INFORMAL CAREGIVERS: COMMUNICATION AND DECISION MAKING

References

• Aneshensel, C. S., et al. (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press.
   Google Scholar
• Brod, M., et al. (1999). Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL). Gerontologist, 39(1), 25–35.
   Google Scholar
• Carpenter, B. D., et al. (2006). Adult children as informants about parents' psychosocial preferences. Family Relations, 55(5), 552–563.
   Google Scholar
• Clark, P. A. (2004, Nov.). Accuracy and reliability of information from persons with dementia. Paper presented at the meeting of the Gerontological Society of America Annual Meeting, Washington, DC.
   Google Scholar
• Clark, P. A., et al. (in press). Consistency of information from persons with dementia: An analysis of differences by question type. Dementia.
   Google Scholar
• Cicirelli, V. G. (1992). Family caregiving: Autonomous and paternalistic decision making. Newbury Park, CA: Sage.
   Google Scholar
• Cohen, D. (1991). The subjective experience of Alzheimer's disease: The anatomy of an illness as perceived by patients and families. American Journal of Alzheimers Disease and Other Dementias, 6(6), 6–11.
   Google Scholar
• Family Caregiver Alliance. (2000). Incidence and prevalence of the major causes of brain impairment. San Francisco: Family Caregiver Alliance http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=438
   Google Scholar
• Feinberg, L. F., et al. (2000, May). Making hard choices: Respecting both voices. San Francisco: Family Caregiver Alliance.
   Google Scholar
• Feinberg, L. F., et al. (2004, Nov.). State of the states in family caregiver support: A 50-state study. San Francisco: Family Caregiver Alliance http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1276
   Google Scholar
• Feinberg, L. F., & Whitlatch, C. J. (2001). Are persons with cognitive impairment able to state consistent choices? Gerontologist, 41(3), 374–382.
   Google Scholar
• Gerety, M. B., et al. (1993). Medical treatment preferences of nursing home residents: Relationship to function and concordance with surrogate decision-makers. Journal of the American Geriatrics Society, 41(9), 953 –960.
   Google Scholar
• Hibbard, J. H., et al. (1997). Informing consumer decisions in health care: implications from decision-making research. Milbank Quarterly, 75(3), 395–414.
   Google Scholar
• Horwitz, R. I., et al. (1990). Treatment adherence and risk of death after a myocardial infarction. Lancet, 336(8714), 542–545.
   Google Scholar
• Judge, K. S. (2007, Nov. 16–20). Acquiring new skills while enhancing remaining strengths: A strength-based intervention for individuals with dementia and their care partners. Symposium conducted at the Gerontological Society of America 60th Annual Scientific Meeting, San Francisco.
   Google Scholar
• Logsdon, R. G., et al. (1999). Quality of life in Alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5(1), 21–32.
   Google Scholar
• McCullough, L. B., et al. (1993). Mapping personal, familial, and professional values in long-term care decisions. Gerontologist, 33(3), 324–332.
   Google Scholar
• Menne, H. L., et al. (2008). Decision-making involvement scale for individuals with dementia and family caregivers. American Journal of Alzheimers Disease and Other Dementias, 23(1), 23–29.
   Google Scholar
• Parmelee, P. A., et al. (1989). Psychometric properties of the Geriatric Depression Scale among the institutionalized aged. Psychological Assessment 1(4), 331–338.
   Google Scholar
• Piiparinen, R., et al. (2008, April 11). Everyday care values and references within care dyads: Incongruence across time. Paper presented at the 32nd Annual Ohio Professional and Student Conference on Aging, Cleveland, OH.
   Google Scholar
• Robinson, L., et al. (2005). Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples. Aging and Mental Health, 9(4), 337–347.
   Google Scholar
• Squillace, M. R., et al. (2002). An exploratory study of personal assistance service choice and decision-making among persons with disabilities and surrogate representatives. Journal of Mental Health and Aging, 8(3), 225–240.
   Google Scholar
• Vitaliano, P. P., et al. (2002). A path model of chronic stress, the metabolic syndrome, and coronary heart disease. Psychosomatic Medicine, 64(3), 418–453.
   Google Scholar
• Whitlatch, C. J. (2006). Older consumers and decision making: A look at family caregivers and care receivers. In S. Kunkel & V. Wellin (Eds.). Consumer voice and choice in long-term care (pp. 3–20). New York: Springer.
   Google Scholar
• Whitlatch, C. J. (2007, March 7–10). Leading edge caregiver interventions: early-stage research and practice for persons with cognitive impairment and their family caregivers. Paper presented at the Joint Conference of the American Society on Aging and the National Council on Aging, Chicago.
   Google Scholar
• Whitlatch, C. J., et al. (2005a). Accuracy and consistency of responses from persons with cognitive impairment. Dementia, 4(2), 171–183.
   Google Scholar
• Whitlatch, C. J., et al. (2005b). Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. Gerontologist, 45(3), 370–380.
   Google Scholar
• Whitlatch, C. J., et al. (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. Gerontologist, 46(5), 688–694.
   Google Scholar
• Whitlatch, C. J., et al. (2007). Decision making and service use in caregiving families. Cleveland, OH: Margaret Blenkner Research Institute, Benjamin Rose Institute, and University Memory and Aging Center.
   Google Scholar
• Whitlatch, C.J., et al. (in press). How well do family caregivers know their relatives' care values and preferences? Dementia.
   Google Scholar
• Whitlatch C. J., & Feinberg, L. F. (2003). Planning for the future together in culturally diverse families: Making everyday care decisions. Alzheimer's Care Quarterly, 4(1): 50–61.
   Google Scholar
• Whitlatch, C. J., & Feinberg, L. F. (2007). Family care and decision making. In C. B. Cox, (ed.), Dementia and social work practice: Research and intervention (pp. 129–147). New York: Springer.
   Google Scholar
• Woods, B. (1999). The person in dementia care. Generations, 23(3), 35–45.
   Google Scholar
• Yee, J. L., & Schulz, R. (2000). Gender differences in psychiatric morbidity among family caregivers: a review and analysis. Gerontologist, 40(2), 147–164.
   Google Scholar
• Young, R. F. (1994). Elders, families, and illness. Journal of Aging Studies, 8(1), 1–15.
   Google Scholar