Younger adults with dementia: A strategy to promote awareness and transform perceptions

References

• Access Economics. (2008). Dementia economic impact report: Report for Alzheimer’s New Zealand Incorporated. Wellington.
   Google Scholar
• Adams, T. (2001). Developing a multi professional education and training pathway in dementia care. Mental Health and Learning Disabilities Care, 4(11), 370–371.
   Google Scholar
• Alzheimer’s Australia. (2007). The needs of younger people with dementia in Australia. Retrieved January 12, 2009, from http://www.alzheimers.org.au/upload/YoungerOnset.pdf
   Google Scholar
• Alzheimer’s Society. (2006a). Ready or not: A survey of services available in the UK for younger people with dementia. London: Alzheimer’s Society.
   Google Scholar
• Alzheimer’s Society. (2006b). Self help group’s success story. Retrieved July 27, 2009, from http://www.alzheimers.org.uk/downloads/Share_May_2006.pdf
   Google Scholar
• Alzheimer’s Society. (2007). Dementia UK: A report into the prevalence and cost of dementia. Prepared by the Personal Social Service Research Unit at the London School of Economics and the Institute of Psychiatry at Kings College London for the Alzheimer’s Society, London.
   Google Scholar
• Alzheimer’s Society. (2009). Lives interrupted: Experiences of younger people with dementia. London: Alzheimer’s Society.
   Google Scholar
• Armstrong, M. (2003). The needs of people with young-onset dementia and their carers. Professional Nurse, 18(12), 681–684.
   Google Scholar
• Aveyard, B. (2001). Education and person-centred approaches to dementia care. Nursing Older People, 12(10), 17–19.
   Google Scholar
• Bentham, P., & La Fontaine, J. (2005). Services for younger people with dementia. Psychiatry, 4(2), 100–103.
   Google Scholar
• Burgess, l., & Page, S. (2003). Changing attitudes in dementia care and the role of the nurse. Nursing Times, 9(38), 18–19.
   Google Scholar
• Cantley, C., Woodhouse, J., & Smith, J. (2005). Listen to us: Involving people with dementia in service planning and developing services. Dementia North: Northumbria University. Retrieved January 12, 2009, from http://www.mentalhealthpromotion.net/resources/listento-us.pdf
   Google Scholar
• Chan, P. A., & Chan, T. (2009). The impact of discrimination against older people with dementia and its impact on student nurses professional socialisation. Nurse Education in Practice, 9, 221–227.
   Google Scholar
• Chaston, D., Pollard, N., & Jubb, D. (2004). Young onset dementia: A case for real empowerment. Journal of Dementia Care, 12(6), 24–26.
   Google Scholar
• Cheston, R., Bender, M., & Byatt, S. (2000). Involving people who have dementia in the evaluation of services: A review. Journal of Mental Health, 9(5), 471–480.
   Google Scholar
• Cox, S., & Keady, J. (1999). Younger people with dementia: Planning, practice and development. London: Jessica Kingsley.
   Google Scholar
• Daker-White, G., Beattie, A. M., Means, R., & Gilliard, J. (2002). Serving the needs of marginalised groups in dementia care: Younger people and minority ethnic groups. Bristol: University of the West of England. Retrieved January 12, 2009, from http://www.dementia-voice.org.uk/Projects/finalreport.pdf
   Google Scholar
• Department of Health (DOH). (2001). The expert patient: A new approach to chronic disease management for the 21st century. London: DOH.
   Google Scholar
• Ferri, C. P., Price, M., Brayne, C., Brodarty, H., Fratiglioni, L., Ganguli, M., et al. (2006). Global prevalence of dementia: a Delphi study. The Lancet, 366(9503), 2112–2117.
   Google Scholar
• Godfrey, M., Townsend, J., & Denby, T. (2004). Building a good life for older people in local communities, in The experience of aging in time and place. New York: Joseph Rowntree Foundation.
   Google Scholar
• Haase, T. (2005). Early onset dementia: The needs of younger people with dementia in Ireland. Dun Laoghaire: The Alzheimer Society of Ireland.
   Google Scholar
• Happel, B. (2002). The experience of nursing education in the perpetuation on inequality. Nurse Education Today, 22, 632–640.
   Google Scholar
• Happel, B., & Roper, C. (2002). Promoting consumer participation through the implementation of a consumer academic position. Nurse Education in Practice, 2, 3–79.
