506
Views
1
CrossRef citations to date
0
Altmetric
Brief Report

The value of the CoughAssist® in the daily lives of children with neuromuscular disorders: Experiences of families, children and physiotherapists

, &
Pages 321-326 | Received 31 Oct 2014, Accepted 27 Nov 2014, Published online: 30 Dec 2014

References

  • Uzark K, King E, Cripe L, Spicer R, Sage J, Kinnett K, Wong B, Pratt J, Varni JW. Health-related quality of life in children and adolescents with Duchenne muscular dystrophy. Pediatrics 2012;130:e1559–1566
  • Vuillerot C, Hodgkinson I, Bissery A, Schott-Pethelaz AM, Iwaz J, Ecochard R, D'Anjou MC, Commare MC, Berard C. Self-perception of quality of life by adolescents with neuromuscular diseases. Journal of Adolescent Health 2010;46:70–76
  • Gauld LM. Airway clearance in neuromuscular weakness. Developmental Medicine & Child Neurology 2009;51:350–355
  • Ishikawa Y, Miura T, Ishikawa Y, Aoyagi T, Ogata H, Hamada S, Minami R. Duchenne muscular dystrophy: Survival by cardio-respiratory interventions. Neuromuscular Disorders 2011;21:47–51
  • Chatwin M, Bush A, Simonds AK. Outcome of goal-directed non-invasive ventilation and mechanical insufflation/exsufflation in spinal muscular atrophy type I. Archives of Disease in Childhood 2011;96:426–432
  • Kinali M, Manzur AY, Mercuri E, Gibson BE, Hartley L, Simonds AK, Muntoni F. UK physicians’ attitudes and practices in long-term non-invasive ventilation of Duchenne Muscular Dystrophy. Developmental Neurorehabilitation 2006;9:351–364
  • Morrow B, Zampoli M, van Aswegen H, Argent A. Mechanical insufflation-exsufflation for people with neuromuscular disorders. The Cochrane Database Of Systematic Reviews 2013;12:CD010044
  • Hull J, Aniapravan R, Chan E, Chatwin M, Forton J, Gallagher J, Gibson N, Gordon J, Hughes I, McCulloch R, et al. British Thoracic Society guideline for respiratory management of children with neuromuscular weakness. Thorax 2012;67:i1–i40
  • Chen T-H, Hsu J-H, Wu J-R, Dai Z-K, Chen IC, Liang W-C, Yang S-N, Jong Y-J. Combined noninvasive ventilation and mechanical in-exsufflator in the treatment of pediatric acute neuromuscular respiratory failure. Pediatric Pulmonology 2014;49:589–596
  • Lacombe M, Del Amo Castrillo L, Bore A, Chapeau D, Horvat E, Vaugier I, Lejaille M, Orlikowski D, Prigent H, Lofaso F. Comparison of three cough-augmentation techniques in Neuromuscular patients: Mechanical insufflation combined with manually assisted cough, insufflation-exsufflation alone and insufflation-exsufflation combined with manually assisted cough. Respiration 2014;88:215–222
  • Miske LJ, McDonough JM, Weiner DJ, Panitch HB. Changes in gastric pressure and volume during mechanical in-exsufflation. Pediatric Pulmonology 2013;48:824–829
  • Burns TM, Graham CD, Rose MR, Simmons Z. Quality of life and measures of quality of life in patients with neuromuscular disorders. Muscle & Nerve 2012;46:9–25
  • Monette D, Sullivan TJ, Dejong CR. Applied social research: A tool for the human services. Belmont, CA: Thomson Brooks/Cole; 2008
  • Punch KF. Introduction to social research: Quantitative and qualitative approaches. Thousand Oaks, CA: SAGE Publications; 2005
  • Miske LJ, Hickey EM, Kolb SM, Weiner DJ, Panitch HB. Use of the mechanical in-exsufflator in pediatric patients with neuromuscular disease and impaired cough. Chest 2004;125:1406–1412
  • Chatwin M, Simonds AK. The addition of mechanical insufflation/exsufflation shortens airway-clearance sessions in neuromuscular patients with chest infection. Respiratory Care 2009;54:1473–1479
  • Kenneson A, Bobo JK. The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy. Health and Social Care in the Community 2010;18:520–528
  • Panitch H. Respiratory issues in the management of children with neuromuscular disease. Respiratory Care 2006;51:885–895
  • Bingham PM, Lahiri T, Ashikaga T. Pilot trial of spirometer games for airway clearance practice in Cystic Fibrosis. Respiratory Care 2012;57:1278–1284
  • Arias Llorente RP, Bousoño García C, Díaz Martín JJ. Treatment compliance in children and adults with Cystic Fibrosis. Journal of Cystic Fibrosis 2008;7:359–367
  • Piggot J, Hocking C, Paterson J. Parental adjustment to having a child with Cerebral Palsy and participation in home therapy programs. Physical & Occupational Therapy in Pediatrics 2003;23:5–29
  • Creswell JW. Qualitative inquiry & research design: choosing among five approaches. Thousand Oaks, CA: Sage Publications; 2013

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.