Living with aphasia: Three Indigenous Australian stories

References

• Aboriginal Disability Network, New South Wales. (2004/2005). Telling it like it is: A report on community consultations with Aboriginal people with disability and their associates throughout NSW, 2004–2005. Strawberry Hills, NSW: Aboriginal Disability Network NSW.
   Google Scholar
• Ariotti, L. (1999). Social construction of Anangu disability. Australian Journal of Rural Health, 7, 216–222.
   PubMedGoogle Scholar
• Australian Institute of Health and Welfare. (2004). Heart, stroke and vascular disease - Australian facts 2004. Canberra: AIHW; p. 40.
   Google Scholar
• Australian Institute of Health and Welfare. (2008). Aboriginal and Torres Strait Islander Health Performance Framework report 2008: Detailed analyses. Canberra: AIHW.
   Google Scholar
• Australian Institute of Health and Welfare. (2011a). Heart, stroke and vascular disease: Australian facts 2011. Canberra: AIHW.
   Google Scholar
• Australian Institute of Health and Welfare. (2011b). The health and welfare of Australia's Aboriginal and Torres Strait Islander people: An overview 2011. Cat. no. IHW 42. Canberra: AIHW.
   Google Scholar
• Bernhardt, B. M. (Ed.). (2008). Indigenous and colonial languages: Implications for speech-language pathology research and practice. Clinical Linguistics and Phonetics, 22, 567–677.
   PubMed Web of Science ®Google Scholar
• Boddington, P., & Räisänen, U. (2009). Theoretical and practical issues in the definition of health: Insights from Aboriginal Australia. Journal of Medicine and Philosophy, 34, 49–67.
   PubMed Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24, 1267–1295.
   Web of Science ®Google Scholar
• Byng, S., & Duchan, J. (2005). Social model philosophies and principles: Their applications to therapies for aphasia. Aphasiology, 19, 906–922.
   Web of Science ®Google Scholar
• Cass, A., Lowell, A., Christie, M., Snelling, P. L., Flack, M., Marranganyin, B., . (2002). Sharing the true stories: Improving communication between Aboriginal patients and healthcare workers. The Medical Journal of Australia, 176, 466–470.
   PubMed Web of Science ®Google Scholar
• Cresswell, J. W. (2007). Qualitative inquiry and research design: Choosing among five approaches (2nd ed). Thousand Oaks, CA: Sage.
   Google Scholar
• Croteau, C., & LeDorze, G. (2006). Overprotection, “speaking for”, and conversational participation: A study of couples with aphasia. Aphasiology, 20, 327–336.
   Web of Science ®Google Scholar
• Cruice, M., Hill, R., Worrall, L., Hickson, L. (2010). Conceptualising quality of life for older people with aphasia. Aphasiology, 24, 327–347.
   Web of Science ®Google Scholar
• Cruice, M., Worrall, L., Hickson, L. (2006). Perspectives of quality of life by people with aphasia and their family: Suggestions for successful living. Topics in Stroke Rehabilitation, 13, 14–24.
   PubMed Web of Science ®Google Scholar
• Department of Communications, Information, Technology and the Arts. (2005). National Indigenous languages survey report 2005. Available online at: http://www.fatsilc.org.au/images/pdfs/NILS-Report-2005.pdf, accessed 5 October 2010.
   Google Scholar
• Edis, F. (2002). Speech pathology with Aboriginal people: Back of beyond or your backyard? In C. Williams, & S. Leitão (Eds). Proceedings of the 2002 Speech Pathology Australia National Conference. Melbourne: Speech Pathology Australia.
   Google Scholar
• Engelter, S. T., Gostynski, M., Papa, S., Frei, M., Born, C., Ajdacic-Gross, V. . (2006). Epidemiology of aphasia attributable to first ischemic stroke: Incidence, severity, fluency, etiology, and thrombolysis. Stroke, 37, 1379–1384.
   PubMed Web of Science ®Google Scholar
• Faux, S., Ahmat, J., Bailey, J., Kesper, D., Crotty, M., Pollack, M., . (2009). Stroke rehabilitation down under: Can Rupert Murdoch, Crocodile Dundee and an Aboriginal Elder expect the same services and care? Topics in Stroke Rehabilitation, 16, 1–10.
   PubMed Web of Science ®Google Scholar
• Fogarty, G. J., & White, C. (1994). Differences between values of Australian Aboriginal and non-Aboriginal students. Journal of Cross-Cultural Psychology, 25, 394–408.
   Web of Science ®Google Scholar
• Harwood, M. (2010). Rehabilitation and indigenous peoples: The Māori experience. Disability and Rehabilitation, 32, 972–977.
