Prognostic value of efficiently correcting nocturnal desaturations after one month of non-invasive ventilation in amyotrophic lateral sclerosis: A retrospective monocentre observational cohort study

References

• Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, et al. EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. Eur J Neurol. 2005;12:921–38.
   PubMed Web of Science ®Google Scholar
• Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomized controlled trial. Lancet Neurol. 2006;5:140–7.
   PubMed Web of Science ®Google Scholar
• Aboussouan LS, Khan SU, Meeker DP, Stelmach K, Mitsumoto H. Effect of non-invasive positive pressure ventilation on survival in amyotrophic lateral sclerosis. Ann Intern Med. 1997;127:450–3.
   PubMed Web of Science ®Google Scholar
• Lo Coco D, Marchese S, Pesco MC, La Bella V, Piccoli F, Lo Coco A. Non-invasive positive pressure ventilation in ALS: predictors of tolerance and survival. Neurology. 2006; 67:761–5.
   PubMed Web of Science ®Google Scholar
• Gil J, Funalot B, Verschueren A, Danel-Brunaud V, Camu W, Vandenberghe N, et al. Causes of death among French patients with amyotrophic lateral sclerosis: a prospective study. Eur J Neurol. 2008;15:1245–51.
   PubMed Web of Science ®Google Scholar
• Lechtzin N. Causes of death among French patients with amyotrophic lateral sclerosis: is guideline recommended care getting lost in translation?. Eur J Neurol. 2009;16:5–6.
   PubMedGoogle Scholar
• Atkeson AD, RoyChoudhury A, Harrington-Moroney G, Shah B, Mitsumoto H, Basner RC. Patient-ventilator asynchrony with nocturnal non-invasive ventilation in ALS. Neurology. 2011;77:549–55.
   PubMed Web of Science ®Google Scholar
• Thille AW, Rodriguez P, Cabello B, Lellouche F, Brochard L. Patient-ventilator asynchrony during assisted mechanical ventilation. Intensive Care Med. 2006;32:1515–22.
   PubMed Web of Science ®Google Scholar
• Berry RB, Chediak A, Brown LK, Finder J, Gozal D, Iber C, et al. Best clinical practices for the sleep centre adjustment of non-invasive positive pressure ventilation (NPPV) in stable chronic alveolar hypoventilation syndromes. J Clin Sleep Med. 2010;6:491–509.
   PubMed Web of Science ®Google Scholar
• Haute Autorité de Santé. Modalités pratiques de la ventilation non-invasive en pression positive, au long cours, à domicile, dans les maladies neuromusculaires. http://wwwhas-santefr/portail/jcms/c_334439/modalites-pratiques-de-la-ventilation-non-invasive-en-pression-positive-au-long-cours-a-domicile-dans-les-maladies-neuromusculaires. 2006.
   Google Scholar
• Rabec C, Georges M, Kabeya NK, Baudouin N, Massin F, Reybet-Degat O, et al. Evaluating non-invasive ventilation using a monitoring system coupled to a ventilator: a bench-to-bedside study. Eur Respir J. 2009;34:902–13.
   PubMed Web of Science ®Google Scholar
• Gonzalez-Bermejo J, Morelot-Panzini C, Salachas F, Redolfi S, Straus C, Becquemin MH, et al. Diaphragm pacing improves sleep in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2012;13:44–54.
   PubMed Web of Science ®Google Scholar
• Clinical indications for non-invasive positive pressure ventilation in chronic respiratory failure due to restrictive lung disease, COPD, and nocturnal hypoventilation: a consensus conference report. Chest. 1999;116:521–34.
   PubMed Web of Science ®Google Scholar
• Gonzalez-Bermejo J. Indications and equipment needs for ventilatory support in amyotrophic lateral sclerosis. Rev Neurol (Paris). 2006;162:S320–2.
   Google Scholar
• Diagnosis ETFo, Management of Amyotrophic Lateral Sclerosis, Andersen PM, Abrahams S, Borasio GD, de Carvalho M, et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS): revised report of an EFNS task force. Eur J Neurol. 2011;19:360–75.
   PubMedGoogle Scholar
• Senent C, Golmard JL, Salachas F, Chiner E, Morelot- Panzini C, Meninger V, et al. A comparison of assisted cough techniques in stable patients with severe respiratory insufficiency due to amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2011;12:26–32.
   PubMed Web of Science ®Google Scholar
• Janssens JP, Borel JC, Pepin JL. Nocturnal monitoring of home non-invasive ventilation: the contribution of simple tools such as pulse oximetry, capnography, built-in ventilator software and autonomic markers of sleep fragmentation. Thorax. 2011;66:438–45.
   PubMed Web of Science ®Google Scholar
• Gonzalez-Bermejo J, Perrin C, Janssens JP, Pepin JL, Mroue G, Leger P, et al. Proposal for a systematic analysis of polygraphy or polysomnography for identifying and scoring abnormal events occurring during non-invasive ventilation. Thorax. 2012;67:546–52.
   PubMed Web of Science ®Google Scholar
• Chio A, Mora G, Leone M, Mazzini L, Cocito D, Giordana MT, et al. Early symptom progression rate is related to ALS outcome: a prospective population-based study. Neurology. 2002;59:99–103.
   PubMed Web of Science ®Google Scholar
• Bach JR, Robert D, Leger P, Langevin B. Sleep fragmentation in kyphoscoliotic individuals with alveolar hypoventilation treated by NIPPV. Chest. 1995;107:1552–8.
   PubMed Web of Science ®Google Scholar
• Teschler H, Stampa J, Ragette R, Konietzko N, Berthon-Jones M. Effect of mouth leak on effectiveness of nasal bilevel ventilatory assistance and sleep architecture. Eur Respir J. 1999;14:1251–7.
   PubMed Web of Science ®Google Scholar
• Gonzalez J, Sharshar T, Hart N, Chadda K, Raphael JC, Lofaso F. Air leaks during mechanical ventilation as a cause of persistent hypercapnia in neuromuscular disorders. Intensive Care Med. 2003;29:596–602.
   PubMedGoogle Scholar
• Crescimanno G, Marrone O, Vianello A. Efficacy and comfort of volume-guaranteed pressure support in patients with chronic ventilatory failure of neuromuscular origin. Respirology. 2011;16:672–9.
   PubMed Web of Science ®Google Scholar
• Rabec C, Rodenstein D, Leger P, Rouault S, Perrin C, Gonzalez-Bermejo J. Ventilator modes and settings during non-invasive ventilation: effects on respiratory events and implications for their identification. Thorax. 2011;66:170–8.
   PubMed Web of Science ®Google Scholar
• Elliott MW. Non-invasive ventilation during sleep: time to define new tools in the systematic evaluation of the technique. Thorax. 2011;66:82–4.
   PubMed Web of Science ®Google Scholar
• Finder JD, Birnkrant D, Carl J, Farber HJ, Gozal D, Iannaccone ST, et al. Respiratory care of the patient with Duchenne muscular dystrophy: ATS consensus statement. Am J Respir Crit Care Med. 2004;170:456–65.
   PubMed Web of Science ®Google Scholar
• Pinto A, Almeida JP, Pinto S, Pereira J, Oliveira AG, de Carvalho M. Home telemonitoring of non-invasive ventilation decreases healthcare utilization in a prospective controlled trial of patients with amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatry. 2011;81:1238–42.
   Google Scholar