The American Journal of Bioethics, Volume 13, Issue 4 (2013)

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The American Journal of Bioethics, Volume 13, Issue 4 (2013)

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Editorial

Article
Can Informed Consent Go Too Far? Balancing Consent and Public Benefit in Research
Lauren C. Milner & David Magnus
Pages: 1-2
Published online: 20 Mar 2013
CitationforCan Informed Consent Go Too Far? Balancing Consent and Public Benefit in Research | Full Text | References | PDF (46 KB)
  • 608 Views
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Target Article

Article
Sickle Cell Disease and the “Difficult Patient” Conundrum
Edward J. Bergman & Nicholas J. Diamond
Pages: 3-10
Published online: 20 Mar 2013
AbstractforSickle Cell Disease and the “Difficult Patient” Conundrum | Full Text | References | PDF (94.2 KB)
  • 1360 Views
  • 36 CrossRef citations
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Open Peer Commentaries

Article
De-Escalating Conflict: Mediation and the “Difficult” Patient
Autumn Fiester
Pages: 11-12
Published online: 20 Mar 2013
CitationforDe-Escalating Conflict: Mediation and the “Difficult” Patient | Full Text | References | PDF (51.3 KB)
  • 685 Views
  • 8 CrossRef citations
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Article
Disrespectful Care in the Treatment of Sickle Cell Disease Requires More Than Ethics Consultation
Carlton Haywood Jr.
Pages: 12-14
Published online: 20 Mar 2013
First Page PreviewforDisrespectful Care in the Treatment of Sickle Cell Disease Requires More Than Ethics Consultation | Full Text | References | PDF (53.5 KB)
  • 351 Views
  • 5 CrossRef citations
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Article
Pain, Chronic Pain, and Sickle Cell Chronic Pain
Ron Amundson
Pages: 14-16
Published online: 20 Mar 2013
First Page PreviewforPain, Chronic Pain, and Sickle Cell Chronic Pain | Full Text | References | PDF (54 KB)
  • 357 Views
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Article
Acknowledging Levels of Racism in the Definition of “Difficult”
Melissa Creary & Arri Eisen
Pages: 16-18
Published online: 20 Mar 2013
First Page PreviewforAcknowledging Levels of Racism in the Definition of “Difficult” | Full Text | References | PDF (53.3 KB)
  • 1537 Views
  • 6 CrossRef citations
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Article
Not Your Typical Frequent Flyer: Overcoming Mythology in Caring for Sickle Cell Disease Patients
Dowin H. Boatright & Jean Abbott
Pages: 18-20
Published online: 20 Mar 2013
First Page PreviewforNot Your Typical Frequent Flyer: Overcoming Mythology in Caring for Sickle Cell Disease Patients | Full Text | References | PDF (52.1 KB)
  • 330 Views
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Article
The “Difficult Patient” Conundrum in Sickle Cell Disease in Kenya: Complex Sociopolitical Problems Need Wide Multidimensional Solutions
Vicki Marsh, George Mocamah, Emmanuel Mabibo, Francis Kombe & Thomas N. Williams
Pages: 20-22
Published online: 20 Mar 2013
First Page PreviewforThe “Difficult Patient” Conundrum in Sickle Cell Disease in Kenya: Complex Sociopolitical Problems Need Wide Multidimensional Solutions | Full Text | References | PDF (53 KB)
  • 1114 Views
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Open Access
Article
Intractable Difficulties in Caring for People With Sickle Cell Disease
Helen Jane Crowther & Ian Kerridge
Pages: 22-24
Published online: 20 Mar 2013
First Page PreviewforIntractable Difficulties in Caring for People With Sickle Cell Disease | Full Text | References | PDF (53.9 KB)
  • 152 Views
  • 1 CrossRef citations
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Article
Distinguishing Difficult Patients From Difficult Maladies
Ben A. Rich
Pages: 24-26
Published online: 20 Mar 2013
First Page PreviewforDistinguishing Difficult Patients From Difficult Maladies | Full Text | References | PDF (51.7 KB)
  • 280 Views
  • 1 CrossRef citations
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Target Article

