67
Views
2
CrossRef citations to date
0
Altmetric
Child Health

‘I know my body, I’ve lived in it all my life’: Therapy, surgery and remediation experiences of young people with disabilities

&
Pages 18-33 | Received 16 Jul 2004, Accepted 29 Sep 2004, Published online: 17 Dec 2014

References

  • Alderson, P. 1993, Children’s Consent to Surgery, Open University Press, Buckingham.
  • Anderson, E. M. & Clark, L. 1982, Disability in Adolescence, Methuen, London.
  • Armstrong, D. 1983, Political Anatomy of the Body. Medical Knowledge in Britain in the Twentieth Century, Cambridge University Press, Cambridge.
  • Avery, D. 1999, Talking ‘tragedy’: identity issues in the parental story of disability, in Corker, M. & French, S. (Eds.), Disability Discourse, Open University Press, Buckingham.
  • Barnes, C. 1994, Images of disability, in French, S. (Ed.), On Equal Terms –Working with Disabled People, Butterworth-Heineman, Oxford, pp. 35–46.
  • Barnes, C., Mercer, G. & Shakespeare, T. 1999, Exploring Disability. A Sociological Introduction, Polity Press, Cambridge.
  • Bax, M. 1990, Young disabled adults: their needs, Children & Society, 4(1): 64–69.
  • Beardshaw, V. 1993, Conductive education: a rejoinder, in Swain, J., et al. (Eds.), Disabling Barriers – Enabling Environments, Sage, London.
  • Beresford, B. 1997, Personal Accounts – Involving Disabled Children in Research, Social Policy Research Unit, Norwich.
  • Bleecker, H. & Mulderij 1992, The Experience of Motor Disability, Phenomenology and Pedagogy, 10: 1–18.
  • Bricher, G. 2000a, Disabled people, health professionals and the social model of disability: Can there be a research relationship? Disability & Society, 15(5): 781–793.
  • Bricher, G. 2000b, Children in the hospital: issues of power and vulnerability, Pediatric Nursing, 26(3): 277–282.
  • Bricher, G. 2001, ‘If you want to know about it just ask’: Exploring disabled young people’s experiences of health and health care, Unpublished PhD Thesis, University of South Australia.
  • Burman, E. (1994). Deconstructing developmental psychology. London: Routledge.
  • Callaway, H. 1992, Ethnography and experience. Gender implications in fieldwork and texts, in Okely, J. & Callaway, H. (Eds.) Anthropology and Autobiography, Routledge, London, pp. 29–49.
  • Chadwick, A. 1994, For disabled people the body is the principle site of oppression, both in form and what is done to it, Australian Disability Review, 4: 36–44.
  • Davis, J., Watson, N., Corker, M., & Shakespeare,T. (2003). Reconstructing disability: childhood and social policy in the UK, in C. Hallet & A. Prout (Eds.), Hearing theVoices of Children: social policy for a new century (pp. 192–210). London: Routledge-Falmer.
  • Davis, K. 1993, The Crafting of Good Clients, in Swain, J., Finkelstein, V., French, S. & Oliver, M. (Eds.), Disabling Barriers – Enabling Environments, Sage Publications, London, pp. 198–200.
  • Executive Editors, 1993, Editorial, Disability, Handicap & Society, 8(3): 109–110.
  • Fine, G.A. & Sandstrom, K. L. 1988, Knowing Children, Participant Observation with Minors, Sage Publications, Newbury Park.
  • Frank, G. 1997, Is there life after categories? Reflexivity in qualitative research, The Occupational Therapy Journal of Research, 17(2): 84–98.
  • Franklin, A & Sloper, P. 2004, Participation of disabled children and young people in decision – making within social services departments in England. Social Policy Research Unit, University of York.
  • French, S. 1993, ‘CanYou See the Rainbow?’ The roots of denial, in Swain, J., et al. (Eds.), Disabling Barriers – Enabling Environments, Sage Publications, London, pp. 69–77.
  • French, S. 1994a, The Disabled Role, in French, s. (Eds.), On Equal Terms –Working with Disabled People, Butterworth Heinneman, Oxford, pp. 47–60.
