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Original Article

The Loneliness Experiences of Young Adults with Cerebral Palsy who use Alternative and Augmentative Communication

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Pages 154-164 | Published online: 09 Sep 2009

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Read on this site (24)

Wansiya Kamonsitichai & Howard Goldstein. (2023) Speech-language pathologists’ perceptions of augmentative and alternative communication in Thailand. Augmentative and Alternative Communication 39:4, pages 230-240.
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Lauren E. MacLellan, Cara E. Stepp, Susan K. Fager, Michelle Mentis, Alyssa R. Boucher, Defne Abur & Gabriel J. Cler. (2023) Evaluating Camera Mouse as a computer access system for augmentative and alternative communication in cerebral palsy: a case study. Assistive Technology 0:0, pages 1-7.
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Erin Beneteau, Heather Feldner & Wanda Pratt. (2023) “I miss work:” employment experiences and attitudes of adults with acquired disabilities who use assistive technologies. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-10.
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Zoë Charlotte Clarke, Simon Judge, Kate Fryer, Stuart Cunningham, Jonathan Toogood & Mark S. Hawley. (2023) A qualitative study exploring the effect of communicating with partially intelligible speech. Augmentative and Alternative Communication 39:2, pages 110-122.
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Shakila Dada, Kerstin Tonsing & Juliet Goldbart. (2022) Friendship Experiences of Young Adults Who Use Augmentative and Alternative Communication. International Journal of Disability, Development and Education 69:3, pages 951-975.
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Jamie H. Azios, Katie A. Strong, Brent Archer, Natalie F. Douglas, Nina Simmons-Mackie & Linda Worrall. (2022) Friendship matters: a research agenda for aphasia. Aphasiology 36:3, pages 317-336.
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Susan Taylor, Erin Wilson, Kevin Murfitt & Susan Balandin. (2021) Communication access in the retail environment for people with complex communication needs. Disability and Rehabilitation 43:22, pages 3189-3198.
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Clara Wepener, Ensa Johnson & Juan Bornman. (2021) Text messaging “Helps Me to Chat”: exploring the interactional aspects of text messaging using mobile phones for youth with complex communication needs. Augmentative and Alternative Communication 37:2, pages 75-86.
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Jennifer M. Seale, Ann M. Bisantz & Jeff Higginbotham. (2020) Interaction symmetry: Assessing augmented speaker and oral speaker performances across four tasks. Augmentative and Alternative Communication 36:2, pages 82-94.
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Eliada Pampoulou. (2019) Speech and language therapists’ views about AAC system acceptance by people with acquired communication disorders. Disability and Rehabilitation: Assistive Technology 14:5, pages 471-478.
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Michelle C. S. Therrien. (2019) Perspectives and experiences of adults who use AAC on making and keeping friends. Augmentative and Alternative Communication 35:3, pages 205-216.
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Jacquie Ripat, Michèle Verdonck, Carly Gacek & Shelly McNicol. (2019) A qualitative metasynthesis of the meaning of speech-generating devices for people with complex communication needs. Augmentative and Alternative Communication 35:2, pages 69-79.
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Margret Buchholz, Ulrika Ferm & Kristina Holmgren. (2018) “That is how I speak nowadays” – experiences of remote communication among persons with communicative and cognitive disabilities. Disability and Rehabilitation 40:12, pages 1468-1479.
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Beata Batorowicz, Gillian King, Freda Vane, Madhu Pinto & Parimala Raghavendra. (2017) Exploring validation of a graphic symbol questionnaire to measure participation experiences of youth in activity settings. Augmentative and Alternative Communication 33:2, pages 97-109.
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Elizabeth K. Hanson, Emily Goldhammer & Tanya Bethard. (2016) Telephone talk: effects of two access methods on phone call success. Augmentative and Alternative Communication 32:3, pages 219-226.
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Michelle C.S. Therrien, Janice Light & Lauramarie Pope. (2016) Systematic Review of the Effects of Interventions to Promote Peer Interactions for Children who use Aided AAC. Augmentative and Alternative Communication 32:2, pages 81-93.
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Amanda Hynan, Juliet Goldbart & Janice Murray. (2015) A grounded theory of Internet and social media use by young people who use augmentative and alternative communication (AAC). Disability and Rehabilitation 37:17, pages 1559-1575.
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Bronwyn Hemsley, Stuart Palmer & Susan Balandin. (2014) Tweet reach: A research protocol for using Twitter to increase information exchange in people with communication disabilities. Developmental Neurorehabilitation 17:2, pages 84-89.
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David McNaughton, Diane Bryen, Sarah Blackstone, Michael Williams & Pamela Kennedy. (2012) Young Adults with Complex Communication Needs: Research and Development in AAC for a “Diverse” Population. Assistive Technology 24:1, pages 45-53.
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Angela Dew, Susan Balandin & Gwynnyth Llewellyn. (2011) Using a Life Course Approach to Explore How the Use of AAC Impacts on Adult Sibling Relationships. Augmentative and Alternative Communication 27:4, pages 245-255.
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Stephen Von Tetzchner & Carmen Basil. (2011) Terminology and Notation in Written Representations of Conversations with Augmentative and Alternative Communication. Augmentative and Alternative Communication 27:3, pages 141-149.
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Susan Balandin. (2011) Participation by adults with lifelong disability: More than a trip to the bowling alley. International Journal of Speech-Language Pathology 13:3, pages 207-217.
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Articles from other publishers (33)

