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Augmentative and Alternative Communication Volume 20, 2004 - Issue 4
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Research Article

"I Prefer Contact This Close": Perceptions of AAC by People with Motor Neurone Disease and their Communication Partners

Joan Murphy University of Stirling Stirling UK
Pages 259-271 | Published online: 12 Jul 2009

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Richard Cave & Steven Bloch. (2023) The use of speech recognition technology by people living with amyotrophic lateral sclerosis: a scoping review. Disability and Rehabilitation: Assistive Technology 18:7, pages 1043-1055.
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Zoë Charlotte Clarke, Simon Judge, Kate Fryer, Stuart Cunningham, Jonathan Toogood & Mark S. Hawley. (2023) A qualitative study exploring the effect of communicating with partially intelligible speech. Augmentative and Alternative Communication 39:2, pages 110-122.
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Katherine Broomfield, Deborah Harrop, Georgina L. Jones, Karen Sage & Simon Judge. (2022) A qualitative evidence synthesis of the experiences and perspectives of communicating using augmentative and alternative communication (AAC). Disability and Rehabilitation: Assistive Technology 0:0, pages 1-15.
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A. Moorcroft, N. Scarinci & C. Meyer. (2021) “I've had a love-hate, I mean mostly hate relationship with these PODD books”: parent perceptions of how they and their child contributed to AAC rejection and abandonment. Disability and Rehabilitation: Assistive Technology 16:1, pages 72-82.
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Kailash Gogineni, Akhil Chitreddy, Anirudh Vattikuti & Natarajan Palaniappan. (2020) Gesture and Speech Recognizing Helper Bot. Applied Artificial Intelligence 34:7, pages 585-595.
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A. Moorcroft, N. Scarinci & C. Meyer. (2019) A systematic review of the barriers and facilitators to the provision and use of low-tech and unaided AAC systems for people with complex communication needs and their families. Disability and Rehabilitation: Assistive Technology 14:7, pages 710-731.
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Simon Judge, Steven Bloch & Christopher J. McDermott. (2019) Communication change in ALS: engaging people living with ALS and their partners in future research. Disability and Rehabilitation: Assistive Technology 14:7, pages 675-681.
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Jacquie Ripat, Michèle Verdonck, Carly Gacek & Shelly McNicol. (2019) A qualitative metasynthesis of the meaning of speech-generating devices for people with complex communication needs. Augmentative and Alternative Communication 35:2, pages 69-79.
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Imke Oosthuizen, Shakila Dada, Juan Bornman & Rajinder Koul. (2018) Message banking: Perceptions of persons with motor neuron disease, significant others and clinicians. International Journal of Speech-Language Pathology 20:7, pages 756-765.
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Sarvnaz Taherian & Claire Davies. (2018) Multiple stakeholder perceptions of assistive technology for individuals with cerebral palsy in New Zealand. Disability and Rehabilitation: Assistive Technology 13:7, pages 648-657.
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Tanja Makkonen, Hanna Ruottinen, Anna-Maija Korpijaakko-Huuhka & Johanna Palmio. (2018) Variation in communication strategies in amyotrophic lateral sclerosis during a two-year follow-up. Speech, Language and Hearing 21:2, pages 123-130.
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Mary Rabbitte, Ursula Bates & Michael Keane. (2015) Psychological and psychotherapeutic approaches for people with motor neuron disease: A qualitative study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:5-6, pages 303-308.
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Helen Paterson & Christine Carpenter. (2015) Using different methods to communicate: how adults with severe acquired communication difficulties make decisions about the communication methods they use and how they experience them. Disability and Rehabilitation 37:17, pages 1522-1530.
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Martine M. Smith. (2015) Language Development of Individuals Who Require Aided Communication: Reflections on State of the Science and Future Research Directions. Augmentative and Alternative Communication 31:3, pages 215-233.
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Teresa Iacono, Katie Lyon, Hilary Johnson & Denise West. (2013) Experiences of adults with complex communication needs receiving and using low tech AAC: an Australian context. Disability and Rehabilitation: Assistive Technology 8:5, pages 392-401.
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Kriten Mistry & Jane Simpson. (2013) Exploring the transitional process from receiving a diagnosis to living with motor neurone disease. Psychology & Health 28:8, pages 939-953.
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Steven Bloch & Michael Clarke. (2013) Handwriting-in-interaction Between People with ALS/MND and their Conversation Partners. Augmentative and Alternative Communication 29:1, pages 54-67.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence 6, pages 691-701.
