781
Views
72
CrossRef citations to date
0
Altmetric
Research Papers

The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders

, , , , , & show all
Pages 607-618 | Accepted 01 May 2008, Published online: 07 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (15)

L. Miller, C. Imms, A. Cross, K. Pozniak, B. O’Connor, R. Martens, V. Cavalieros, R. Babic, M. Novak-Pavlic, M. Rodrigues, A. Balram, D. Hughes, J. Ziviani & P. Rosenbaum. (2023) Impact of “early intervention” parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study. Disability and Rehabilitation 45:23, pages 3900-3911.
Read now
Phillip Antony Harniess, Anna Purna Basu, Jeff Bezemer & Deanna Gibbs. (2023) How do parents frame their engagement experience in early intervention? A grounded theory study. Disability and Rehabilitation 0:0, pages 1-10.
Read now
David W. Rothwell, Lucyna M. Lach, Dafna E. Kohen, Leanne C. Findlay & Rubab G. Arim. (2022) Income trajectories of families raising a child with a neurodisability. Disability and Rehabilitation 44:10, pages 1923-1932.
Read now
Angela M. Filipe, Aline Bogossian, Rosslynn Zulla, David Nicholas & Lucyna M. Lach. (2021) Developing a Canadian framework for social determinants of health and well-being among children with neurodisabilities and their families: an ecosocial perspective. Disability and Rehabilitation 43:26, pages 3856-3867.
Read now
Jeffrey McCrossin. (2021) Justifying a dedicated role for family therapy in pediatric neurorehabilitation. Journal of Family Social Work 24:2, pages 157-174.
Read now
Ruud Wong Chung, Agnes Willemen, Jeanine Voorman, Marjolijn Ketelaar, Jules Becher, Johannes Verheijden & Carlo Schuengel. (2020) Managing oneself or managing together? Parents’ perspectives on chronic condition self-management in Dutch pediatric rehabilitation services. Disability and Rehabilitation 42:23, pages 3348-3358.
Read now
Marilyn Ballantyne, Stephanie Bernardo, Aubrey Sozer, Taryn Orava, Amy C McPherson, Paige Church & Darcy Fehlings. (2019) A whole new world: a qualitative investigation of parents’ experiences in transitioning their preterm child with cerebral palsy to developmental/rehabilitation services. Developmental Neurorehabilitation 22:2, pages 87-97.
Read now
Michelle Phoenix & Peter Rosenbaum. (2019) Presenting the model of risk, disability and hard-to-reach families to inform early intervention services. Disability and Rehabilitation 41:2, pages 244-249.
Read now
Maria Cusinato, Vincenzo Calvo, Gianni Bisogno, Elisabetta Viscardi, Marta Pillon, Enrico Opocher, Giuseppe Basso & Maria Montanaro. (2017) Attachment orientations and psychological adjustment of parents of children with cancer: A matched-group comparison. Journal of Psychosocial Oncology 35:6, pages 726-740.
Read now
Olivia R Orta, Clarita Barbosa, Juan Carlos Velez, Bizu Gelaye, Xiaoli Chen, Lee Stoner & Michelle A Williams. (2016) Associations of self-reported and objectively measured sleep disturbances with depression among primary caregivers of children with disabilities. Nature and Science of Sleep 8, pages 181-188.
Read now
Rubab G. Arim, Dafna E. Kohen, Rochelle E. Garner, Lucyna M. Lach, Jamie C. Brehaut, Michael J. MacKenzie & Peter L. Rosenbaum. (2015) Psychosocial functioning in children with neurodevelopmental disorders and externalizing behavior problems. Disability and Rehabilitation 37:4, pages 345-354.
Read now
Sheila Jennings, Nazilla Khanlou & Chang Su. (2014) Public health policy and social support for immigrant mothers raising disabled children in Canada. Disability & Society 29:10, pages 1645-1657.
Read now
Koa Whittingham, Diana Wee, Matthew R. Sanders & Roslyn Boyd. (2013) Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences. Disability and Rehabilitation 35:17, pages 1447-1452.