  • French, S. 1994b, The disabled role, in French, S (Ed.), On Equal Terms –Working with Disabled People, Butterworth Heinneman, Oxford, pp. 47–60.
  • French, S. & Swain, J. 1997a, Young disabled people, in Roche, J. & Tucker, S. (Eds.), Youth in Society. Contemporary Theory,Policy and Practice, Sage Publications, London, pp. 199–206.
  • French, S. & Swain, J. 1997b, Changing disability research: Participatory and emancipatory research with disabled people, Physiotherapy, 83(1): 26–32.
  • Fries, K. 1997, Staring Back. The Disability Experience From The Inside Out, Penguin Books, Harmondsworth.
  • Fries, K. 1998, Body, Remember, Plume, New York.
  • Garth,B., – Aroni, R.(2003). ‘I Value What You have to Say’: seeking the perspective of children with a disability, not just their parents. Disability & Society, 18(5), 561–576.
  • Graves, P. 1995, Therapy methods for Cerebral Palsy, Journal of Paediatric Child Health, 31: 24–28.
  • James,A. – Prout, A. 1997a, Preface to the Second Edition in James, A. – Prout, A. (Eds.), Constructing and Reconstructing Childhood, Contemporary issues in the Sociological Study of Childhood, 2nd Edn, Falmer Press, London, pp. 7–33.
  • James, A. & Prout, A. 1997b, A new paradigm for the sociology of childhood? Provenance, promise and problems, in James, A. & Prout, A. (Eds.), Constructing and Reconstructing Childhood, Contemporary issues in the Sociological Study of Childhood, 2nd Edn, Falmer Press, London, pp. 7–33.
  • Jenks, C. (2004). Many childhoods? Childhood, 11(1), 5–8.
  • Lightfoot, J. & Sloper P. 2003, Having a say in health: involving young people with a chronic illness or physical disability in local health services development. Children & Society 15: 57–69.
  • Linton, S. 1998, Claiming Disability, Knowledge and Identity, New York University Press, New York. McNeish, D. 1999, Promoting participation for children and young people: Some key questions for health and social welfare organisations, Journal of Social Work Practice, 13(2): 191–203.
  • Marks, D. 1997, Models of disability, Disability and Rehabilitation, 19(3): 85–91.
  • Masterson, A. 1994, Disability, in Gough, P. (Ed.), Nursing and Social Policy, Care in Context, Butterworth-Heinneman, Oxford, pp. 213–240.
  • Mayall, B. 1996, Children, Health and the Social Order, Open University Press, Buckingham.
  • Mayall, B. 1998, Towards a sociology of child health, Sociology of Health and Illness, 20(3): 269–288.
  • Middleton, L. 1996, Making a Difference: SocialWork with Disabled Children,Venture Press, Birmingham.
  • Middleton, L. 1999, Disabled Children: Challenging Social Exclusion, Blackwell Science, Oxford.
  • Moore, M., Beazley, S. & Maelzer, J. 1998, Researching Disability Issues, Open University Press, Buckingham.
  • Morris, J. 1992, Personal and political: A feminist perspective on researching and disability, Disability, Handicap & Society, 7(2): 157–66.
  • Morris, J. 1997, Gone missing? disabled children living away from their families, Disability & Society, 12(2): 241–258.
  • Mulderij, K. J. 1996, Research into the Lifeworld of Physically Disabled Children, Child: Care, Health and Development, 22(5): 311–22.
  • Mulderij, K. 2000, Dualistic notions about children with motor disabilities: Hands to lean on or to reach out?, Qualitative Health Research, 10(1): 39–50.
  • Northway, 2000, Disability, nursing research and the importance of reflexivity, Journal of Advanced Nursing, 32(2): 391–397.
  • Oliver, M. 1990, The Politics of Disablement, Macmillan, Basingstoke.
  • Oliver, M. 1992, Changing the social relations of research production, Disability, Handicap & Society, 7(2): 101–14.
