Access to rehabilitation: patient perceptions of inequalities in access to specialty pain rehabilitation from a gender and intersectional perspective

References

• Breivik H, Collett B, Ventafridda V, Cohen R, Gallacher D. Survey of chronic pain in Europe: prevalence, impact on daily life, and treatment. Eur J Pain. 2006; 10: 287–333.
   PubMed Web of Science ®Google Scholar
• Nordin C, Fjellman-Wiklund A, Gard G. In search of recognition – patients’ experiences of patient participation prior to multimodal pain rehabilitation. Eur J Physiother. 2014; 16: 49–57.
   Google Scholar
• Merrick D, Sundelin G, Stålnacke BM. One-year follow-up of two different rehabilitation strategies for patients with chronic pain. J Rehabil Med. 2012; 44: 764–73.
   PubMed Web of Science ®Google Scholar
• de Heer EW, Gerrits MMJG, Beekman ATF, Dekker J, van Marwijk HWJ, de Waal MWM, etal. The association of depression and anxiety with pain: a study from NESDA. PLoS One. 2014; 9: e106907.
   PubMed Web of Science ®Google Scholar
• Bair MJ, Robinson RL, Katon W, Kroenke K. Depression and pain comorbidity: a literature review. Arch Intern Med. 2003; 163: 2433–45.
   PubMed Web of Science ®Google Scholar
• Börsbo B, Gerdle B, Peolsson M. Impact of the interaction between self-efficacy, symptoms and catastrophising on disability, quality of life and health in with chronic pain patients. Disabil Rehabil. 2010; 32: 1387–96.
   PubMed Web of Science ®Google Scholar
• Werner A, Malterud K. It is hard work behaving as a credible patient: encounters between women with chronic pain and their doctors. Soc Sci Med. 2003; 57: 1409–19.
   PubMed Web of Science ®Google Scholar
• Hankivsky O. Women's health, men's health, and gender and health: implications of intersectionality. Soc Sci Med. 2012; 74: 1712–20.
   PubMed Web of Science ®Google Scholar
• Album D, Westin S. Do diseases have a prestige hierarchy? A survey among physicians and medical students. Soc Sci Med. 2008; 66: 182–8.
   PubMed Web of Science ®Google Scholar
• Grue J, Johannessen LEF, Rasmussen EF. Prestige rankings of chronic diseases and disabilities. A survey among professionals in the disability field. Soc Sci Med. 2015; 124: 180–6.
   Web of Science ®Google Scholar
• Holloway I, Sofaer-Bennett B, Walker J. The stigmatisation of people with chronic back pain. Disabil Rehabil. 2007; 29: 1456–64.
   PubMed Web of Science ®Google Scholar
• Gustafsson M, Ekholm J, Öhman A. From shame to respect: musculoskeletal pain patients’ experience of a rehabilitation programme, a qualitative study. J Rehabil Med. 2004; 36: 97–103.
   PubMed Web of Science ®Google Scholar
• Nettleton S. ‘I just want permission to be ill’: towards a sociology of medically unexplained symptoms. Soc Sci Med. 2006; 62: 1167–78.
   PubMed Web of Science ®Google Scholar
• Scascighini L, Toma V, Dober-Spielmann S, Sprott H. Multidisciplinary treatment for chronic pain: a systematic review of interventions and outcomes. Rheumatology. 2008; 47: 670–8.
   PubMed Web of Science ®Google Scholar
• Hasselström J, Liu-Palmgren J, Rasjö-Wrååk G. Prevalence of pain in general practice. Eur J Pain. 2002; 6: 375–85.
   PubMed Web of Science ®Google Scholar
• SBU 2010. Chronic pain rehabilitation. Stockholm: Swedish Council of Health Technology Assessment..
   Google Scholar
• Hamberg K, Risberg G, Johansson EE, Westman G. Gender bias in physicians’ management of neck pain: a study of the answers in a Swedish national examination. J Womens Health Gend Based Med. 2002; 11: 653–66.
