents’ psychological status and family functioning

, , , , , , & show all
Pages 322-328 | Received 10 Apr 2012, Accepted 02 May 2012, Published online: 19 Jun 2012

References

  • Cassell CH, Grosse SD, Thorpe PG, Howell EE, Mever RE. Health care expenditures among children with and those without spina bifida enrolled in Medicaid in North Carolina. Birth Defects Research Part A: Clinical and Molecular Teratology 2011; 91: 1019–1027
  • Tuncbilek E. Türkiye'deki yüksek nöral tüp defekti sıklığı ve önlemek için yapılabilecekler. Çocuk Sağlığı ve Hastalıkları Dergisi 2004; 47: 79–84
  • Holmbeck GN, Devine KA. Psychological and family functioning in spina bifida. Developmental Disabilities Research Reviews 2010; 16: 40–46
  • Vermaes IP, Janssens JM, Mullaart RA, Vinck A, Gerris JR. Parents’ personality and parenting stress in families of children with spina bifida. Child: Care, Health and Development 2008; 34: 665–674
  • Mitchell LE, Adzick NS, Melchionne J, Pasquariello PS, Sutton LN, Whitehead AS. Spina bifida. Lancet 2004; 364: 1885–1895
  • Quittner AL, Glueckauf RL, Jackson DN. Chronic parenting stress: Moderating versus mediating effects of social support. Journal of Personality and Social Psychology 1990; 59: 1266–1278
  • Silver EJ, Westbrook LE, Stein RE. Relationship of parental psychological distress to consequences of chronic health conditions in children. Journal of Paediatric Psychology 1998; 23: 5–15
  • Ong LC, Norshireen NA, Chadran V. A comparison of parenting stress between mothers of children with spina bifida and able-bodied controls. Developmental Neurorehabilitation 2011; 14: 22–28
  • Aybay C, Erkin G, Elhan AH, Sirzai H, Ozel S. ADL assessment of nondisabled Turkish children with the WeeFIM instrument. American Journal of Physical Medicine and Rehabilitation 2007; 86: 176–182
  • Serghiou MH, Rose MW, Pidcock FS, Esselman PC, Engrav LH, Kowalske KJ, Lezotte DC. The WeeFIM [R] instrument- a paediatric measure of functional independence to predict longitudinal recovery of paediatric burn patients. Developmental Neurorehabilitation 2008; 11: 39–50
  • Tur BS, Kucukdeveci AA, Kutlay S, Yavuzer G, Elhan AH, Tennant A. Psychometric properties of the WeeFIM in children with cerebral palsy in Turkey. Developmental Medicine and Child Neurology 2009; 51: 732–738
  • Beck AT, Ward CH, Mendelson M, Mock J, Erbaugh J. An inventory for measuring depression. Archieves of General Psychiatry 1961; 4: 561–571
  • Hisli N. Beck Depresyon Envanteri’nin geçerliği üzerine bir çalışma. Psikoloji Dergisi 1988; 6: 118–122
  • Epstein NB, Baldwin LM, Bishop DS. The McMaster Family Assessment Device. Journal of Marital and Family Therapy 1983; 9: 171–180
  • Bulut I. Aile Değerlendirme Ölçeği El Kitabı. ▪, Ankara: Ozgüzeliş Matbaası 1990
  • Meester-Delver A, Belen A, Hennekam R, Nollet F, Hadders-Algra M. The capacity profile: A method to classify additional care needs in children with neurodevelopmental disabilities. Developmental Medicine and Child Neurology 2007; 49: 355–360
  • Rendeli C, Ausili E, Tabacco F, Caliandro P, Aprile I, Tonali P, Salvaggio E, Padua L. Assessment of health status in children with spina bifida. Spinal Cord 2005; 43: 230–235
  • Bartonek A, Saraste H. Factors influencing ambulation in myelomeningocele: A cross-sectional study. Developmental Medicine and Child Neurology 2001; 43: 253–260
  • Danielsson AJ, Bartonek A, Levey E, McHale K, Sponseller P, Saraste H. Associations between orthopaedic findings, ambulation and health-related quality of life in children with myelomeningocele. Journal of Children's Orthopaedics 2008; 2: 45–54
  • Holmbeck GN, Greenley RN, Coakley RM, Greco J, Hagstrom J. Family functioning in children and adolescents with spina bifida: An evidence-based review of research and interventions. Journal of Developmental and Behavioural Paediatrics 2006; 27: 249–277
  • Sawin KJ, Bellin MH. Quality of life in individuals with spina bifida: A research update. Developmental Disabilities Research Reviews 2010; 16: 47–59
  • Schoenmakers MA, Uiterwaal CS, Gulmans VA, Gooskens RH, Helders PJ. Determinants of functional independence and quality of life in children with spina bifida. Clinical Rehabilitation 2005; 19: 677–685
  • Singh DK. Families of children with spina bifida: A review. Journal of Developmental and Physical Disabilities 2003; 15: 37–55
  • Vermaes IP, Janssens JM, Bosman AM, Gerris JR. Parents’ psychological adjustment in families of children with spina bifida: A meta-analysis. BMC Paediatrics 2005; 5: 32
  • Wiegner S, Donders J. Predictors of parental distress after congenital disabilities. Journal of Developmental and Behavioural Paediatrics 2000; 21: 271–277
  • Kronenberger WG, Thompson RJ. Medical stress, appraised stress, and the psychological adjustment of mothers of children with myelomeningocele. Journal of Developmental and Behavioural Paediatrics 1992; 13: 405–411
  • Kronenberger WG, Thompson RJ. Psychological adaptation of mothers of children with spina bifida: Association with dimensions of social relationships. Journal of Paediatric Psychology 1992; 17: 1–14
  • Barroilhet S, Cano-Prous A, Cervera-Enguix S, Forjaz MJ, Guillén-Grima F. A Spanish version of the Family Assessment Device. Social Psychiatry and Psychiatric Epidemiology 2009; 44: 1051–1065
  • Tsai PY, Yang TF, Chan RC, Huang PH, Wong TT. Functional investigation in children with spina bifida-measured by the Paediatric Evaluation of Disability Inventory (PEDI). Child's Nervous System 2002; 18: 48–53
  • Wong V, Wong S, Chan K, Wong W. Functional Independence Measure (WeeFIM) for Chinese children: Hong Kong Cohort. Pediatrics 2002; 109: E36
  • Yi Y, Lindemann M, Colligs A, Snowbal C. Economic burden of neural tube defects and impact of prevention with folic acid: A literature review. European Journal of Paediatrics 2011; 170: 1391–1400
  • Bier JA, Prince A, Tremont M, Msall M. Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele. Developmental Medicine and Child Neurolology 2005; 47: 609–612

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.