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ARTICLES

Experiences with using information and communication technology to build a multi-municipal support network for informal carers

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Pages 265-279 | Published online: 17 Dec 2012

References

  • Statistics Norway. Statistisk årbok 2010 [Statistical yearbook of Norway 2010]. Oslo: Statistics Norway; 2010.
  • The Norwegian Institute of Public Health. Helsetilstanden i Norge [Health status in Norway]. Oslo: The Norwegian Institute of Public Health. E-pub (8 September 2011); 2010. Available from: www.fhi.no (accessed 15 November 2012).
  • Gautun H, Hermansen Å. Eldreomsorg under press. Kommunenes helse- og omsorgstilbud til eldre [Geriatric care under pressure. Municipal health and care services for the elderly]. Oslo: Fafo; 2011.
  • Levine C, Halper D, Peist A, Gould DA. Bridging troubled waters: family caregivers, transitions, and long-term care. Health Affairs (Millwood) 2010;29:116–124.
  • Dale B, Sevareid H, Kirkevold M, Soderhamn O. Older home-living patients' perceptions of received home nursing and family care. Nordic Nursing Research 2011;03:219–234.
  • Daatland SO, Herlofsen K. ‘Lost solidarity’ or ‘changed solidarity’: a comparative European view of normative family solidarity. Ageing & Society 2003;23:537–560.
  • Soderhamn O, Lindencrona C, Ek AC. Ability of selfcare among home dwelling elderly people in a health district in Sweden. International Journal of Nursing Studies 2000;37:361–368.
  • Sundström G, Malmberg B, Johansson L. Balancing family and state care: neither, either or both? The case of Sweden. Ageing & Society 2006;767–782.
  • Dale B, Saevareid HI, Kirkevold M, Soderhamn O. Formal and informal care in relation to activities of daily living and self-perceived health among older care-dependent individuals in Norway. International Journal of Older People Nursing 2008;3:194–203.
  • Edwards NE, Scheetz PS. Predictors of burden for caregivers of patients with Parkinson's disease. Journal of Neuroscience Nursing 2002;34:184–190.
  • Almberg B, Jansson W, Grafstrom M, Winblad B. Differences between and within genders in caregiving strain: a comparison between caregivers of demented and non-caregivers of non-demented elderly people. Journal of Advanced Nursing 1998;28:849–858.
  • Wendelborg C, Tøssebros J. Helsestatus til foreldre til barn med nedsatt funksjonsevne. En sammenstilling av data fra HUNT 2 og Forløpsdatabasen FD-Trygd [Health status among parents of disabled children]. Trondheim: NTNU Samfunnsforskning AS; 2009.
  • Schulz R, O'Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist 1995;35:771–791.
  • Low JT, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Social Science & Medicine 1999;49:711–725.
  • Dunkin JJ, Anderson-Hanley C. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention. Neurology 1998;51:53–60.
  • Dhooper SS. Caregivers of Alzheimer's disease patients: a review of the literature. Journal of Gerontological Social Work 1991;18:19–37.
  • Borgermans L, Nolan M, Davies S. Europe. In: Philp I, editor. Family care for older people and their families. Buckingham: IOS Press, 1–26; 2001.
  • Thommessen B, Aarsland D, Braekhus A, Oksengaard AR, Engedal K, Laake K. The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease. International Journal of Geriatric Psychiatry 2002;17:78–84.
  • British Psychological Society and Royal College of Psychiatrists. NICE Guidelines: Dementa. A NICE-SCIE guideline on supporting people with dementia and their carers in health and social care. London: Alden Press; 2007.
  • Erlingsson CL, Magnusson L, Hanson E. Family caregivers' health in connection with providing care. Qualitative Health Research 2011;22:640–645.
  • WHO. Ottawa charter for health promotion. An International Conference on Health Promotion, November 17–21. Copenhagen: WHO Regional Office for Europe; 1986.
  • Huber M, Knottnerus JA, Green L, van der Horst H, Jadad AR, Kromhout D, Leonard B How should we define health? British Medical Journal 2011;343:235–237.
  • The Norwegian Directorate for Social and Health Services. Glemsk, men ikke glemt! Dagens situasjon og framtidas utfordringer for å styrke tjenestetilbudet til personer med demens [Forgetting, but not forgotten! The present situation and future challenges to strengthen the service for people with dementia]. Oslo: The Norwegian Directorate for Social and Health Services; 2007.
  • Magnusson L, Hanson E, Brito L, Berthold H, Chambers M, Daly T. Supporting family carers through the use of information and communication technology – the EU project ACTION. International Journal of Nursing Studies 2002;39:369–381.
  • Hanson E, Svensson P, Arvevik F, Magnusson L. ACTION (assisting carers using telematic interventions to meet older people's needs): practitioners' reflections on a Swedish innovation. In: Nolan M, Hanson E, Grant G, Keady J, editors. User participation in health and social care research: voices, values and evaluation. Berkshire: Open University Press/McGraw-Hill Education, 14–32; 2007.
