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Empirical Studies

Living with a double burden: Meanings of pain for women with fibromyalgia

, PhD Student, , RN PhD, , RN PhD & , RNT PhD
Article: 7184 | Accepted 20 Jun 2011, Published online: 13 Jul 2011

References

  • Arnold, L. M., Crofford, L. J., Mease, P. J., Burgess, S. M., Palmer, S. C., Abetz, L., et al. (2008). Patient perspectives on the impact of fibromyalgia. Patient Education and Counselling. 73, 114–120. 10.3402/qhw.v6i3.7184.
  • Åsbring, P., & Närvänen, A.-L. (2002). Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qualitative Health Research. 12, 148–160. 10.3402/qhw.v6i3.7184.
  • Bennett R. M. Fibromyalgia: The commonest cause of widespread pain. Comprehensive Therapy. 1995; 21: 269–275.
  • Bennett, R. M., Jones, J., Turk, D. C., Russell, I. J., & Matallana, L. (2007). An internet survey of 2,596 people with fibromyalgia. BMC Musculoskeletal Disorders. 8, 27. 10.3402/qhw.v6i3.7184.
  • Bennett, R. M., Russell, J., Cappelleri, J. C., Bushmakin, A. G., Zlateva, G., & Sadosky, A. (2010). Identification of symptom and functional domains that fibromyalgia patients would like to see improved: A cluster analysis. BMC Musculoskeletal Disorders. , 11, 134. Retrieved 9 May from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2908076/pdf/1471-2474-11-134.pdf.
  • Buber, M. (1997). Distans och relation. [Distance and relation]. Ludvika: Dualis Förlag AB. (Original German work published 1951).
  • Burckhardt, C. S., Clark, S. R., O'Reilly, C. A., & Bennett, R. M. (1997). Pain-coping strategies of women with fibromyalgia: Relationship to pain, fatigue and quality of life. Journal of Musculoskeletal Pain. , 5, 5–21.
  • Cassell E. J. The nature of suffering and the goals of medicine2nd ed. Oxford University Press. New York and Oxford, 2004
  • Corbin J. Strauss A. L. Accompaniments of chronic illness: Changes in body, self, biography and biographical time. Research in the Sociology of Health Care. 1987; 6: 249–281.
  • Cudney, S. A., Butler, M. R., Weinert, C., & Sullivan, T. (2002). Ten rural women living with fibromyalgia tell it like it is. Holistic Nursing Practice. , 16, 35–45.
  • Cunningham, M. M., & Gillings, C. (2006). Individuals’ descriptions of living with fibromyalgia. Clinical Nursing Research. 15, 258–273. 10.3402/qhw.v6i3.7184.
  • Dahlberg K. Dahlberg H. Nyström M. Reflective lifeworld research. Studentlitteratur. Lund, 2008
  • Dewar, A. L., & Morse, J. M. (1995). Unbearable incidents: Failure to endure the experience of illness. Journal of Advanced Nursing. , 22, 957–964.
  • Eriksson K. Den lidande människan [The suffering human being]. Liber. Arlöv, 1994
  • Frank A. W. At the will of the body. Reflections on illness. Houghton Mifflin Company. Boston and New York, 2002
  • Frank A. W. The renewal of generosity: Illness, medicine and how to live. University of Chicago Press. Chicago, 2004
  • Gustafsson B. Living with dysphagia (Doctoral dissertation). Karolinska Institute. StockholmSweden, 1992
  • Hallberg, L. R. M., & Bergman, S. (2011). Minimizing the dysfunctional interplay between activity and recovery: A grounded theory on living with fibromyalgia. International Journal of Qualitative Studies in Health and Well-being. 6. 10.3402/qhw.v6i3.7184.
  • Henriksson C. M. Living with continuous muscular pain—Patient perspectives. Part I: Encounter and consequences. Scandinavian Journal of Caring Science. 1995a; 9: 67–76.
  • Henriksson C. M. Living with continuous muscular pain—Patient perspectives. Part II: Strategies for daily life. Scandinavian Journal of Caring Science. 1995b; 9: 77–86.
  • Henriksson C. Gundmark I. Bengtsson A. Ek A.-C. Living with fibromyalgia. Consequences for everyday life. Clinical Journal of Pain. 1992; 8: 138–144. 10.3402/qhw.v6i3.7184.
  • Kengen Traska, T., Rutledge, D. N., Mouttapa, M., Weiss, J., & Aquino, J. (2011). Strategies used for managing symptoms by women with fibromyalgia. Journal of Clinical Nursing. Advance online publication. 10.3402/qhw.v6i3.7184.
  • Kleinman A. The illness narratives. Suffering, healing and the human condition. Basic Books Inc. New York, 1988
  • Lawler, J. (1997). The body in nursing: A collections of views. Melbourne: Churchill Livingstone.
  • Lempp, H. K., Hatch, S. L., Carville, S. F., & Choy, E. H. (2009). Patients’ experiences of living with and receiving treatment for fibromyalgia syndrome: A qualitative study. BMC Musculoskeletal Disorders. 10. 10.3402/qhw.v6i3.7184.
  • Lindseth, A., & Norberg, A. (2004). A phenomenological hermeneutical method for researching lived experience. Scandinavian Journal of Caring Science. , 18, 145–153.
  • Löfgren, M., Ekholm, J., & Öhman, A. (2006). ‘A constant struggle’; Successful strategies of women in work despite fibromyalgia. Disability and Rehabilitation. 28, 447–455. 10.3402/qhw.v6i3.7184.
  • Madden, S., & Sim, J. (2006). Creating meaning in fibromyalgia syndrome. Social Science & Medicine. 63, 2962–2973. 10.3402/qhw.v6i3.7184.