Article
Does Consent Bias Research?
Mark A. Rothstein & Abigail B. Shoben
Pages: 27-37
Published online: 20 Mar 2013
AbstractforDoes Consent Bias Research? | Full Text | References | PDF (121.8 KB)
  • 1452 Views
  • 36 CrossRef citations
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Open Peer Commentaries

Article
Data Citizenship and Informed Consent
Leslie P. Francis & John G. Francis
Pages: 38-39
Published online: 20 Mar 2013
CitationforData Citizenship and Informed Consent | Full Text | References | PDF (52.4 KB)
  • 313 Views
  • 4 CrossRef citations
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Article
Informed Consent, Big Data, and the Oxymoron of Research That Is Not Research
John P. A. Ioannidis
Pages: 40-42
Published online: 20 Mar 2013
First Page PreviewforInformed Consent, Big Data, and the Oxymoron of Research That Is Not Research | Full Text | References | PDF (53.9 KB)
  • 3005 Views
  • 66 CrossRef citations
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Article
A Review of Evidence on Consent Bias in Research
Khaled El Emam, Elizabeth Jonker, Ester Moher & Luk Arbuckle
Pages: 42-44
Published online: 20 Mar 2013
First Page PreviewforA Review of Evidence on Consent Bias in Research | Full Text | References | PDF (53.2 KB)
  • 635 Views
  • 18 CrossRef citations
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Article
A Thick Opt-Out Is Often Sufficient
Noor A. A. Giesbertz, Annelien L. Bredenoord & Johannes J. M. van Delden
Pages: 44-46
Published online: 20 Mar 2013
First Page PreviewforA Thick Opt-Out Is Often Sufficient | Full Text | References | PDF (53.5 KB)
  • 361 Views
  • 7 CrossRef citations
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Article
How and When Does Consent Bias Research?
R. H. H. Groenwold, R. van der Graaf & J. J. M. van Delden
Pages: 46-48
Published online: 20 Mar 2013
First Page PreviewforHow and When Does Consent Bias Research? | Full Text | References | PDF (59.4 KB)
  • 539 Views
  • 8 CrossRef citations
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Article
The Interaction Between Research Consent and Random Error
David Trafimow
Pages: 49-50
Published online: 20 Mar 2013
CitationforThe Interaction Between Research Consent and Random Error | Full Text | References | PDF (60.9 KB)
  • 111 Views
  • 0 CrossRef citations
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Article
Electronic Fences Make Good Neighbors: The Importance of Medical Records Managers to Protecting Autonomy
Mark D. Fox & Ricky T. Munoz
Pages: 50-52
Published online: 20 Mar 2013
First Page PreviewforElectronic Fences Make Good Neighbors: The Importance of Medical Records Managers to Protecting Autonomy | Full Text | References | PDF (50.1 KB)
  • 197 Views
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Book Reviews

Article
Review of Peter Ubel, Critical Decisions: How You and Your Doctor Can Make the Right Medical Choices Together
Zackary Berger
Pages: 53-54
Published online: 20 Mar 2013
CitationforReview of Peter Ubel, Critical Decisions: How You and Your Doctor Can Make the Right Medical Choices Together | Full Text | References | PDF (46.4 KB)
  • 93 Views
  • 0 CrossRef citations
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Article
Review of Anne-Maree Farrell, The Politics of Blood: Ethics, Innovation and the Regulation of Risk
Charlene Galarneau
Pages: 54-56
Published online: 20 Mar 2013
First Page PreviewforReview of Anne-Maree Farrell, The Politics of Blood: Ethics, Innovation and the Regulation of Risk | Full Text | References | PDF (45.3 KB)
  • 132 Views
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Correspondence

Article
An Unbiased Response to the Open Peer Commentaries on “Does Consent Bias Research?”
Mark A. Rothstein & Abigail B. Shoben
Pages: W1-W4
Published online: 20 Mar 2013
First Page PreviewforAn Unbiased Response to the Open Peer Commentaries on “Does Consent Bias Research?” | Full Text | References | PDF (59.1 KB)
  • 213 Views
  • 6 CrossRef citations
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