Read now
R. G. Arim, R. E. Garner, J. C. Brehaut, L. M. Lach, M. J. MacKenzie, P. L. Rosenbaum & D. E. Kohen. (2012) Contextual influences of parenting behaviors for children with neurodevelopmental disorders: results from a Canadian national survey. Disability and Rehabilitation 34:26, pages 2222-2233.
Read now
Annette Majnemer. (2012) Vigilance to Behavioral Problems Needed for Children with Developmental Disability. Physical & Occupational Therapy In Pediatrics 32:1, pages 1-3.
Read now

Articles from other publishers (57)

Telmo Santos, Caren Steinway, Ariana Mastrogiannis, Jack Chen, Jason Woodward, Ilka Riddle, Brittany Spicer, John Berens, Thomas Davis, Michelle Cornacchia, Charmaine Wright, Lee A. Lindquist & Sophia Jan. (2023) Caregiver support, burden, and long‐term planning among caregivers of individuals with intellectual and developmental disabilities: A cross‐sectional study . Journal of Applied Research in Intellectual Disabilities 36:6, pages 1229-1240.
Crossref
Monika Novak-Pavlic, Peter Rosenbaum & Briano Di Rezze. (2023) Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities. International Journal of Environmental Research and Public Health 20:21, pages 6983.
Crossref
Xiao Yang Jia, Pantelis Andreou, Cary Brown, Evelyn Constantin, Roger Godbout, Ana Hanlon-Dearman, Osman Ipsiroglu, Graham Reid, Sarah Shea, Isabel M Smith, Jennifer D Zwicker, Shelly K Weiss & Penny Corkum. (2023) An eHealth Program for Insomnia in Children With Neurodevelopmental Disorders (Better Nights, Better Days): Protocol for an Economic Evaluation of a Randomized Controlled Trial. JMIR Research Protocols 12, pages e46735.
Crossref
Katey Hayes, Haley C. Adams, Mackenzie Robeson & Kimberly R. Zlomke. (2023) Bouncing Back: Resilience as a Protective Factor for the Impact of Child Problem Behavior on Caregiver Depressive Cognitions Among Youth with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders.
Crossref
Abena K. Aduful, Faye Boamah-Mensah, Mame Yaa Nyarko, Margaret L. Neizer, Yvonne N. Brew, Lovia A. Williams, Benedict N. L. Calys-Tagoe, Henry K. M. Ackun & Edem M. A. Tette. (2023) Family Needs Assessment of Patients with Cerebral Palsy Attending Two Hospitals in Accra, Ghana. Children 10:8, pages 1313.
Crossref
Andy Torres, Francis Morales, Kim L. Nguyen-Finn & Alfonso Mercado. (2022) Co-occurrence of Neurodevelopmental Disorders Predict Caretaker Mental Health in a Latinx Sample. The Journal of Behavioral Health Services & Research 50:2, pages 181-193.
Crossref
Katey N. Hayes, Kristina G. Rossetti & Kimberly Zlomke. (2022) Community support, family resilience and mental health among caregivers of youth with autism spectrum disorder. Child: Care, Health and Development 49:1, pages 130-136.
Crossref
Jorge Emiro Restrepo, Tatiana Castañeda-Quirama, Mónica Gómez-Botero & David Molina-González. (2023) Salud mental de cuidadores de niños con trastornos del neurodesarrollo durante la pandemia. Neurología Argentina 15:1, pages 28-36.
Crossref
Fabrizia Festante, Camilla Antonelli, Sara Mazzotti & Andrea Guzzetta. 2023. Family-Centered Care in Childhood Disability. Family-Centered Care in Childhood Disability 149 192 .
Anton R. Miller, Emily Gardiner & Peter L. Rosenbaum. 2023. Neurodevelopmental Pediatrics. Neurodevelopmental Pediatrics 685 695 .
Md. Jakaria Habib, Md. Ismail Hossain, Iqramul Haq, Md. Injamul Haq Methun & Md. Saifullah Sakib. (2022) Prevalence of Child Functional Difficulties and Its Associated Factors in Bangladesh: An Application of Count Regression Model. BioMed Research International 2022, pages 1-9.
Crossref
Caitlin Salvino, Connor Spencer, Angela M. Filipe & Lucyna M. Lach. (2022) Mapping of Financial Support Programs for Children With Neurodisabilities Across Canada: Barriers and Discrepancies Within a Patchwork System. Journal of Disability Policy Studies 33:3, pages 168-177.
