“It's not everyday that parents get a chance to talk like this”: Exploring parents' perceptions and expectations of speech-language pathology services for children with intellectual disability

References

• Bachner, Y. G., Carmel, S., Lubetzky, H., Heinman, N., Galil, A. (2006). Parent-therapist communication and satisfaction with their services of a child development centre: A comparison between Israeli parents – Jews and Bedouins. Health Communication, 19, 221–229.
   PubMed Web of Science ®Google Scholar
• Bailey, D. B., Bruder, M. B., Hebbler, K., Carta, J., Defosset, M. (2006). Recommended outcomes for families of young children with disabilities. Journal of Early Intervention, 28, 227–251.
   Web of Science ®Google Scholar
• Band, S., Lindsay, G., Law, J., Soloff, N., Peacey, N., Gascogine, M., Radford, J. (2002). Are health and education talking to each other? Perceptions of parents of children with speech and language needs. European Journal of Special Education, 17, 211–227.
   Google Scholar
• Barbour, R. S., Kitzinger, J. (1999). Developing focus group research: Politics, theory and practice. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Baxendale, J., Frankham, J., Hesketh, A. (2001). The Hanen Parent Program: A parent's perspective. International Journal of Communication Disorders, 36(Suppl), 511–516.
   PubMedGoogle Scholar
• Carlhed, C., Bjorck-Akesson, E., Granlund, M. (2003). Parents' perspectives on early intervention: The paradox of needs and rights. British Journal of Developmental Disabilities, 49, 69–80.
   Web of Science ®Google Scholar
• Carpenter, B., Russell, P. (2005). Early Intervention in the United Kingdom: Current policy and practice. In The developmental systems approach to early intervention M. J. Guralnick (Ed.), ( pp. 455–480). London: Paul Brookes Publishing Company.
   Google Scholar
• Carr-Hill, R. (1992). The measurement of patient satisfaction. Journal of Public Health Medicine, 14, 236–249.
   PubMedGoogle Scholar
• Chapman, J., Forshaw, N. (2002). Making services more accessible. Bulletin of Royal College of Speech and Language Therapists, May, 7–8.
   Google Scholar
• Department of Education, Science and Training (DEST). (2005). Disability Standards for Education. Canberra: DEST Publications.
   Google Scholar
• Department for Education and Skills (DFES). (2005). Every child matters: Workforce strategy. Nottingham: DFES Publications.
   Google Scholar
• Department of Justice, Equality and Law Reform. (2004b). Education for Persons with Special Educational Needs Act. Dublin: Dublin Stationary Office.
   Google Scholar
• Department of Justice, Equality and Law Reform. (2004a). National Disability Strategy. Dublin: Dublin Stationery Office.
   Google Scholar
• Department of Justice, Equality and Law Reform. (2005). Disability Act. Dublin: Dublin Stationery Office.
   Google Scholar
• DePoy, E., Gitlin, L. (2005). Introduction to research (3rd ed.). St Louis, MO: Elsevier.
   Google Scholar
• Duchan, J. (2001). Impairment and social views of speech-language pathology: Clinical practices re-examined. Advances in Speech-Language Pathology, 3, 37–45.
   Google Scholar
• Glass, C., Arnkoff, D. B., Shapiro, S. (2001). Expectations and preferences. Psychotherapy, 38, 455–461.
   Web of Science ®Google Scholar
• Glogowska, M., Campbell, R. (2000). Investigating parental views of involvement in pre-school speech and language therapy. International Journal of Language and Communication Disorders, 35, 391–405.
   PubMed Web of Science ®Google Scholar
• Glogowska, M., Campbell R., Peters T. J., Roulstone, S., Enderby P. (2001). Developing a scale to measure parental attitudes towards preschool SLT services. International Journal of Language and Communication Disorders, 36, 503–513.
   PubMed Web of Science ®Google Scholar
• Glowgowska, M. (2005). Understanding expectations. In C. Anderson, A. van der Gaag (Eds), Speech and language therapy: Issues in professional practice ( pp. 27–42). London: Whurr.
   Google Scholar
• Goldbart, J., Marshall, J. (2004). “Pushes and Pulls” on the parents of children who use AAC. Augmentative Alternative Communication, 20, 194–208.
