Citations (21)
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Nicola Glennie, Fiona M. Harris & Emma F. France. (2023) Perceptions and experiences of control among people living with motor neurone disease: a systematic review and thematic synthesis. Disability and Rehabilitation 45:16, pages 2554-2566.
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Eleftherios Anestis, Fiona J. R. Eccles, Ian Fletcher, Sofia Triliva & Jane Simpson. (2022) Healthcare professionals’ involvement in breaking bad news to newly diagnosed patients with motor neurodegenerative conditions: a qualitative study. Disability and Rehabilitation 44:25, pages 7877-7890.
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Hikari Ando, Rosanna Cousins & Carolyn A. Young. (2022) Flexibility to manage and enhance quality of life among people with motor neurone disease. Disability and Rehabilitation 44:12, pages 2752-2762.
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Nicolò Zarotti, Emily Mayberry, Noora Ovaska-Stafford, Fiona Eccles & Jane Simpson. (2021) Psychological interventions for people with motor neuron disease: a scoping review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 1-11.
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Anna Carin Aho, Sally Hultsjö & Katarina Hjelm. (2019) Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair: an interview study. Disability and Rehabilitation 41:19, pages 2289-2298.
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David Oliver, Aleksandar Radunovic, Alexander Allen & Christopher McDermott. (2017) The development of the UK National Institute of Health and Care Excellence evidence-based clinical guidelines on motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:5-6, pages 313-323.
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. (2015) Theme 7 Quality of Life and Palliative Care. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:sup1, pages 136-145.
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Articles from other publishers (13)
Julie Derbyshire, Joanne Atkinson, Yvonne Dunn & Julie-Anne Lowe. (2023) Living well: exploring experiences of carers of people with motor neurone disease attending an early-access support group. International Journal of Therapy and Rehabilitation 30:7, pages 1-11.
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Carolyn E. Schwartz, Gudrun Rohde, Elijah Biletch, Richard B. B. Stuart, I.-Chan Huang, Joseph Lipscomb, Roland B. Stark & Richard L. Skolasky. (2021) If it’s information, it’s not “bias”: a scoping review and proposed nomenclature for future response-shift research. Quality of Life Research 31:8, pages 2247-2257.
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Helen Brewah, Kevin Borrett, Nuno Tavares & Nikki Jarrett. (2022) Perceptions of people with motor neurone disease, families and HSCPs: a literature review. British Journal of Community Nursing 27:4, pages 188-198.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Meng‐Mei Yuan, Xi Peng, Tie‐Ying Zeng, Mei‐Li‐Yang Wu, Ye Chen, Ke Zhang & Xue‐Jun Wang. (2021) The illness experience for people with amyotrophic lateral sclerosis: A qualitative study. Journal of Clinical Nursing 30:9-10, pages 1455-1463.
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Esther Hobson, Wendy Baird, Mike Bradburn, Cindy Cooper, Susan Mawson, Ann Quinn, Pamela J Shaw, Theresa Walsh & Christopher J McDermott. (2019) Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre. BMJ Open 9:10, pages e028526.
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Sarah Remm, Elizabeth Halcomb & Moira Stephens. (2019) Experiences of being diagnosed with motor neuron disease: “I just want to know”. Collegian 26:5, pages 550-555.
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Hikari Ando, Rosanna Cousins & Carolyn A Young. (2019) Exploring and Addressing ‘Concerns’ for Significant Others to Extend the Understanding of Quality of Life With Amyotrophic Lateral Sclerosis: A Qualitative Study. Journal of Central Nervous System Disease 11, pages 117957351985936.
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Sarah Hargreaves, Peter A Bath, Suzanne Duffin & Julie Ellis. (2018) Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis). Journal of Medical Internet Research 20:6, pages e222.
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Margaret O'Connor, Samar M. Aoun & Lauren J. Breen. (2018) Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease-“Our life has changed forever”. Health & Social Care in the Community 26:3, pages e415-e421.
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Samar M. Aoun, Mary R. O'Brien, Lauren J. Breen & Margaret O'Connor. (2018) ‘The shock of diagnosis’: Qualitative accounts from people with Motor Neurone Disease reflecting the need for more person-centred care. Journal of the Neurological Sciences 387, pages 80-84.
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Emma Warren, Fiona Eccles, Vicky Travers & Jane Simpson. (2016) The experience of being diagnosed with Parkinson's disease. British Journal of Neuroscience Nursing 12:6, pages 288-296.
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Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
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