Crossref
Muharrem Ak, Zekeriya Akturk, Kristina Bowyer, Laurence Mignon, Sasidhar Pasupuleti, Daniel G. Glaze, Bernhard Suter & Davut Pehlivan. (2022) Assessing the Burden on Caregivers of MECP2 Duplication Syndrome. Pediatric Neurology 133, pages 1-8.
Crossref
Monika Novak-Pavlic, Peter Rosenbaum, Luciana Gazzi Macedo, Briano Di Rezze, Joshua Yong, Atefeh Noori & Debra Hughes. (2022) Effectiveness of Interventions to Promote Physical, Psychological, and Socioeconomic Well-being Outcomes of Parents of Children With Neurodevelopmental Disabilities: Protocol for a Systematic Review. JMIR Research Protocols 11:7, pages e38686.
Crossref
Laura Miller, Grace Nickson, Kinga Pozniak, Debra Khan, Christine Imms, Jenny Ziviani, Andrea Cross, Rachel Martens, Vicki Cavalieros & Peter Rosenbaum. (2022) ENabling VISions and Growing Expectations (ENVISAGE): Parent reviewers’ perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability. Research in Developmental Disabilities 121, pages 104150.
Crossref
Ghorban Hemati Alamdarloo & Farzad Majidi. (2021) Stress in mothers of children with neurodevelopmental disorders. Advances in Autism 8:1, pages 46-59.
Crossref
Peter L. Rosenbaum & Monika Novak-Pavlic. (2021) Parenting a Child with a Neurodevelopmental Disorder. Current Developmental Disorders Reports 8:4, pages 212-218.
Crossref
Lorna K Fraser, Fliss EM Murtagh, Jan Aldridge, Trevor Sheldon, Simon Gilbody & Catherine Hewitt. (2021) Health of mothers of children with a life-limiting condition: a comparative cohort study. Archives of Disease in Childhood 106:10, pages 987-993.
Crossref
Annette Majnemer, Patrick J. McGrath, Jennifer Baumbusch, Chantal Camden, Barbara Fallon, Yona Lunsky, Steven P. Miller, Genevieve Sansone, Tim Stainton, John Sumarah, Donna Thomson & Jennifer Zwicker. (2021) Time to be counted: COVID-19 and intellectual and developmental disabilities—an RSC Policy Briefing. FACETS 6, pages 1337-1389.
Crossref
Sandra M. Chafouleas, Emily A. Iovino & Taylor A. Koriakin. (2020) Caregivers of Children with Developmental Disabilities: Exploring Perceptions of Health-Promoting Self-Care. Journal of Developmental and Physical Disabilities 32:6, pages 893-913.
Crossref
Emily Gardiner, Anton R. Miller & Lucyna M. Lach. (2020) Service adequacy and the relation between child behavior problems and negative family impact reported by primary caregivers of children with neurodevelopmental conditions. Research in Developmental Disabilities 104, pages 103712.
Crossref
Jennifer Fortune, Paul Murphy, Nabil Merchant, Claire Kerr, Thilo Kroll, Aisling Walsh, Meriel Norris, Grace Lavelle & Jennifer Ryan. (2020) Transition from child-centred to adult-oriented healthcare systems for young people with neurodisability: a scoping review protocol. HRB Open Research 3, pages 61.
Crossref
Kelli A. Sanderson, Jennifer L. Bumble & Emily M. Kuntz. 2020. 51 105 .
Sandra Marquis, Michael V. Hayes & Kimberlyn McGrail. (2019) Factors that May Affect the Health of Siblings of Children Who Have an Intellectual/Developmental Disability. Journal of Policy and Practice in Intellectual Disabilities 16:4, pages 273-286.
Crossref
Louise Irwin, Ceit Jesmont & Anna Basu. (2019) A systematic review and meta-analysis of the effectiveness of interventions to improve psychological wellbeing in the parents of children with cerebral palsy. Research in Developmental Disabilities 95, pages 103511.
Crossref
D. W. Rothwell, G. Gariépy, F. J. Elgar & L. M. Lach. (2019) Trajectories of poverty and economic hardship among American families supporting a child with a neurodisability. Journal of Intellectual Disability Research 63:10, pages 1273-1284.
