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Acta Oncologica Volume 59, 2020 - Issue 8
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ORIGINAL ARTICLES: SURVIVORSHIP

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy

Marije E. WeidemaDepartment of Medical Oncology, Radboud University Medical Center, Nijmegen, The Netherlands; Correspondence[email protected]
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Olga HussonDivision of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands; ;Division of Clinical Studies, Institute of Cancer Research/Royal Marsden Hospital, London, UK; View further author information
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Winette T. A. van der GraafDepartment of Medical Oncology, Radboud University Medical Center, Nijmegen, The Netherlands; ;Department of Medical Oncology, Netherlands Cancer Institute, Amsterdam, The Netherlands; View further author information
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Hugh LeonardEHE Rare Cancer Charity, Surrey, UK; View further author information
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Belle H. de RooijNetherlands Comprehensive Cancer Organization, Utrecht, The Netherlands; ;CoRPS – Center of Research on Psychology in Somatic diseases/Department of Medical and Clinical Psychology, Tilburg University, Tilburg, The Netherlands; View further author information
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Lisa Hartle DeYoungEHE Foundation, Anchorage, Alaska, USAView further author information
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Ingrid M. E. DesarDepartment of Medical Oncology, Radboud University Medical Center, Nijmegen, The Netherlands; View further author information
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Lonneke V. van de Poll-FranseDivision of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands; ;Netherlands Comprehensive Cancer Organization, Utrecht, The Netherlands; ;CoRPS – Center of Research on Psychology in Somatic diseases/Department of Medical and Clinical Psychology, Tilburg University, Tilburg, The Netherlands; View further author information
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Pages 975-982 | Received 25 Oct 2019, Accepted 02 May 2020, Published online: 01 Jun 2020

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