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Original Articles

Vital scientific puzzle or lived uncertainty? Professional and lived approaches to the uncertainties of ageing with HIV

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Pages 20-32 | Received 03 Jun 2013, Accepted 23 Oct 2013, Published online: 17 Dec 2014

References

  • Anderson, R., & Bury, M. (Eds.). (1988). Living with chronic illness: The experience of patients and their families. London, England: Unwin Hyman.
  • Ayers, S. L., & Kronenfeld, J. J. (2007). Chronic illness and health-seeking information on the internet. Health, 11(3), 327–347.
  • Barker, K. K. (2008). Electronic support groups, patient-consumers, and medicalization: The case of contested illness. Journal of Health and Social Behaviour, 49(1), 20–36.
  • Bayer, R., & Oppenheimer, G. M. (2000). AIDS doctors: Voices from the epidemic. New York, NY: Oxford University Press.
  • Bhavan, K. P., Kampalath, V. N., & Overton, E. T. (2008). The aging of the HIV epidemic. Current HIV/AIDS Reports, 5(3), 150–158.
  • Boyatzis, R. (1998). Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, CA: Sage.
  • Brennan, M., Karpiak, S., Shippy, R. A., & Cantor, M. H. (Eds.). (2010). Older adults with HIV: An in-depth examination of an emerging population. New York, NY: Nova Science.
  • Bury, M., & Taylor, D. (2008). Towards a theory of care transition: From medical dominance to managed consumerism. Social Theory & Health, 6(3), 201–219.
  • Charmaz, K. (1991). Good days, bad days: The self in chronic illness and time. New Brunswick, NJ: Rutgers University Press.
  • Charmaz, K., & Rosenfeld, D. (2010). Chronic illness. In W. Cockerham (Ed.), The new Blackwell companion to medical sociology (pp. 312–324). Oxford, England: Wiley-Blackwell.
  • Chesney, M. A., Chambers, D. B., Taylor, J. M., & Johnson, L. M. (2003). Social support, distress, and well-being in older men living with HIV infection. JAIDS Journal of Acquired Immune Deficiency Syndromes, 33, S185–S193.
  • Curtis, A., Gesler, W., Smith, G., & Washburn, S. (2000). Approaches to sampling and case selection in qualitative research: Examples in the geography of health. Social Science & Medicine, 50(7–8), 1001–1014.
  • Doyal, L., & Anderson, J. (2005). ‘My fear is to fall in love again …’: How HIV-positive African women survive in London. Social Science & Medicine, 60(8), 1729–1738.
  • Doyal, L., & Doyal, L. (2013). Living with HIV and dying with AIDS: Diversity, inequality and human rights in the global pandemic. London, England: Ashgate.
  • Dye, F. J., Schatz, I. M., Rosenberg, B. A., & Coleman, S. T. (2000). Constant comparison method: A kaleidoscope of data. The Qualitative Report, 4(1/2). Retrieved from http://www.nova. edu/ssss/QR/QR4-1/dye.html
  • Emlet, C. A., Tozay, S., & Raveis, V. H. (2011). ‘I’m not going to die from the AIDS’: Resilience in aging with HIV disease. The Gerontologist, 51(1), 101–111.
  • Fereday, J., & Muir-Cochrane, E. (2006). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods, 5(1), 80–92.
  • Foster, P. P., & Gaskins, S. W. (2009). Older African Americans’ management of HIV/AIDS stigma. AIDS Care, 21(10), 1306–1312.
  • Foucault, M. (1973). The birth of the clinic. London, England: Tavistock.
  • Fox, N. (2002). What a ‘risky’ body can do: Why people’s health choices are not all based in evidence. Health Education Journal, 61(2), 166–179.
  • Fox, N., & Ward, K. (2006). Health identities: From expert patient to resisting consumer. Health, 10(4), 461–479.
  • Gillet, J. (2003). Media activism and internet use by people with HIV/AIDS. Sociology of Health & Illness, 25(6), 608–624.
  • Glaser, B. G. (1994). The constant comparative method of qualitative analysis. In B. G. Glaser (Ed.), More grounded theory methodology: A reader (pp. 192–196). Mill Valley, CA: Sociology Press.
  • Gold, R. S., & Ridge, D. T. (2001). ‘I will start treatment when I think the time is right’: HIV-positive gay men talk about their decision not to access antiretroviral therapy. AIDS Care, 13(6), 693–708.
  • Gregory, S. (2005). Living with chronic illness in the family setting. Sociology of Health & Illness, 27(3), 372–392.
  • Heritage, J., & Maynard, D. M. (2006). Problems and prospects in the study of physician-patient interaction: 30 years of research. Annual Review of Sociology, 32, 351–374.
  • High, K. P., Brennan-Ing, M., Clifford, D. B., Cohen, M. H., Currier, J., Deeks, S. G., … & Volberding, P. (2012). HIV and aging: State of knowledge and areas of critical need for research. A report to the NIH Office of AIDS Research by the HIV and Aging Working Group. JAIDS Journal of Acquired Immune Deficiency Syndromes, 60, S1–S18.