Crossref
Sandra Marquis, Michael V. Hayes & Kimberlyn McGrail. (2019) Factors Affecting the Health of Caregivers of Children Who Have an Intellectual/Developmental Disability. Journal of Policy and Practice in Intellectual Disabilities 16:3, pages 201-216.
Crossref
Stella Arakelyan, Donald Maciver, Robert Rush, Anne O'hare & Kirsty Forsyth. (2019) Family factors associated with participation of children with disabilities: a systematic review. Developmental Medicine & Child Neurology 61:5, pages 514-522.
Crossref
Jamie C. Brehaut, Anne Guèvremont, Rubab G. Arim, Rochelle E. Garner, Anton R. Miller, Kimberlyn M. McGrail, Marni Brownell, Lucy M. Lach, Peter L. Rosenbaum & Dafna E. Kohen. (2019) Changes in Caregiver Health in the Years Surrounding the Birth of a Child With Health Problems. Medical Care 57:5, pages 369-376.
Crossref
Marie-Christine Rousseau, Karine Baumstarck, Sherezad Khaldi-Cherif, Catherine Brisse, Agnès Felce, Benjamin Moheng, Anderson Loundou, Thierry Billette de Villemeur & Pascal Auquier. (2019) Impact of severe polyhandicap on parents’ quality of life: A large French cross-sectional study. PLOS ONE 14:2, pages e0211640.
Crossref
Aleksandra J. Borek, Bel McDonald, Mary Fredlund, Gretchen Bjornstad, Stuart Logan & Christopher Morris. (2018) Healthy Parent Carers programme: development and feasibility of a novel group-based health-promotion intervention. BMC Public Health 18:1.
Crossref
Eyal CohenJay G. BerryLee Sanders, Edward L. Schor & Paul H. Wise. (2018) Status Complexicus? The Emergence of Pediatric Complex Care. Pediatrics 141:Supplement_3, pages S202-S211.
Crossref
A. M. Ritzema, L. M. Lach, D. Nicholas & I. E. Sladeczek. (2018) A model of well-being for children with neurodevelopmental disorders: Parental perceptions of functioning, services, and support. Child: Care, Health and Development 44:2, pages 240-248.
Crossref
Leanne Etheridge & Hannah Senior. (2016) ‘It’s a matter of your personality more than anything else’. Journal of Intellectual Disabilities 21:1, pages 40-52.
Crossref
Anton Rodney Miller & Peter Rosenbaum. (2016) Perspectives on “Disease” and “Disability” in Child Health: The Case of Childhood Neurodisability. Frontiers in Public Health 4.
Crossref
Francesco Craig, Francesca Felicia Operto, Andrea De Giacomo, Lucia Margari, Alessandro Frolli, Massimiliano Conson, Sara Ivagnes, Marianna Monaco & Francesco Margari. (2016) Parenting stress among parents of children with Neurodevelopmental Disorders. Psychiatry Research 242, pages 121-129.
Crossref
Koa Whittingham, Matthew R. Sanders, Lynne McKinlay & Roslyn N. Boyd. (2016) Parenting Intervention Combined With Acceptance and Commitment Therapy: A Trial With Families of Children With Cerebral Palsy. Journal of Pediatric Psychology 41:5, pages 531-542.
Crossref
A. M. Ritzema, L. M. Lach, P. Rosenbaum & D. Nicholas. (2016) About my Child: measuring ?Complexity? in neurodisability. Evidence of reliability and validity. Child: Care, Health and Development 42:3, pages 402-409.
Crossref
Linda Lowes, Teresa Sha Clark & Garey Noritz. (2016) Factors associated with caregiver experience in families with a child with cerebral palsy. Journal of Pediatric Rehabilitation Medicine 9:1, pages 65-72.
Crossref
Lise L. Olsen, Sami Kruse, Anton R. Miller & Mariana Brussoni. (2016) Safety-Related Concerns of Parents for Children with Disabilities and Chronic Conditions. Journal of Developmental & Behavioral Pediatrics 37:2, pages 121-131.