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K Joubert & J Bornman. (2012) Motor neuron disease: the impact of decreased speech intelligibility on marital communication. South African Family Practice 54:4, pages 332-338.
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Teresa Iacono, Katie Lyon & Denise West. (2011) Non-electronic communication aids for people with complex communication needs. International Journal of Speech-Language Pathology 13:5, pages 399-410.
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Zahoor Ahmad Khan, Phil Green, Sarah Creer & Stuart Cunningham. (2011) Reconstructing the Voice of an Individual Following Laryngectomy. Augmentative and Alternative Communication 27:1, pages 61-66.
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Barbara Collier, Donna Mcghie-Richmond & Hazel Self. (2010) Exploring Communication Assistants as an Option for Increasing Communication Access to Communities for People who use Augmentative Communication. Augmentative and Alternative Communication 26:1, pages 48-59.
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Tami J. Howe. (2008) The ICF Contextual Factors related to speech-language pathology. International Journal of Speech-Language Pathology 10:1-2, pages 27-37.
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John Dattilo, Gus Estrella, Laura J. Estrella, Janice Light, David McNaughton & Meagan Seabury. (2008) “I have chosen to live life abundantly”: Perceptions of leisure by adults who use Augmentative and Alternative Communication. Augmentative and Alternative Communication 24:1, pages 16-28.
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Sheridan Forster & Teresa Iacono. (2007) Perceptions of communication before and after a speech pathology intervention for an adult with intellectual disability. Journal of Intellectual & Developmental Disability 32:4, pages 302-314.
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Sarah W. Blackstone, Michael B. Williams & David P. Wilkins. (2007) Key principles underlying research and practice in AAC. Augmentative and Alternative Communication 23:3, pages 191-203.
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Bernard M. O'Keefe, Natalie Bahry Kozak, Bernard M. O'Keefe, Natalie Bahry Kozak, Reinhard Schuller, Bernard M. O'Keefe, Natalie Bahry Kozak & Reinhard Schuller. (2007) Research priorities in augmentative and alternative communication as identified by people who use AAC and their facilitators. Augmentative and Alternative Communication 23:1, pages 89-96.
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Melanie Fried-Oken, Lynn Fox, Marie T. Rau, Jill Tullman, Glory Baker, Mary Hindal, Nancy Wile & Jau-Shin Lou. (2006) Purposes of AAC device use for persons with ALS as reported by caregivers. Augmentative and Alternative Communication 22:3, pages 209-221.
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Anna Huynh, Kerry Adams, Carolina Barnett-Tapia, Sanjay Kalra, Lorne Zinman & Yana Yunusova. (2023) Accessing and Receiving Speech-Language Pathology Services at the Multidisciplinary Amyotrophic Lateral Sclerosis Clinic: An Exploratory Qualitative Study of Patient Experiences and Needs. Journal of Speech, Language, and Hearing Research, pages 1-13.
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Birgit Hennig & Jana Tessmer. 2023. Assistive Technologien, technische Rehabilitation und Unterstützte Kommunikation. Assistive Technologien, technische Rehabilitation und Unterstützte Kommunikation 63 74 .
Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) The impact of communication on healthcare involvement for people living with motor neurone disease and their carers: A longitudinal qualitative study. International Journal of Language & Communication Disorders 57:6, pages 1318-1333.
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Richard Cave & Steven Bloch. (2020) Voice banking for people living with motor neurone disease: Views and expectations. International Journal of Language & Communication Disorders 56:1, pages 116-129.
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Birgit Hennig & Andrea Erdélyi. 2020. Neurologische Beatmungsmedizin. Neurologische Beatmungsmedizin 429 439 .
Michelle Westley, Dean Sutherland & H. Timothy Bunnell. (2019) Voice Banking to Support People Who Use Speech-Generating Devices: New Zealand Voice Donors' Perspectives. Perspectives of the ASHA Special Interest Groups 4:4, pages 593-600.
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T. A. Mariya Celin, G. Anushiya Rachel, T. Nagarajan & P. Vijayalakshmi. (2019) A Weighted Speaker-Specific Confusion Transducer-Based Augmentative and Alternative Speech Communication Aid for Dysarthric Speakers. IEEE Transactions on Neural Systems and Rehabilitation Engineering 27:2, pages 187-197.