   PubMedGoogle Scholar
• Raine R. Does gender bias exist in the use of specialist health care?. J Health Serv Res Policy. 2000; 5: 237–49.
   PubMedGoogle Scholar
• Hammarström A, Haukenes I, Fjellman Wiklund A, Lehti A, Wiklund M, Evengård B, etal. Low-educated women with chronic pain were less often selected to multidisciplinary rehabilitation programs. PLoS One. 2014; 9: e97134.
   PubMed Web of Science ®Google Scholar
• Stålnacke B, Haukenes I, Lehti A, Fjellman Wiklund A, Wiklund M, Hammarström A. Is there a gender bias in the recommendations for further rehabilitation in primary care of patients with chronic pain after an interdisciplinary team assessment?. J Rehabil Med. 2015; 47: 365–71.
   PubMed Web of Science ®Google Scholar
• Noone JH, Stephens C. Men, masculine identities, and health care utilisation. Sociol Health Illn. 2008; 30: 711–25.
   PubMed Web of Science ®Google Scholar
• Ruiz-Cantero MT, Vives-Cases C, Artazcoz L, Delgado A, García Calvente MM, Miqueo C, etal. A framework to analyse gender bias in epidemiological research. J Epidemiol Community Health. 2007; 61(Suppl 2): 46–53.
   Web of Science ®Google Scholar
• Bosner S, Haasenritter J, Hani M, Keller H, Sonnichsen A, Karatolios K, etal. Gender bias revisited: new insights on the differential management of chest pain. BMC Fam Pract. 2011; 12: 45.
   PubMed Web of Science ®Google Scholar
• Hallett K. Intersectionality and serious mental illness – a case study and recommendations for practice. Women Ther. 2015; 38: 156–74.
   Web of Science ®Google Scholar
• Hammarström A, Johansson K, Annandale E, Ahlgren C, Aléx L, Christianson M, etal. Central gender theoretical concepts in health research: the state of the art. J Epidemiol Community Health. 2014; 68: 185–90.
   PubMed Web of Science ®Google Scholar
• Muenzenmaier K, Margolis F, Langdon GS, Rhodes D, Kobayashi T, Rifkin L. Transcending bias in diagnosis and treatment for women with serious mental illness. Women Ther. 2015; 38: 141–55.
   Web of Science ®Google Scholar
• Connell R. Gender, health and theory: conceptualizing the issue, in local and world perspective. Soc Sci Med. 2012; 74: 1675–83.
   PubMed Web of Science ®Google Scholar
• Connell RW. Gender and power: society, the person and sexual politics. 1987; Stanford, CA: Stanford University Press.
   Google Scholar
• Springer KW, Hankivsky O, Bates LM. Gender and health: relational, intersectional, and biosocial approaches. Soc Sci Med. 2012; 74: 1661–6.
   PubMed Web of Science ®Google Scholar
• CSDH (2008). Closing the gap in a generation: health equity through action on the social determinants of health. Final Report of the Commission on Social Determinants of Health. Geneva: World Health Organization.
   Google Scholar
• Bates LM, Hankivsky O, Springer KW. Gender and health inequities: a comment on the final report of the WHO Commission on the Social Determinants of Health. Soc Sci Med. 2009; 69: 1002–4.
   PubMed Web of Science ®Google Scholar
• Bourdieu P. The logic of practice. 1990; Cambridge: Polity Press.
   Google Scholar
• Adkins L, Skeggs B. Feminism after Bourdieu. 2004; Oxford: Blackwell.
   Google Scholar
• Öhman A. Profession on the move: changing conditions and gendered development in physiotherapy. 2001; Umeå: Umeå University.
   Google Scholar
• Hammarström A, Wiklund M, Stålnacke B-M, Lehti A, Haukenes I, Fjellman-Wiklund A. Developing a tool for increasing the awareness about gendered and intersectional processes in the clinical assessment of patients – A study of pain rehabilitation. PLoS One. 2016; 11: e0152735.
