The American Journal of Bioethics, Volume 19, Issue 8 (2019)

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The American Journal of Bioethics, Volume 19, Issue 8 (2019)

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Guest Editorial

Editorial
Mind the Gap: The Ethics Void Created by the Rise of Citizen Science in Health and Biomedical Research
Bray Patrick-Lake & Jennifer C. Goldsack
Pages: 1-2
Published online: 24 Jul 2019
CitationforMind the Gap: The Ethics Void Created by the Rise of Citizen Science in Health and Biomedical Research | Full Text | References | PDF (57.2 KB) | EPUB
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Free Access

Target Article

Article
The Rise of Citizen Science in Health and Biomedical Research
Andrea Wiggins & John Wilbanks
Pages: 3-14
Published online: 24 Jul 2019
AbstractforThe Rise of Citizen Science in Health and Biomedical Research | Full Text | References | PDF (419 KB) | EPUB
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Open Access

Open Peer Commentaries

Article Commentary
Parsing the Line Between Professional and Citizen Science
Barbara J. Evans
Pages: 15-17
Published online: 24 Jul 2019
First Page PreviewforParsing the Line Between Professional and Citizen Science | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
Biomedical Citizen Science or Something Else? Reflections on Terms and Definitions
Christi J. Guerrini, Anna Wexler, Patricia J. Zettler & Amy L. McGuire
Pages: 17-19
Published online: 24 Jul 2019
First Page PreviewforBiomedical Citizen Science or Something Else? Reflections on Terms and Definitions | Full Text | References | PDF (2.2 MB) | EPUB
  • 614 Views
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Open Access
Article Commentary
Beyond Belmont—and Beyond Regulations
Lisa M. Rasmussen
Pages: 19-21
Published online: 24 Jul 2019
First Page PreviewforBeyond Belmont—and Beyond Regulations | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
Institutional Review Board Oversight of Citizen Science Research Involving Human Subjects
David B. Resnik
Pages: 21-23
Published online: 24 Jul 2019
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Article Commentary
The Ethics of Public and Service User Involvement in Health Research: The Need for Participatory Reflection on Everyday Ethical Issues
Tineke Abma, Barbara Groot & Guy Widdershoven
Pages: 23-25
Published online: 24 Jul 2019
First Page PreviewforThe Ethics of Public and Service User Involvement in Health Research: The Need for Participatory Reflection on Everyday Ethical Issues | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
Should Patient Groups Have the Power to Redirect How Their Samples Are Used?
Eleanor T. Chung & Benjamin E. Berkman
Pages: 26-28
Published online: 24 Jul 2019
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Article Commentary
Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations
Mary A. Ott & Amelia S. Knopf
Pages: 28-31
Published online: 24 Jul 2019
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Article Commentary
Engaging the “Citizen” in Citizen Science: Who’s Actually Included?
Hina Walajahi
Pages: 31-33
Published online: 24 Jul 2019
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Article Commentary
The Challenge of Demandingness in Citizen Science and Participatory Research
Karin Jongsma & Phoebe Friesen
Pages: 33-35
Published online: 24 Jul 2019
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Article Commentary
N-of-1 Precision Medicine and Research Oversight
Andrew Crouse, Mariko Nakano-Okuno, Matthew Might & Thomas May
Pages: 36-37
Published online: 24 Jul 2019
CitationforN-of-1 Precision Medicine and Research Oversight | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
Ethically Justified Restrictions on Citizen Science: A Perspective from Singapore
Markus Labude & Vicki Xafis
Pages: 38-40
Published online: 24 Jul 2019
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Article Commentary
Cultural Considerations in Citizen Health Science and the Case for Community-Based Approaches
Victoria J. Metcalf & Rochelle L. Style
Pages: 40-43
Published online: 24 Jul 2019
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Article Commentary
Who Watches the Step-Watchers: The Ups and Downs of Turning Anecdotal Citizen Science into Actionable Clinical Data
Maya Sherman, Ziv Idan & Dov Greenbaum
Pages: 44-46
Published online: 24 Jul 2019
First Page PreviewforWho Watches the Step-Watchers: The Ups and Downs of Turning Anecdotal Citizen Science into Actionable Clinical Data | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
A Neglected Ethical Issue in Citizen Science and DIY Biology
Lucie White
Pages: 46-48
Published online: 24 Jul 2019
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Article Commentary
Considering Power Relations in Citizen Science
Jason David Keune
Pages: 48-49
Published online: 24 Jul 2019
CitationforConsidering Power Relations in Citizen Science | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
Co-Production: An Ethical Model for Mental Health Research?
Sapfo Lignou, Liliana Capitao, Julia Madeleine Hamer-Hunt & Ilina Singh
Pages: 49-51
Published online: 24 Jul 2019
First Page PreviewforCo-Production: An Ethical Model for Mental Health Research? | Full Text | References | PDF (2.1 MB) | EPUB
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Article Commentary
Challenges of Citizen Science: Commons, Incentives, Organizations, and Regulations
Karsten Weber, Frank Pallas & Max-R. Ulbricht
Pages: 52-54
Published online: 24 Jul 2019
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  • 352 Views
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Article Commentary
Learning Not Just From But With Citizens: The Importance of Co-Design in Health-Related Social Research
Rachel A. Ankeny & Helen Barrie
Pages: 54-56
Published online: 24 Jul 2019
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  • 356 Views
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Article Commentary
The Importance of Gatekeeping in Citizen Science
Mark S. Davis
Pages: 56-58
Published online: 24 Jul 2019
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Article Commentary
Citizen Science and the Politicization of Epistemology
Narcyz Ghinea
Pages: 58-60
Published online: 24 Jul 2019
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  • 306 Views
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Article Commentary
Citizen Science for Biomedical Research and Contributive Justice
Cristian Timmermann
Pages: 60-62
Published online: 24 Jul 2019
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