  • Torp S, Hanson E, Hauge S, Ulstein I, Magnusson L. A pilot study of how information and communication technology may contribute to health promotion among elderly carers in Norway. Health & Social Care in the Community 2008;16:75–85.
  • Inter municipal cooperation – regional [Internet]. Available from: http://www.12k.no/getfile.php/12k%20filer/12k_english.pdf (accessed 15 December 2012).
  • Morgan DL, Kreuger A. The focus group kit. London: Sage Publications; 1998.
  • Kvale S. Interviews: an introduction to qualitative research interviewing. Newbury Park, CA: Sage Publications; 1996.
  • Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet 2001;358:483–488.
  • SPSS Inc. PASW Statistics 19. Chicago; 2010.
  • Oslo: Research Committee for Medical Research Ethics; 2012. Available from: http://helseforskning.etikkom.no/ikbViewer/page/forside?IKBlanguagecode=us (accessed 15 December 2012).
  • Magnusson L. Designing a responsive support service for family carers of frail older people using information and communication technology. Gothenburg: University of Gothenburg; 2005.
  • Suitor JJ, Pillemer K. Sources of support and interpersonalstress in the networks of married caregiving daughters:nFindings from a 2-year longitudinal study. The Journals of Gerontology 1996;51:297–306.
  • House JS, Landis KR, Umberson D. Social relationships and health. Science 1988;241:540–545.
  • Cooke DD, McNally L, Mulligan KT, Harrison MJG, Newman SP. Psychosocial interventions for caregivers of people with dementia: a systematic review. Aging & Mental Health 2001;5:120–135.
  • Hanson E, Magnusson L, Arvidsson H, Klaesson A, Keady J, Nolan M. Working together with persons with early stage dementia and their family members to design a user-friendly technology based support service. Dementia 2007;6:411–434.
  • Levesque L, Ducharme F, Caron C, Hanson E, Magnusson L, Nolan J, Nolan M. A partnership approach to service needs assessment with family caregivers of an aging relative living at home: a qualitative analysis of the experiences of caregivers and practitioners. International Journal of Nursing Studies 2010;47:876–887.
  • Yeandle S, Wigfield A. New approaches to supporting carers' health and wellbeing: evidence from the National Carers' Strategy Demonstrator Sites programme. Leeds: University of Leeds; 2011.
  • Magnusson L. IT-baserat anhörigstöd i vård och omsorg – ett projekt för at pröva och utvärdera modern informationsteknik och videokonferens som stöd för äldre och deras anhörigvårdare [IT-based support for family carers]. Borås: Högskolan i Borås; 2002.
  • Salari S, Brown BB, Eaton J. Conflicts, friendship cliques and territorial displays in senior center environments. Journal of Aging Studies 2006;20:237–252.
  • Smith S, Bellaby P, Lindsay S. Social inclusion at different scales in the urban environment: locating the community to empower. Urban Studies 2010;47:1439–1457.
  • Zarit SH. Process and outcomes for caregivers: new multidimensional measurement approaches. In: XIX IAGG World Congress of Gerontology. Paris: International Association of Gerontology and Geriatrics; 2009.
  • Magnusson L, Hanson E, Nolan M. The impact of information and communication technology on family carers of older people and professionals in Sweden. Ageing & Society 2005;25:693–713.
  • Mok E, Martinson I. Empowerment of Chinese patients with cancer through self-help groups in Hong Kong. Cancer Nursing 2000;23:206–213.
  • Stang I, Mittelmark MB. Intervention to enhance empowerment in breast cancer self-help groups. Nursing Inquiry 2010;17:47–57.
  • Masi CM, Suarez-Balcazar Y, Cassey MZ, Kinney L, Piotrowski ZH. Internet access and empowerment: a community-based health initiative. Journal of General Internal Medicine 2003;18:525–530.
  • Ministerial Conference for ‘ICT for an Inclusive Society’ [Internet]. Riga, Latvia: European Council & European Commission; 2006. Available from: http://ec.europa.eu/information_society/activities/einclusion/events/riga_2006/index_en.htm (accessed 15 November 2012).
  • Askheim OP. Empowerment – olika infallsvinklar [Empowerment – different approaches]. In: Askheim OP, Starrin B, editors. Empowerment i teori och praktik [Empowerment in theory and practice]. Malmö: Gleerups; 2007;21–33.
  • Vaage OF. Norsk mediebarometer 2010 [Norwegian media barometer 2010]. Oslo: Statistics Norway; 2010.
  • Lindsay C. Employability, services for unemployed job seekers and the digital divide. Urban Studies 2005;42:325–339.
  • Wong YC, Fung JYC, Law CK, Lam JCY, Lee VWP. Tackling the digital divide. British Journal of Social Work 2009;39:754–767.
  • Fagerberg Å, Lundgren M, Bondesson J, Simonsson J. AMIGO: Ett samlat grepp för anhörigkontakt [AMIGO: a comprehensive approach to informal carer contact]. Vällingby: Hjälpmedelsinstitutet; 2010.
  • Lincoln YS, Guba EG. Naturalistic inquiry. London: Sage Publications; 1985.
  • Schulz R. Some critical issues in caregiver intervention research. Aging & Mental Health 2001;5( Supplement 1):112–115.
  • Czaja SJ, Rubert MP. Telecommunications technology as an aid to family caregivers of persons with dementia. Psychosomatic Medicine 2002;64:469–476.

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