Crossref
Koa Whittingham. (2013) Parents of Children with Disabilities, Mindfulness and Acceptance: a Review and a Call for Research. Mindfulness 5:6, pages 704-709.
Crossref
Alicia H. B. Moss, Jocelynne E. Gordon & Annie O’Connell. (2014) Impact of Sleepwise: An Intervention for Youth with Developmental Disabilities and Sleep Disturbance. Journal of Autism and Developmental Disorders 44:7, pages 1695-1707.
Crossref
Meghan M. Burke & Robert M. Hodapp. (2014) Relating Stress of Mothers of Children With Developmental Disabilities to Family–School Partnerships. Intellectual and Developmental Disabilities 52:1, pages 13-23.
Crossref
Francesca S. Cardwell, Susan J. Elliott & Eric J. Crighton. (2014) Protecting Our Children: A Scan of Canadian and International Children's Environmental Health Best Practices. Children, Youth and Environments 24:3, pages 102.
Crossref
Sabrin Rizk, Kris Pizur-Barnekow & Amy R. Darragh. 2014. Comprehensive Guide to Autism. Comprehensive Guide to Autism 223 246 .
K. Whittingham, D. Wee, M. R. Sanders & R. Boyd. (2012) Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy. Child: Care, Health and Development 39:3, pages 366-373.
Crossref
R. E. Garner, R. G. Arim, D. E. Kohen, L. M. Lach, M. J. MacKenzie, J. C. Brehaut & P. L. Rosenbaum. (2011) Parenting children with neurodevelopmental disorders and/or behaviour problems. Child: Care, Health and Development 39:3, pages 412-421.
Crossref
. (2013) Current World Literature. Current Opinion in Psychiatry 26:3, pages 295-303.
Crossref
Raja Mukherjee, Elizabeth Wray, Matthew Commers, Sheila Hollins & Leopold Curfs. (2013) The impact of raising a child with FASD upon carers: findings from a mixed methodology study in the UK. Adoption & Fostering 37:1, pages 43-56.
Crossref
Eyal CohenJay G. Berry, Ximena CamachoGeoff AndersonWalter Wodchis & Astrid Guttmann. (2012) Patterns and Costs of Health Care Use of Children With Medical Complexity. Pediatrics 130:6, pages e1463-e1470.
Crossref
Emily Gardiner & Grace Iarocci. (2012) Unhappy (and happy) in their own way: A developmental psychopathology perspective on quality of life for families living with developmental disability with and without autism. Research in Developmental Disabilities 33:6, pages 2177-2192.
Crossref
Alyssa Newberry, Jean Kuo, Heidi Donovan, Barbara Given, Charles W. Given, Richard Schulz & Paula Sherwood. (2012) Identifying Family Members Who Are Likely to Perceive Benefits From Providing Care to a Person With a Primary Malignant Brain Tumor. Oncology Nursing Forum 39:3, pages E226-E232.
Crossref
Justin W. Peer & Stephen B. Hillman. (2012) The mediating impact of coping style on stress perception for parents of individuals with intellectual disabilities. Journal of Intellectual Disabilities 16:1, pages 45-59.
Crossref
Rubab G. Arim, Leanne C. Findlay & Dafna E. Kohen. (2012) Participation in Physical Activity for Children with Neurodevelopmental Disorders. International Journal of Pediatrics 2012, pages 1-9.
Crossref
Jamie C. BrehautRochelle E. GarnerAnton R. MillerLucyna M. LachAnne F. KlassenPeter L. RosenbaumDafna E. Kohen. (2011) Changes Over Time in the Health of Caregivers of Children With Health Problems: Growth-Curve Findings From a 10-Year Canadian Population-Based Study. American Journal of Public Health 101:12, pages 2308-2316.
Crossref
Saroj Saigal, Janet Pinelli, David L. Streiner, Michael Boyle & Barbara Stoskopf. (2010) Impact of Extreme Prematurity on Family Functioning and Maternal Health 20 Years Later. Pediatrics 126:1, pages e81-e88.
Crossref
Jamie C. BrehautDafna E. KohenRochelle E. GarnerAnton R. MillerLucyna M. LachAnne F. KlassenPeter L. Rosenbaum. (2009) Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based Study. American Journal of Public Health 99:7, pages 1254-1262.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.