Fathers struggling for relevance in the care of their terminally ill child

References

• Binger C and Ablin A (1969): Childhood leukemia: emotional impact on patient and family, The New England Journal of Medicine, 280(8): 414–418.
   Google Scholar
• Black D (1998): Coping with loss: the dying child, British Medical Journal, May 2; 316(7141): 1376–1378.
   Google Scholar
• Brown KAE and Barbarin OA (1996): Gender differences in Parenting a child with cancer, Social Work in Health Care 22(4): 53–71.
   Google Scholar
• Burton L (1975): The Family Life of Sick Children:A study of families coping with chronic childhood illness, Routledge & Kegan, Great Britain.
   Google Scholar
• Chao-Hsing Y (2002): Gender differences of parental distress in children with cancer Journal of Advanced Nursing 38(6): 598–606.
   Google Scholar
• Chesler MA and Parry C (2001): Gender roles and / or styles in crisis: an integrative analysis of the experiences of fathers of children with cancer, Qualitative Health Research, 11(3): 363–84.
   Google Scholar
• Chochinov H and Kristjanson L. (1999): Dying to pay: the cost of end of life care, Journal of Palliative Care, 14(4): 5–15.
   Google Scholar
• Collins J, Stevens M and Cousens P (1998): Home care for the dying child, Australian Family Physician, 27(7): 610–614.
   Google Scholar
• Connell R (1995): Masculinities, Allen & Unwin, Great Britain.
   Google Scholar
• Cook J (1984): Influence of gender on the problems of parents of fatally ill children, Journal of Psychosocial Oncology, (2): 71–91.
   Google Scholar
• Dalley G (1988): Ideologies of Caring: Rethinking Community and Collectivism, MacMillian, Hong Kong.
   Google Scholar
• Darbyshire P, Haller A and Fleming S, (1997): The interstellar cold: Parents' experiences of their child's palliative care. A Report Prepared for the South Australian Health Commission, Palliative Care Program ‐ Statewide Projects, pp. 130.
   Google Scholar
• Darbyshire P (1994) Living with a sick child in hospital: the experiences of parents and nurses Chapman and Hall, London.
   Google Scholar
• Davies B and Steele R (1996): Challenges in identifying children for palliative care, Journal of Palliative Care, 12(3): 5–8.
   Google Scholar
• Farrell, M. and Sutherland, P. (1998): Providing paediatric palliative care: collaboration in practice, British Journal of Nursing 7(12): 712–716.
   Google Scholar
• Fleischman A, Nolan K, Dubler N, Epstein M, Gerben M, Jellinek M, Litt I, Miles M, Oppenheimer M, Sha, A, Eys J and Vaughan V, (1994): Caring for gravely ill children, Pediatrics, 94(4): 433–439.
   Google Scholar
• Fletcher R (2004) Fatherhood Week: Introduction, Radio National, Australian Broad Casting Commission. Life Matters (accessed 3/5/04) http://www .abc.net.au/rn/talks/lm/stories/s1098881.htm.
   Google Scholar
• Frager G (1996): Pediatric palliative care: building the model, bridging the gaps, Journal of Palliative Care, 12(3): 9–12.
   Google Scholar
• Gillis E (1986): A single parent confronting the loss of an only child, in, Parental Loss of a Child, T. Rando, Champaign, Research Press, 315–319.
   Google Scholar
• Goldman A (1996): Home care for the dying child, Journal of Palliative Care, 12(3): 16–19.
   Google Scholar
• Hayout I and Krulik T (1999): A test of parenthood: dilemmas of parents of terminally ill adolescents, Cancer Nursing, 22(1): 71.
   Google Scholar
• Hollen PJ and Brickle BB (1998): Quality parental decision making and distress Journal of Pediatric Nursing 13(3): 140–150.