   Google Scholar
• Goldbart, J., Marshall, J. (2009). Working with families of children who use AAC. In Working with families in speech-language pathologyN. Watts Pappas, S. McLeod (Eds.), San Diego, CA: Plural Publishing.
   Google Scholar
• Kovarsky, D. (2007). A missing voice in the discourse of evidence-based practice. Topics in Language Disorders, 27, 50–61.
   Web of Science ®Google Scholar
• Law M., Hannah S., King G., Hurley P., King S., Kertoy, M., Rosenbaum P. (2003). Factors affecting family centred service delivery for children with disabilities. Child: Care, Health & Development, 29, 357–366.
   PubMed Web of Science ®Google Scholar
• Lindsay, G., Dockrell, J. E. (2004). Whose job is it? Parents' concerns about the needs of their children with language problems. The Journal of Special Education, 37, 225–235.
   Web of Science ®Google Scholar
• Lyons, R., O'Malley, M. P., O'Connor, P., Monaghan, U. ( in press, 2010). “It's just so lovely to hear him talking”: Exploring the early intervention experiences of parents. Child Language Teaching and Therapy.
   Web of Science ®Google Scholar
• Malcomess, K. (1998). A service without consultation: Like a washing machine without soap. Bulletin of Royal College of Speech and Language Therapists, July, 7–8.
   Google Scholar
• Marshall, J. Goldbart, J., Phillips, J. (2007). Parents' and speech and language therapists' explanatory models of language development, language delay and intervention. International Journal of Language and Communication Disorders, 42, 533–555.
   PubMed Web of Science ®Google Scholar
• Miller, C. (1999). Teachers and speech and language therapists: A shared framework. British Journal of Special Education, 26, 141–146.
   Google Scholar
• McLeod, S., Threats, T. T. (2008). The ICF-CY and children with communication disabilities. International Journal of Speech-Language Pathology, 10, 92–109.
   Web of Science ®Google Scholar
• Newton, C., Clarke, M., Donlan, C., Wright, J., Lister, C., Cherguit, J. (2007). Parents' expectations and perceptions concerning the provision of communication aids by the Communication Aids Project (CAP). Child Language Teaching and Therapy, 23, 47–65.
   Google Scholar
• National Assembly for Wales (NAfW). (2002). Special educational needs: Code of practice. Cardiff: NAfW.
   Google Scholar
• Rosenbaum, P., King S., Law, M., King G., Evans, J. (1998). Family centred service: A conceptual framework and research review. Physical Occupational therapy in Paediatrics, 18, 1–20.
   Google Scholar
• Pope, C., Ziebland, S., Mays, N. (2000). Qualitative research in health care: Analysing qualitative data. British Medical Journal, 320, 114–116.
   PubMed Web of Science ®Google Scholar
• Royal College Speech and Language Therapists. (2006). Communicating quality: Professional standards for speech and language therapists, (3rd ed.). London: RCSLT.
   Google Scholar
• Senguder, T. (2002). An exploratory analysis of customer satisfaction. Journal of American Academy of Business, 2, 177–184.
   Google Scholar
• Skeat, J., Perry, A. (2008). Grounded theory as a method for research in speech and language therapy. International Journal of Language and Communication Disorders, 43, 95–109.
   PubMed Web of Science ®Google Scholar
• Summers, J. A., Marquis, J., Mannan, H., Turnbull, A. P., Flemming, K., Poston, D. J., Wang, M., Kupzyk, K. (2007). Relationships of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programmes. International Journal of Disability, Development and Education, 54, 319–338.
   Google Scholar
• Tashakkori, A., Teddlie, C. (2003). Handbook of mixed methods in social and behavioural research. Thousand Oaks, CA: Sage.
   Google Scholar
• Watts Pappas, N., McLeod, S., McAllister, L., McKinnon, D. H. (2008). Parental involvement in speech intervention: A national survey. Clinical Linguistics and Phonetics, 22, 335–344.
   PubMed Web of Science ®Google Scholar
• Watts Pappas, N., McLeod, S.. (Eds.) (2009). Working with families in speech-language pathology. San Diego, CA: Plural Publishing.
   Google Scholar
• World Health Organization (WHO). (2001). ICF: International Classification of Functioning Disability and Health. Geneva: WHO.
   Google Scholar