Cynde Katherine Josol, Marisa H. Fisher & Lindsay S. Athamanah. (2022) Perspectives of Adults without Disabilities on their Friendships with Individuals with Intellectual and Developmental Disabilities. Journal of Intellectual Disabilities 27:3, pages 613-632.
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Haifeng Zhao, Petra Karlsson, Darryl Chiu, Carter Sun, Omid Kavehei & Alistair McEwan. (2023) Wearable augmentative and alternative communication (wAAC): a novel solution for people with complex communication needs. Virtual Reality 27:3, pages 2441-2459.
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Michelle Therrien, Zach Rossetti & Jørn Østvik. (2023) Augmentative and Alternative Communication and Friendships: Considerations for Speech-Language Pathologists. Perspectives of the ASHA Special Interest Groups 8:1, pages 151-163.
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Beni Gómez-Zúñiga, Modesta Pousada & Manuel Armayones. (2023) Loneliness and disability: A systematic review of loneliness conceptualization and intervention strategies. Frontiers in Psychology 13.
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Imke Niediek. (2022) Time – Timing – Out of Time? Auswirkungen temporaler Herausforderungen auf die sozialen Beziehungen unterstützt kommunizierender Jugendlicher. Diskurs Kindheits- und Jugendforschung / Discourse. Journal of Childhood and Adolescence Research 17:3-2022, pages 281-295.
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Becky Crowe, Wendy Machalicek, Qi Wei, Christine Drew & Jay Ganz. (2021) Augmentative and Alternative Communication for Children with Intellectual and Developmental Disability: A Mega-Review of the Literature. Journal of Developmental and Physical Disabilities 34:1, pages 1-42.
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Erin Beneteau, Ann Paradiso & Wanda Pratt. (2022) Telehealth experiences of providers and patients who use augmentative and alternative communication. Journal of the American Medical Informatics Association 29:3, pages 481-488.
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Susan Taylor, Erin Wilson, Kevin Murfitt & Susan Balandin. (2020) Social Exclusion by Retailers of People with Complex Communication Needs. Journal of Developmental and Physical Disabilities 33:6, pages 909-930.
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Haifeng Zhao, Petra Karlsson, Omid Kavehei & Alistair McEwan. (2021) Augmentative and Alternative Communication with Eye-gaze Technology and Augmented Reality: Reflections from Engineers, People with Cerebral Palsy and Caregivers. Augmentative and Alternative Communication with Eye-gaze Technology and Augmented Reality: Reflections from Engineers, People with Cerebral Palsy and Caregivers.
Amy L. Donaldson, endever* corbin & Jamie McCoy. (2021) “Everyone Deserves AAC”: Preliminary Study of the Experiences of Speaking Autistic Adults Who Use Augmentative and Alternative Communication. Perspectives of the ASHA Special Interest Groups 6:2, pages 315-326.
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Armenuhi Avagyan, Hasmik Mkrtchyan, Fatemeh Alsadat Shafa, Joan Alexandra Mathew & Tigran Petrosyan. (2021) Effectiveness and Determinant Variables of Augmentative and Alternative Communication Interventions in Cerebral Palsy Patients with Communication Deficit: a Systematic Review. CoDAS 33:5.
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Jill E. Senner. 2021. Handbook of Pragmatic Language Disorders. Handbook of Pragmatic Language Disorders 671 689 .
Ingo Bosse, Gregor Renner & Leevke Wilkens. (2020) Social Media and Internet Use Patterns by Adolescents With Complex Communication Needs. Language, Speech, and Hearing Services in Schools 51:4, pages 1024-1036.
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Erin Beneteau. (2020) Who Are You Asking?: Qualitative Methods for Involving AAC Users as Primary Research Participants. Who Are You Asking?: Qualitative Methods for Involving AAC Users as Primary Research Participants.
Margo N. Orlin & Susan Tachau. 2020. Cerebral Palsy. Cerebral Palsy 2543 2562 .
M. Caligari, M. Godi, M. Giardini & R. Colombo. (2019) Development of a new high sensitivity mechanical switch for augmentative and alternative communication access in people with amyotrophic lateral sclerosis. Journal of NeuroEngineering and Rehabilitation 16:1.
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DongGeon Lee, SeungJun Lee, Kuem Ju Lee & GyuChang Lee. (2019) Biological surface electromyographic switch and necklace-type button switch control as an augmentative and alternative communication input device: a feasibility study. Australasian Physical & Engineering Sciences in Medicine 42:3, pages 839-851.