   Google Scholar
• Holm KE Patterson JM and Gurney JG (2003): Parental involvement and family ‐ centered care in the diagnostic and treatment phases of childhood cancer: results from a qualitative study Journal of Pediatric Oncology Nursing 20(6): 301–313.
   Google Scholar
• Jones JB and Neil-Urban S 2(003) Father to father: focus group of fathers of children with cancer, Social Work in Health Care 37(1): 41–61.
   Google Scholar
• Katz S & Krulik T (1999): Fathers of children with chronic illness: do they differ from fathers of healthy children? Journal of Family Nursing, 5(3): 292–315.
   Google Scholar
• Kirsch SED & Brandt PA (2002): Telephone interviewing: a method to reach fathers in family research, Journal of Family Nursing 8(1): 73–84.
   Google Scholar
• Kupts M (1986): Death of a Child from Serious Illness in: Parental Loss of a Child, T. Rando (ed.), Champaign, Research Press, 191–199.
   Google Scholar
• Lauer M, Mulhern R, Hoffmann R and Camitta B (1986): Utilisation of hospice/ home care in pediatric oncology, Cancer Nursing, 9(3): 102–107.
   Google Scholar
• Lauer M, Mulhern R, Wallskog J and Camitta B (1983): A comparison study of parental adaptation following a child's death at home or in the hospital, Pediatrics, 71(1): 107–112.
   Google Scholar
• Laws TA (2003): Letters: parents are not homogenous, British Medical Journal, May, 326: 1039b.
   Google Scholar
• Liaschenko J and Underwood SM (2001) Children in research: fathers in cancer research ‐ meanings and reasons for participation, Journal of Family Nursing 7(1): 71–91.
   Google Scholar
• Liben S (1996): Pediatric palliative medicine: obstacles to overcome, Journal of Palliative Care, 12(3): 24–28.
   Google Scholar
• Martinson I (1996): An international perspective on palliative care for children, Journal of Palliative Care, 12(3): 13–15.
   Google Scholar
• McGrath P (2001): Treatment for childhood acute lymphoblastic leukaemia: the fathers' perspective, Australian Health Review 24(2): 135–42.
   Google Scholar
• McGrath P and Huff (2003a): Including the father's perspective in holistic care: Part 1, findings on fathers' experience with childhood acute lymphoblastic leukemia, Australian Journal of Holistic Nursing, 10(1): 4–12.
   Google Scholar
• McGrath P and Huff (2003b): Including the father's perspective in holistic care: Part 2, findings on fathers' experience with childhood acute lympho blastic leukemia, Australian Journal of Holistic Nursing, 10(2): 5–10.
   Google Scholar
• Mulhern R, Lauer, M., and Hoffmann R (1983): Death of a child at home or in hospital: subsequent psychological adjustment of the family, Pediatrics, 71(5): 743–747.
   Google Scholar
• Robinson K (1997): Family caregiving: who provides the care, and at what cost, Nursing Economic, 15(5): 243–247.
   Google Scholar
• Sabbeth B and Leventhal J (1984): Marital adjustment to chronic childhood illness: a critique of the literature, Pediatrics, 73(6): 762–768.
   Google Scholar
• Sabbeth B (1984): Understanding the impact of chronic childhood illness on families, Pediatric clinics of North America, 31(1): 47–57.
   Google Scholar
• Schwab R (1992): Effects of a child's death on the marital relationship: a preliminary study, Death Studies, 16: 141–154.
   Google Scholar
• Sterken DJ (1996): Uncertainty and coping in fathers of children with cancer … including commentary by Mishel MH Journal of Pediatric Oncology Nursing 13(2): 81–90.
   Google Scholar
• WHO (2004): World Health Organisation: Definition of palliative care (accessed, 20/9/04) http://www.who.int/cancer/palliative/definition/en/.
   Google Scholar
• Young B, Dixon-Woods M, Windridge KC and Heney D (2003): Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents. British Medical Journal 326: 305–307.
   Google Scholar