  • Oliver, M. 1993, Conductive education, in Swain, J., Finkelstein,V., French, S. & Oliver, M. (Eds.), Disabling Barriers – Enabling Environments, Sage Publications, London, pp. 163–166.
  • Patton, M. Q. 1990, Qualitative Evaluation and Research Methods, 2nd Edn, Sage Publications, Newbury Park.
  • Philp, M. & Duckworth, D. 1982, Children with Disabilities and their Families, a Review of the Literature, NFER-Nelson, Windsor.
  • Potter, R. 1999, ‘It’s so vital that therapists listen to the disabled child’, in Therapy Weekly, p. 2.
  • Priestley, M. 1998, Childhood disability and disabled childhoods, agendas for research, Childhood, 5(2): 207–223.
  • Prout, A. (2001). Representing children: Reflections on the Children 5–16 Programme. Children & Society, 15(3), 193–201.
  • Prout, A. (2002). Researching children as social actors: an introduction to the Children 5–16 Programme. Children & Society, 16(2), 67–76.
  • Prout,A., & James, A.(1997). A new paradigm for the sociology of childhood? Provenance, promise and problems, in A. James & A. Prout (Eds.), Constructing and reconstructing childhood: contemporary issues in the sociological study of childhood (2nd Edition ed.). London: Falmer Press.
  • Reason, P. & Rowan, J. 1981, Issues of validity in new paradigm research, in Reason, P. & Rowan, J. (Eds.), Human Inquiry, John Wiley & Sons, New York, pp. 239–249.
  • Rioux, M. H. 1994, New research direction and paradigms: Disability is not measles, in Rioux, M. M. & Bach, M. (Eds.), Disability is Not Measles, New Research Paradigms in Disability, L’Institut Roeher, Ontario, pp. 1–7.
  • Robinson, J. 1997, Listening to disabled youth, Childright, 140: 546–7.
  • Royal Liverpool Children’s NHS, 2004, Listening to Children & Young People: The Alder Hey Consultation. The Children’s Society, UK.
  • Seymour, W. 1998, Remaking the Body. Rehabilitation and Change, Allen & Unwin, Sydney.
  • Shakespeare, T. 1993, Disabled people’s selforganisation: A new social movement, Disability, Handicap & Society, 8(3): 249–64.
  • Shakespeare, T. 1994, Cultural representation of disabled people: Dustbins for disavowal, Disability & Society, 9(3): 283–299.
  • Shakespeare, T. 1998, No Choice, No Voice: The Exclusion of Disabled Children, in Centre for Research on Family, Kinship and Childhood Seminar, Unpublished Paper, Disability Research Unit, University of Leeds, University of Leeds.
  • Shakespeare, T. 2001, Understanding disability, Disability with Attitude Conference Disability With Attitude:Critical Issues 20 Years After International Year of Disabled People, Sydney, Australia. Audiotape produced by the Social Relations of Disability Research Network.
  • Stone, E. & Priestley, M. 1996, Parasites, pawns and partners: Disability research and the role of the non-disabled researcher, British Journal of Sociology, 47(4): 699–716.
  • Strauss, R. P. 1996, Quasimodo and medicine: What role for the clinician in treating deformity, in Donley, C. & Buckley, S. (Eds.), The Tyranny of the Normal, Kent State University Press, Kent, OH.
  • Swain, J. 1993, Taught Helplessness? Or a Say for Disabled Students in Schools, in Swain, J., et al. (Eds.), Disabling Barriers – Enabling Environments, Sage Publications, London, pp. 155–162.
  • Waksler, F. 1991, Studying children: Phenomenological insights, in Waksler, F. (Ed.), Studying the Social Worlds of Children, Falmer Press, London, pp. 60–70.
  • Walkerdine, V. (1993). Beyond developmentalism? Theory and Psychology, 3, 451–470.
  • Wendell, S. 1996, The Rejected body. Feminist Philosophical Reflections on Disability, Routledge, New York.
  • Westcott, H. 1994, Abuse of children and adults who are disabled, in French, S. (Ed.), On Equal Terms – Working With Disabled People, Butterworth Heinneman, Oxford, pp. 190–206.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.