Advanced search
Publication Cover
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 15, 2014 - Issue 5-6
Submit an article Journal homepage
968
Views
134
CrossRef citations to date
0
Altmetric
Research Article

Diagnostic timelines and delays in diagnosing amyotrophic lateral sclerosis (ALS)

Sabrina PaganoniDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USA;Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Boston, Massachusetts, USA
,
Eric A. MacklinMassachusetts General Hospital Biostatistics Center, Boston, Massachusetts, USA
,
Alexandra LeeDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USA
,
Alyssa MurphyDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USA
,
Judith ChangDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USA
,
Amanda ZipfDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USA
,
Merit CudkowiczDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USA
&
Nazem AtassiDepartment of Neurology, Harvard Medical School, Neurological Clinical Research Institute (NCRI), Massachusetts General Hospital, Boston, Massachusetts, USACorrespondence[email protected]
 show all
Pages 453-456 | Received 24 Dec 2013, Accepted 09 Mar 2014, Published online: 01 Jul 2014

References

  • Chio A. ISIS Survey: an international study on the diagnostic process and its implications in amyotrophic lateral sclerosis. J Neurol. 1999;246 (Suppl 3):III1–5.
  • Mitchell JD, Callagher P, Gardham J, Mitchell C, Dixon M, Addison-Jones R, et al. Timelines in the diagnostic evaluation of people with suspected amyotrophic lateral sclerosis (ALS)/motor neuron disease (MND) – a 20-year review:. Can we do better?Amyotroph Lateral Scler. 2010; 11:537–41.
  • Cellura E, Spataro R, Taiello AC, La Bella V. Factors affecting the diagnostic delay in amyotrophic lateral sclerosis. Clin Neurol Neurosurg. 2012;114:550–4.
  • Donaghy C, Dick A, Hardiman O, Patterson V. Timeliness of diagnosis in motor neuron disease: a population based study. Ulster Med J. 2008;77:18–21.
  • Househam E, Swash M. Diagnostic delay in amyotrophic lateral sclerosis: what scope for improvement?J Neurol Sci. 2000;180:76–81.
  • Iwasaki Y, Ikeda K, Ichikawa Y, Igarashi O, Kinoshita M. The diagnostic interval in amyotrophic lateral sclerosis. Clin Neurol Neurosurg. 2002;104:87–9.
  • Kraemer M, Buerger M, Berlit P. Diagnostic problems and delay of diagnosis in amyotrophic lateral sclerosis. Clin Neurol Neurosurg. 2010;112:103–5.
  • Zoccolella S, Beghi E, Palagano G, Fraddosio A, Samarelli V, Lamberti P, et al. Predictors of delay in the diagnosis and clinical trial entry of amyotrophic lateral sclerosis patients: a population based study. J Neurol Sci. 2006; 250:45–9.
  • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence based review). Report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009;73:1227–33.
  • Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study,1996–2000. J Neurol Neurosurg Psychiatry.2003;74: 1258–61.
  • Brooks BR. El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial ‘Clinical limits of amyotrophic lateral sclerosis’ workshop contributors. J Neurol Sci. 1994;124 (Suppl): 96–107.
  • Belsh JM, Schiffman PL. Misdiagnosis in patients with amyotrophic lateral sclerosis. Arch Intern Med. 1990;150: 2301–5.
  • Belsh JM, Schiffman PL. The amyotrophic lateral sclerosis (ALS) patient perspective on misdiagnosis and its repercussions. J Neurol Sci. 1996;139 (Suppl):110–6.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.