   PubMed Web of Science ®Google Scholar
• Hickok, G. (1996). The role of the left frontal operculum in sign language aphasia. Neurocase, 2, 373.
   Web of Science ®Google Scholar
• Hinckley, J. J. (2008). Narrative-based practice in speech-language pathology: Stories of a clinical life. San Diego, CA: Plural Publishing.
   Google Scholar
• Huttlinger, K. W., & Tanner, D. (1994). The Peyote way: Implications for cultural care theory. Journal of Transcultural Nursing, 5, 5–11.
   PubMedGoogle Scholar
• Kagan, A., Black, S. E., Duchan, J. F., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversation partners using Supported Conversation for Adults with Aphasia (SCA): A controlled trial. Journal of Speech, Language, and Hearing Research, 44, 624–638.
   PubMed Web of Science ®Google Scholar
• Katzenellenbogen, J. S., Vos, T., Somerford, P., Begg, S., Semmens, J. B., & Coddie, J. P. (2010). Burden of stroke in Indigenous Western Australians: A study using data linkage. Stroke, 42, 1515–1521.
   Web of Science ®Google Scholar
• McLellan, K., McCann, C., & Worrall, L. (2011). Maori with aphasia: A people without a voice? New Zealand Medical Journal, 124, 48–57.
   PubMedGoogle Scholar
• Morse, J. M., & Field, P. A. (1995). Qualitative research methods for health professionals (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• National Stroke Foundation. (2004). National Stroke Unit Program: Aboriginal Stroke Project. Melbourne, Vic.: National Stroke Foundation.
   Google Scholar
• Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health, 23, 334–340.
   PubMed Web of Science ®Google Scholar
• Shadden, B., & Hagstrom, F. (2007). The role of narrative in the life participation approach to aphasia. Topics in Language Disorders, 27, 324–338.
   Web of Science ®Google Scholar
• Shahid, S., Bessarab, D., Howat, P., & Thompson, S. C. (2009b). Exploration of the beliefs and experiences of Aboriginal people with cancer in Western Australia: A methodology to acknowledge cultural difference and build understanding. BMC Medical Research Methodology, 9, 1–8.
   PubMed Web of Science ®Google Scholar
• Shahid, S., Finn, L. D., & Thompson, S. C. (2009a). Barriers to participation of Aboriginal people in cancer care: Communication in the hospital setting. Medical Journal of Australia, 190, 574–579.
   PubMed Web of Science ®Google Scholar
• Simmons, N. R., & Small, J. A. (2010). Understanding perspectives in linguistically and culturally diverse clinical interactions. CASPLA Conference 2010, Whitehorse, Yukon.
   Google Scholar
• Stake, R. E. (2005). Qualitative case studies. In N. K. Denzin, & Y. S. Lincoln. The Sage handbook of qualitative research (3rd ed) (pp. 443–466). Thousand Oaks, CA: Sage.
   Google Scholar
• Tanner, L., Agius, K., & Darbyshire, P. (2004–2005). “Sometimes they run away, that's how scared they feel”: The paediatric hospitalisation experiences of Indigenous families from remote areas of Western Australia. Contemporary Nurse, 18, 3–17.
   PubMedGoogle Scholar
• Taylor, S. J., & Bogdan, R. (1994). Qualitative research methods and community living. In M. F. Hayden, & B. H. Abery (Eds.), Challenges for a service system in transition (pp. 43–63). Baltimore, MD: Paul H. Brookes Publishing.
   Google Scholar
• Thompson, S. C., Shahid, S., Greville, H. S., & Bessareb, D. (2011). “A whispered sort of stuff”: A community report around Aboriginal peoples’ beliefs about cancer and experiences of cancer care in Western Australia. Perth, WA: Combined Universities Centre for Rural Health. Curtin University and the Cancer Council of WA.
   Google Scholar
• Thrift, A. G., Cadilhac, D., & Eades, S. (2011). Excess risk of stroke in Australia's Aboriginal and Torres Strait Islander populations. Stroke, 42, 1501–1502.
   PubMed Web of Science ®Google Scholar
• Walshe, M., & Miller, N. (2011). Living with acquired dysarthria: The speaker's perspective. Disability and Rehabilitation, 33, 195–203.
   PubMed Web of Science ®Google Scholar
• Watson, J., Hodson, K., & Johnson, R. (2002). Developing strategies to gather information about the maternity experiences of Indigenous women in an acute care setting. The Australian Journal of Rural Health, 10, 147–153.
   PubMedGoogle Scholar
• World Health Organization. (2001). International Classification of Functioning, Disability and Health (ICF). Geneva: World Health Organization.
   Google Scholar
• Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., & Ferguson, A. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25, 309–322.
   Web of Science ®Google Scholar