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Margo N. Orlin & Susan Tachau. 2018. Cerebral Palsy. Cerebral Palsy 1 20 .
Mathew P. Manoj & M. K. Suja. (2018) Correction to: Sexuality and Reproductive Health in Young People with Disability: A Systematic Review of Issues and Challenges. Sexuality and Disability 36:2, pages 207-216.
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Mary Jo Cooley Hidecker, Jaime Slaughter, Purni Abeysekara, Nhan T. Ho, Nancy Dodge, Edward A. Hurvitz, Marilyn Seif Workinger, Ray D. Kent, Peter Rosenbaum, Madeleine Lenski, Suzette Báez Vanderbeek, Steven DeRoos & Nigel Paneth. (2018) Early Predictors and Correlates of Communication Function in Children With Cerebral Palsy. Journal of Child Neurology 33:4, pages 275-285.
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Mathew P. Manoj & M. K. Suja. (2017) Sexuality and Reproductive Health in Young People with Disability: A Systematic Review of Issues and Challenges. Sexuality and Disability 35:4, pages 507-516.
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Darryl Sellwood, Pammi Raghavendra & Paul Jewell. (2017) Sexuality and Intimacy for People with Congenital Physical and Communication Disabilities: Barriers and Facilitators: A Systematic Review. Sexuality and Disability 35:2, pages 227-244.
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Martine M. Smith. (2014) Adolescence and AAC. Communication Disorders Quarterly 36:2, pages 112-118.
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Viktoria Grindle, Syed Kamran Haider, John Magee & Marten van Dijk. 2015. Universal Access in Human-Computer Interaction. Access to the Human Environment and Culture. Universal Access in Human-Computer Interaction. Access to the Human Environment and Culture 182 191 .
Amanda Hynan, Janice Murray & Juliet Goldbart. (2014) ‘Happy and excited’: Perceptions of using digital technology and social media by young people who use augmentative and alternative communication. Child Language Teaching and Therapy 30:2, pages 175-186.
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Emma Grace, Parimala Raghavendra, Lareen Newman, Denise Wood & Tim Connell. (2014) Learning to use the Internet and online social media: What is the effectiveness of home-based intervention for youth with complex communication needs?. Child Language Teaching and Therapy 30:2, pages 141-157.
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Silvia RP Malheiros, Carlos B de Mello Monteiro, Talita Dias da Silva, Camila Torriani-Pasin, Michele SR de Andrade, Vitor E Valenti, Rodrigo Daminello Raimundo, Anelise Roosch, Luciano MR Rodrigues, Katia Valeria Manhabusque, Regina Céliac Trindade Camargo, Jefferson Drezzet, Virginia Helena Quadrado & Luiz Carlos de Abreu. (2013) Functional capacity and assistance from the caregiver during daily activities in Brazilian children with cerebral palsy. International Archives of Medicine 6:1, pages 1.
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John J. Magee & Margrit Betke. 2013. Universal Access in Human-Computer Interaction. User and Context Diversity. Universal Access in Human-Computer Interaction. User and Context Diversity 684 693 .
Susan Baxter, Pam Enderby, Philippa Evans & Simon Judge. (2011) Barriers and facilitators to the use of high‐technology augmentative and alternative communication devices: a systematic review and qualitative synthesis. International Journal of Language & Communication Disorders 47:2, pages 115-129.
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Frances Layman, Cathryn Crowle & John Ravenscroft. 2012. Computers Helping People with Special Needs. Computers Helping People with Special Needs 353 360 .
Christine Sherlock. (2011) Becoming ready to use a voice output communication aid. Journal of Assistive Technologies 5:4, pages 233-241.
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GAYATRI KEMBHAVI, JOHANNA DARRAH, KELSEY PAYNE & DEVON PLESUK. (2011) Adults with a diagnosis of cerebral palsy: a mapping review of long-term outcomes. Developmental Medicine & Child Neurology 53:7, pages 610-614.
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Pamela Kennedy. (2010) Navigating Through Transition With Individuals With Speech Disabilities. Perspectives on Augmentative and Alternative Communication 19:2, pages 44-50.
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