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Katharina Linse, Elisa Aust, Markus Joos & Andreas Hermann. (2018) Communication Matters—Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis. Frontiers in Neurology 9.
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Ammarah Y. Soofi, Vanina Dal Bello-Haas, Michelle E. Kho & Lori Letts. (2017) The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis. Quality of Life Research 27:4, pages 845-856.
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Shaun K. Kane & Meredith Ringel Morris. (2017) Let's Talk About X. Let's Talk About X.
Kiley Sobel, Alexander Fiannaca, Jon Campbell, Harish Kulkarni, Ann Paradiso, Ed Cutrell & Meredith Ringel Morris. (2017) Exploring the Design Space of AAC Awareness Displays. Exploring the Design Space of AAC Awareness Displays.
Shaun K. Kane, Meredith Ringel Morris, Ann Paradiso & Jon Campbell. (2017) "At times avuncular and cantankerous, with the reflexes of a mongoose". "At times avuncular and cantankerous, with the reflexes of a mongoose".
Alexander Fiannaca, Ann Paradiso, Mira Shah & Meredith Ringel Morris. (2017) AACrobat. AACrobat.
Ana Londral, Anabela Pinto, Susana Pinto, Luis Azevedo & Mamede De Carvalho. (2015) Quality of life in amyotrophic lateral sclerosis patients and caregivers: Impact of assistive communication from early stages. Muscle & Nerve 52:6, pages 933-941.
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Kathy L. Look Howery. 2015. Efficacy of Assistive Technology Interventions. Efficacy of Assistive Technology Interventions 79 109 .
Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2014) Understanding psycho-social processes underpinning engagement with services in motor neurone disease: A qualitative study. Palliative Medicine 28:4, pages 318-325.
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M. Babu & V. Dhilip Kumar. (2014) Notice of Violation of IEEE Publication Principles: A voice-input voice-output communication assists in favor of people with harsh verbal communication destruction. Notice of Violation of IEEE Publication Principles: A voice-input voice-output communication assists in favor of people with harsh verbal communication destruction.
Martine Smith & Janice Murray. 2014. Assistive Technologies. Assistive Technologies 991 1004 .
Murat Akcakaya, Betts Peters, Mohammad Moghadamfalahi, Aimee R. Mooney, Umut Orhan, Barry Oken, Deniz Erdogmus & Melanie Fried-Oken. (2014) Noninvasive Brain–Computer Interfaces for Augmentative and Alternative Communication. IEEE Reviews in Biomedical Engineering 7, pages 31-49.
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Sarah Creer, Stuart Cunningham, Phil Green & Junichi Yamagishi. (2013) Building personalised synthetic voices for individuals with severe speech impairment. Computer Speech & Language 27:6, pages 1178-1193.
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Simon Judge & Gillian Townend. (2013) Perceptions of the design of voice output communication aids. International Journal of Language & Communication Disorders 48:4, pages 366-381.
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Laura J. Ball & Joanne Lasker. (2013) Teaching Partners to Support Communication for Adults with Acquired Communication Impairment. Perspectives on Augmentative and Alternative Communication 22:1, pages 4-15.
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Mark S. Hawley, Stuart P. Cunningham, Phil D. Green, Pam Enderby, Rebecca Palmer, Siddharth Sehgal & Peter O'Neill. (2013) A Voice-Input Voice-Output Communication Aid for People With Severe Speech Impairment. IEEE Transactions on Neural Systems and Rehabilitation Engineering 21:1, pages 23-31.
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Martine Smith & Janice Murray. 2011. Handbook of Research on Personal Autonomy Technologies and Disability Informatics. Handbook of Research on Personal Autonomy Technologies and Disability Informatics 46 59 .
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Rebecca Palmer, Pam Enderby & Mark Hawley. (2010) A voice input voice output communication aid: what do users and therapists require?. Journal of Assistive Technologies 4:2, pages 4-14.
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Steven E. Stern. (2008) Computer-Synthesized Speech and Perceptions of the Social Influence of Disabled Users. Journal of Language and Social Psychology 27:3, pages 254-265.
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Peter Kühnlein, Hans-Jürgen Gdynia, Anne-Dorte Sperfeld, Beate Lindner-Pfleghar, Albert Christian Ludolph, Mario Prosiegel & Axel Riecker. (2008) Diagnosis and treatment of bulbar symptoms in amyotrophic lateral sclerosis. Nature Clinical Practice Neurology 4:7, pages 366-374.
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