   Google Scholar
• Harris, P., & Keady, J. (2004). Living with early onset dementia: Exploring the experience and developing evidence-based guidelines for practice. Alzheimer’s Quarterly, 5(2), 111–122.
   Google Scholar
• Harris, R., Tobias, M., Jeffreys, M., Waldegrave, K., Karlsen, S., & Nazroo, J. (2006). Effects of self-reported racial discrimination and deprivation on Māori health and inequalities in New Zealand: Cross-sectional study. The Lancet, Ch 367(9527), 2005–2009.
   Google Scholar
• Harvey, R. J., Skelton, M., & Rosser, M. N. (2003). The prevalence’s and cause of dementia in people under the age of 65 years. Journal of Neurology, Neurosurgery and Psychiatry, 74, 1206–1209.
   Google Scholar
• Jubb, D., Pollard, N., & Chaston, D. (2003). Developing services for younger people with dementia. Nursing Times, 99(22), 34–35.
   Google Scholar
• Khoo, R., McVicar, A., & Brandon, D. (2004). Service user involvement in post graduate mental health education, does it benefit practice? Journal of Mental Health, 13(5), 481–492.
   Google Scholar
• Kronenburg, F., & Pollard, N. (2005). Overcoming occupational apartheid; a preliminary exploration of the political nature of occupational therapy. In F. Kronenburg, S. A. Simo, & N. Pollard (Eds.), Occupational therapy without borders: Learning from the spirit of survivors (pp. 59–87). Oxford: Churchill Livingstone.
   Google Scholar
• Loveday, B., & Kitwood, T. (1998). Improving dementia care: A resource for training and professional development. London: Hawker Publications.
   Google Scholar
• McDonald, A., & Heath, B. (2008). Developing services for people with dementia. Findings from research in a rural area. Quality in Ageing, 9(4), 9–18.
   Google Scholar
• National Audit Office. (2007). Improving services and support for people with dementia. London: Stationary Office.
   Google Scholar
• Neary, D., & Snowden, J. S. (2003). Causes of dementia in younger people. In R. C. Baldwin & M. Murray (Eds.), Younger people with dementia (pp. 7–41). London: Martin Dunitz.
   Google Scholar
• Nursing Council on New Zealand. (2007). Competencies for registered nurses. Wellington: Nursing Council.
   Google Scholar
• Panegyres, P. K., & Frenchman, K. (2007). Courses and causes of suspected dementia in young adults: A longitudinal study. American Journal of Alzheimer’s Disease & Other Dementias, 22(1), 48–56.
   Google Scholar
• Perkins, C. (2006). Dementia: A New Zealand Guide. Auckland: Random House.
   Google Scholar
• Pulsford, D., Hope, K., & Thompson, R. (2007). Higher Education provision for professionals working with people with dementia: A scoping exercise. Nurse Education Today, 2, 5–13.
   Google Scholar
• Seccombe, J. (2004). Nursing students and people with disabilities. Changing curriculum, changing attitudes. Palmerston North: Unpublished Research Report, Massey University.
   Google Scholar
• Tew, J., Gell, C., & Foster, S. (2004). Learning from experience: Involving service users and carers in mental health education and training. Nottingham: National Institute for Mental Health in England, West Midlands; Trent Workforce Confederation. Tzouri, C. (2007). Hypertension, cognitive decline and dementia: An epidemiological perspective. Dialogues in Clinical Neuroscience, 9, 61–67.
   Google Scholar
• Walton, J. (1999). Young onset dementia. In Adams, T. & Clarke, C. (Eds.), Dementia care: Developing partnerships in practice (pp. 257–279). London: Bailliere Tindall.
   Google Scholar
• Williams, T., Cameron, I., & Dearden, T. (2001). From pillar to post – a study of younger people with dementia. Psychiatric Bulletin, 25(10), 384–387.
   Google Scholar
• World Health Organisation International (WHO). (2001). Classification of function of disability and health. Geneva: WHO.
   Google Scholar
• World Health Organisation International (WHO). (2004). International classification of diseases and related health problems, 10th Revision for 2003 edition. Geneva: WHO. Retrieved January 12, 2009, from http://whqlibdoc.who.int/publications/2004/9241546530_eng.pdf
   Google Scholar