   Web of Science ®Google Scholar
• Haukenes I, Hensing G, Stalnacke BM, Hammarstrom A. Does pain severity guide selection to multimodal pain rehabilitation across gender?. Eur J Pain. 2015; 19: 826–33.
   PubMed Web of Science ®Google Scholar
• Lehti A, Fjellman-Wiklund A, Stålnacke B-M, Hammarström A, Wiklund M. Walking down ‘Via Dolorosa’ from primary health care to the specialty pain clinic – patient and professional perceptions of inequity in rehabilitation of chronic pain. Scand J Caring Sci. 2016. http://dx.doi.org/10.1111/scs.12312.
   Google Scholar
• Dahlgren L, Emmelin M, Winkvist A. Qualitative methodology for international public health. 2004; Umeå: Epidemiology and Public Health Sciences, Department of Public Health and Clinical Medicine, Umeå University.
   Google Scholar
• Kvale S. Interviews. An introduction to qualitative research interviewing. 1996; London: Sage.
   Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004; 24: 105–12.
   PubMed Web of Science ®Google Scholar
• Downe-Wamboldt B. Content analysis: method, applications, and issues. Health Care Women Int. 1992; 13: 313–21.
   PubMedGoogle Scholar
• Lehti AH, Johansson EE, Bengs C, Danielsson U, Hammarström A. ‘The Western Gaze’ – An analysis of medical research publications concerning the expressions of depression, focusing on ethnicity and gender. Health Care Women Int. 2010; 31: 100–12.
   PubMed Web of Science ®Google Scholar
• Alex L, Fjellman Wiklund A, Lundman B, Christianson M, Hammarström A. Beyond a dichotomous view of the concepts of ‘sex’ and ‘gender’ focus group discussions among gender researchers at a medical faculty. PLoS One. 2012; 7: e50275.
   Web of Science ®Google Scholar
• Wiklund M, Bengs C, Malmgren-Olsson E-B, Öhman A. Young women facing multiple and intersecting stressors of modernity, gender orders and youth. Soc Sci Med. 2010; 71: 1567–75.
   PubMed Web of Science ®Google Scholar
• Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15: 1277–88.
   PubMed Web of Science ®Google Scholar
• Lincoln YS, Guba EG. Naturalistic inquiry. 1985; London: Sage.
   Google Scholar
• Hamberg K. Gender bias in medicine. Womens Health. 2008; 4: 237–43.
   Google Scholar
• Ahlsen B, Bondevik H, Mengshoel AM, Solbrække KN. (Un)doing gender in a rehabilitation context: a narrative analysis of gender and self in stories of chronic muscle pain. Disabil Rehabil. 2014; 36: 359–66.
   PubMed Web of Science ®Google Scholar
• Toye F, Seers K, Allcock N, Briggs M, Carr E, Andrews J, etal. Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review. Br J Gen Pract. 2013; 63: e829–41.
   PubMed Web of Science ®Google Scholar
• Skuladottir H, Halldorsdottir S. The quest for well-being: self-identified needs of women in chronic pain. Scand J Caring Sci. 2011; 25: 81–91.
   PubMed Web of Science ®Google Scholar
• Jutel A, Nettleton S. Towards a sociology of diagnosis: reflections and opportunities. Soc Sci Med. 2011; 73: 793–800.
   PubMed Web of Science ®Google Scholar
• Ahlsen B, Mengshoel AM, Solbrække KN. Troubled bodies – troubled men: a narrative analysis of men's stories of chronic muscle pain. Disabil Rehabil. 2012; 34: 1765–73.
   PubMed Web of Science ®Google Scholar
• Haraway D. Simians, cyborgs, and women. The reinvention of nature. 1991; New York: Routledge.
   Google Scholar
• WHO. Social determinants of health. World Health Organization. 2015. Available from: http://www.who.int/social_determinants/sdh_definition/en/ [cited 16 March 2016]..
   Google Scholar
• Socialdepartementet (1982). Svensk författningssamling (SFS) [Health Care Law]. Stockholm: Socialdepartementet.
   Google Scholar