  • Madjar I. The lived experience of pain in the context of clinical practice. Handbook of phenomenology and medicine. Toombs K. Kluwer Academic Publishers. Dordrecht Boston, London, 2001; 263–277.
  • Mease, P. (2005). Fibromyalgia syndrome: Review of clinical presentation, pathogenesis, outcome measures and treatment. The Journal of Rheumatology. , 75, 6–21.
  • Merleau-Ponty M. Phenomenology of perception. Routledge. London, 1996
  • Merskey, H., & Bogduk, N. (1994). Classification of chronic pain. descriptions of chronic pain syndromes and definitions of pain terms. (2nd ed.). Seattle: IASP Press.
  • Mishel M. Uncertainty in illness. Image: The Journal of Nursing Scholarship. 1988; 20: 225–232. 10.3402/qhw.v6i3.7184.
  • Mishler E. Research interviewing: Context and narrative. Harvard University Press. London, 1986
  • Neville K. L. Uncertainty in illness. An integrative review. Orthopaedic Nursing. 2003; 22: 206–214. 10.3402/qhw.v6i3.7184.
  • Olsson, M., Lexell, J., & Söderberg, S. (2005). The meaning of fatigue for women with multiple sclerosis. Journal of Advanced Nursing. , 49, 7–15.
  • Olsson, M., Skär, L., & Söderberg, S. (2010). Meanings of feeling well for women with multiple sclerosis. Qualitative Health Research. 20, 1254–1261. 10.3402/qhw.v6i3.7184.
  • Paiva, E. S., & Jones, K. D. (2010). Rational treatment of fibromyalgia for a solo practitioner. Best Practice & Research Clinical Rheumatology. 24, 341–352. 10.3402/qhw.v6i3.7184.
  • Peterson, E. L. (2007). Fibromyalgia—Management of a misunderstood disorder. Journal of American Academy of Nurse Practitioners. 19, 341–348. 10.3402/qhw.v6i3.7184.
  • Råheim, M., & Håland, W. (2006). Lived experience of chronic pain and fibromyalgia: Women's stories from daily life. Qualitative Health Research. 16, 741–761. 10.3402/qhw.v6i3.7184.
  • Register C. Living with chronic illness: Days of patience and passion. Bantam Books. New York, 1989
  • Reiffenberg D. H. Amundson L. H. Fibromyalgia syndrome: A review. American Family Physician. 1996; 53: 1698–1712.
  • Ricoeur P. Interpretation theory: Discourse and the surplus of meaning. Texas Christian University Press. Fort Worth TX, 1976
  • Rodham, K., Rance, N., & Blake, D. (2010). A qualitative exploration of carers’ and patients’ experiences of fibromyalgia: One illness, different perspectives. Musculoskeletal Care. 8, 68–77. 10.3402/qhw.v6i3.7184.
  • Sallinen, M., Kukkarainen, M. L., & Peltokallio, L. (2011). Finally heard, believed and accepted—Peer support in the narratives of women with fibromyalgia. Patient Education and Counseling. 10.3402/qhw.v6i3.7184.
  • Sartre, J.-P. (2003). Being and nothingness: A phenomenological essay on ontology. London: Taylor & Francis. (Original work published 1956).
  • Scarry E. The body in pain. The making and unmaking of the world. Oxford University Press. Oxford, 1985
  • Schaefer, K. M. (1997). Health patterns of women with fibromyalgia. Journal of Advanced Nursing. , 26, 565–571.
  • Schaefer, K. M. (2005). The lived experience of fibromyalgia in African American women. Holistic Nursing Practice. , 19, 17–25.
  • Söderberg, S., & Lundman, B. (2001). Transitions experienced by women with fibromyalgia. Health Care for Women International. , 22, 617–631.
  • Söderberg, S., Lundman, B., & Norberg, A. (1999). Struggling for dignity: The meaning of women's experience of living with fibromyalgia. Qualitative Health Research. 9, 575–587. 10.3402/qhw.v6i3.7184.
  • Söderberg, S., Lundman, B., & Norberg, A. (2002). The meaning of fatigue and tiredness by women with fibromyalgia and healthy women. Journal of Clinical Nursing. , 11, 247–255.
  • Söderberg S. Norberg A. Metaphorical pain language among fibromyalgia patients. Scandinavian Journal of Caring Science. 1995; 9: 55–59.
  • Solitar B. M. Fibromyalgia. Knowns, unknowns and current treatment. Bulletin of the NYU Hospital for Joint Diseases. 2010; 68: 157–161.
  • Todres, L., & Galvin, K. (2010). “Dwelling-mobility”: An existential theory of well-being. International Journal of Qualitative Studies in Health and Well-being. 5, 1–6. 10.3402/qhw.v6i3.7184.
  • Toombs S. K. The meaning of illness. A phenomenological account of the different perspectives of physician and patient. Kluwer Academic Publishers. DordrechtNetherlands, 1993
  • Undeland, M., & Malterud, K. (2007). The fibromyalgia diagnosis—Hardly helpful for the patients? A qualitative focus group study. Scandinavian Journal of Primary Health Care. 25, 250–255. 10.3402/qhw.v6i3.7184.
  • van Wilgen C. P. Bloten H. Oeseburg B. Results of a multidisciplinary program for patients with fibromyalgia implemented in the primary care. Disability and Rehabilitation. 2007; 29: 1207–1213. 10.3402/qhw.v6i3.7184.
  • Wolfe F. Smythe H. A. Yunus M. B. Bennett R. M. Bomardier C. Goldenberg D. L, et al.. The American College of Rheumatology 1990 criteria for the classification of fibromyalgia. Arthritis and Rheumatism. 1990; 33: 160–172. 10.3402/qhw.v6i3.7184.