  • Hughes, J. C., Bamford, C., & May, C. (2008). Types of centredness in health care: Themes and concepts. Medicine, Health Care and Philosophy, 11(4), 455–463.
  • Justice, A., et al. (2012, March 5-8). Aging with HIV: One size does not fit all. 19th Conference on Retroviruses and Opportunistic Infections (Oral abstract 175), Seattle, WA. Retrieved from http://retroconference.org/static/webcasts/2012/
  • Justice, A. C., & Braithwaite, R. S. (2012). Lessons learned from the first wave of aging with HIV. AIDS, 26, S11-S18.
  • Kearney, F., Moore, A. R., Donegan, C. F., & Lambert, J. (2010). The ageing of HIV: Implications for geriatric medicine. Age and Ageing, 39(5), 536–541.
  • Klawiter, M. (2004). Breast cancer in two regimes: The impact of social movements on illness experience. Sociology of Health & Illness, 26(6), 845–874.
  • Lawton, J. (2003). Lay experiences of health and illness: Past research and future agendas. Sociology of Health & Illness, 25(3), 23–40.
  • LeBlanc, A. J. (2011). Aging with HIV/AIDS. In R. A. Settersten & J. L. Angel (Eds.), Handbook of sociology of aging (pp. 495–512). New York, NY: Springer.
  • Marinker, M. (Ed.). (1997). From compliance to concordance: Achieving shared goals in medicine taking. London, England: Royal Pharmaceutical Society; Merck, Sharp, & Dohme.
  • Maynard, D. W. (1991). Interaction and asymmetry in clinical discourse. American Journal of Sociology, 97(2), 448–495.
  • Mishler, E. G. (1984). The discourse of medicine: The dialectics of medical interviews. Norwood, NJ: Ablex.
  • Owen, G., & Catalan, J. (2012). ‘We never expected this to happen’: Narratives of ageing with HIV among gay men living in London, UK. Culture, Health & Sexuality, 14(1), 59–72.
  • Parsons, T. (1951). The social system. Glencoe, IL: The Free Press.
  • Petersen, A., & Bunton, R. (Eds.). (1997). Foucault, health and medicine. London: Routledge.
  • Pierret, J. (2007). An analysis over time (1990-2000) of the experiences of living with HIV. Social Science & Medicine, 65(8), 1595–1605.
  • Pilnick, A., & Dingwall, R. (2011). On the remarkable persistence of asymmetry in doctor/patient interaction: A critical review. Social Science & Medicine, 72(8), 1374–1382.
  • Prout, A., Hayes, L., & Gelder, L. (1999). Medicines and the maintenance of ordinariness in the household management of childhood asthma. Sociology of Health & Illness, 21(2), 137–162.
  • Reiss, P. (2012). HIV, co-morbidity and ageing. 11th Intl Congress (Oral abstract O121), Glasgow, Scotland. Retrieved from http://dx.doi.org/10.7448/ IAS.15.6.18073
  • Rosenfeld, D., Bartlam, B., & Smith, R. (2012). Out of the closet and into the trenches: Gay male baby boomers, aging, and HIV/AIDS. The Gerontologist, 52(2), 255–264.
  • Sankar, A., Nevedal, A., Neufeld, S., Berry, R., & Luborsky, M. (2011). What do we know about older adults and HIV? A review of social and behavioral literature. AIDS Care, 23(10), 1187–1207.
  • Scambler, G., & Kelleher, D. (2006). New social and health movements: Issues of representation and change. Critical Public Health, 16(3), 219–231.
  • Scott, M. B., & Lyman, S. M. (1968). Accounts. American Sociological Review, 33(1), 46–62.
  • Sointu, E. (2005). The rise of an ideal: Tracing changing discourses of wellbeing. The Sociological Review, 52(2), 255–274.
  • Strauss, A. L., & Glaser, B. (Eds.). (1975). Chronic illness and the quality of life. St. Louis, MO: CV Mosby.
  • Strong, P. (1979). The ceremonial order of the clinic: Parents, doctors and medical buneaucracies. London, England: Routledge.
  • Thorpe, R. D. (2008). Integrating biomedical and CAM approaches: The experiences of people living with HIV/AIDS. Health Sociology Review, 17(4), 410–418.
  • Vanderminden, J., & Potter, S. J. (2010). Challenges to the doctor-patient relationship in the twenty-first century. In W. C. Cockerham (Ed.), The new Blackwell companion to medical sociology (pp. 355–372). Oxford, England: Wiley-Blackwell.
  • Waitzkin, H. (1989). A critical theory of medical discourse: Ideology, social control, and the processing of social context in medical encounters. Journal of Health and Social Behavior, 30(2), 220–239.
  • Weatherburn, P., Keogh, P., Reid, D., Hammond, G., & Jessup, K. (2013). My care, I care: A study of what people with HIV value about NHS HIV services across London. Sigma Research @ London School of Hygiene & Tropical Medicine. Retrieved from http://www.sigmaresearch.org.uk/files/report2013f.pdf
  • Williamson, C. (2008). The patient movement as an emancipation movement. Health Expectations, 122(2), 102–112.
  • Ziebland, S. (2004). The importance of being expert: The quest for cancer information on the internet. Social Science & Medicine, 59(9), 1783–1793.

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