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ORIGINAL RESEARCH

Effects of a Disease Management Program in Individuals with Alpha-1 Antitrypsin Deficiency

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Pages 31-40 | Published online: 02 Jul 2009

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Orlagh O’Shea, Saidhbhe Casey, Ciaran Giblin, Aoife Stephenson, Tomás P Carroll, Noel G McElvaney & Suzanne M McDonough. (2023) Physical Activity, Exercise Capacity and Sedentary Behavior in People with Alpha-1 Antitrypsin Deficiency: A Scoping Review. International Journal of Chronic Obstructive Pulmonary Disease 18, pages 1231-1250.
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Anita Pye, Sheeba Khan, Tony Whitehouse & Alice M Turner. (2021) Personalizing liver targeted treatments and transplantation for patients with alpha-1 antitrypsin deficiency. Expert Review of Precision Medicine and Drug Development 6:1, pages 65-78.
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Joanna Chorostowska-Wynimko, Miriam Barrecheguren, Ilaria Ferrarotti, Timm Greulich, Robert A Sandhaus & Michael Campos. (2020) New Patient-Centric Approaches to the Management of Alpha-1 Antitrypsin Deficiency. International Journal of Chronic Obstructive Pulmonary Disease 15, pages 345-355.
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Marinos Pericleous, Claire Kelly, Aftab Ala & Simon De Lusignan. (2018) The role of the chronic care model in promoting the management of the patient with rare liver disease. Expert Review of Gastroenterology & Hepatology 12:8, pages 829-841.
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Jorge E. Lascano & Michael A. Campos. (2017) The important role of primary care providers in the detection of alpha-1 antitrypsin deficiency. Postgraduate Medicine 129:8, pages 889-895.
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Ross G Edgar, Mitesh Patel, Susan Bayliss, Diana Crossley, Elizabeth Sapey & Alice M Turner. (2017) Treatment of lung disease in alpha-1 antitrypsin deficiency: a systematic review. International Journal of Chronic Obstructive Pulmonary Disease 12, pages 1295-1308.
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Kristen E. Holm, Soo Borson, Robert A. Sandhaus, Dee W. Ford, Charlie Strange, Russell P. Bowler, Barry J. Make & Frederick S. Wamboldt. (2013) Differences in Adjustment between Individuals with Alpha-1 Antitrypsin Deficiency (AATD)-Associated COPD and Non-AATD COPD. COPD: Journal of Chronic Obstructive Pulmonary Disease 10:2, pages 226-234.
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Articles from other publishers (24)

Radmila Choate, Kristen E Holm, Robert A Sandhaus, David M Mannino & Charlie Strange. (2023) Health-related Quality of Life in Alpha-1 Antitrypsin Deficiency-associated COPD. American Journal of Respiratory and Critical Care Medicine.
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Matteo Maule, Bianca Olivieri, Gabriella Guarnieri, Lucia De Franceschi, Nicola Martinelli, Rachele Vaia, Giuseppe Argentino, Andrea Vianello, Gianenrico Senna & Marco Caminati. (2023) Hidden Comorbidities in Asthma: A Perspective for a Personalized Approach. Journal of Clinical Medicine 12:6, pages 2294.
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Hanan Aboumatar, Emmanuel E. Garcia MoralesLeah R. JagerMohammad NaqibuddinSamuel KimJamia SaundersLee Bone, John LinnellMarjorie McBurney, Joseph Neiman, Margaret RileyNancy Robinson, Cynthia Rand & Robert Wise. (2022) Comparing Self-Management Programs with and without Peer Support among Patients with Chronic Obstructive Pulmonary Disease: A Clinical Trial. Annals of the American Thoracic Society 19:10, pages 1687-1696.
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Igor Barjaktarevic & Michael Campos. (2021) Management of lung disease in alpha-1 antitrypsin deficiency: what we do and what we do not know. Therapeutic Advances in Chronic Disease 12_suppl, pages 204062232110101.
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Jan Sieluk, Julia F. Slejko, Henry Silverman, Eleanor Perfetto & C. Daniel Mullins. (2020) Medical costs of Alpha-1 antitrypsin deficiency-associated COPD in the United States. Orphanet Journal of Rare Diseases 15:1.
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Juan-David Rueda, Jan Sieluk, Robert A. Sandhaus & C. Daniel Mullins. (2020) Limitations and Challenges of Conducting Budget Impact Analyses in Rare Diseases: A Case Study of Alpha-1 Antitrypsin Deficiency. Value in Health Regional Issues 23, pages 70-76.
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Hanan Aboumatar, Mohammad Naqibuddin, Joseph Neiman, Jamia Saunders, Samuel Kim, Hina Chaudhry, Emmanuel Garcia-Morales, Nancy Robinson, Marjorie McBurney, Leah Jager, Tokunbo Ajayi, Lee Bone, Suna Chung, Bernard Farrell, Hui Joo Jin, John Linnell, Marlene Pirfo, Cynthia Rand, Peggy Riley, Carmen Salvaterra, Kai Shea, Jorawar Singh & Robert Wise. (2020) Methodology and baseline characteristics of a randomized controlled trial testing a health care professional and peer-support program for patients with chronic obstructive pulmonary disease: The BREATHE2 study. Contemporary Clinical Trials 94, pages 106023.
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Mario Cazzola, Daiana Stolz, Paola Rogliani & Maria Gabriella Matera. (2020) α 1 -Antitrypsin deficiency and chronic respiratory disorders . European Respiratory Review 29:155, pages 190073.
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Jack Dummer, Claudia C. Dobler, Mark Holmes, Daniel Chambers, Ian A. Yang, Lianne Parkin, Sheree Smith, Peter Wark, Anouk Dev, Sandra Hodge, Eli Dabscheck, Julian Gooi, Sameh Samuel, Steven Knowles & Anne E. Holland. (2020) Diagnosis and treatment of lung disease associated with alpha one‐antitrypsin deficiency: A position statement from the Thoracic Society of Australia and New Zealand*. Respirology 25:3, pages 321-335.
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Judith A. Newell, Christine Donahue & D. Kyle Hogarth. (2019) An NP's guide to diagnosing and treating alpha-1 antitrypsin deficiency. The Nurse Practitioner 44:4, pages 13-21.
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Janet Fricker. (2018) Focussing on The Patient: Future Prospects in Alpha 1 Management. EMJ Respiratory, pages 38-46.
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Kristen E. Holm, David M. Mannino, Radmila Choate & Robert A. Sandhaus. (2018) Genotype is associated with smoking and other key health behaviors among individuals with alpha-1 antitrypsin deficiency-associated lung disease. Respiratory Medicine 143, pages 48-55.
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Huiqing Lin, Manyin Chen, Feng Tian, Jussi Tikkanen, Lei Ding, Hei Yu Andrew Cheung, Daisuke Nakajima, Zhe Wang, Andrea Mariscal, David Hwang, Marcelo Cypel, Shaf Keshavjee & Mingyao Liu. (2018) α 1 -Anti-trypsin improves function of porcine donor lungs during ex-vivo lung perfusion. The Journal of Heart and Lung Transplantation 37:5, pages 656-666.
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Michael A. Campos, Michael C. Runken, Angela M. Davis, Michael P. Johnson, Glenda A. Stone & Ami R. Buikema. (2018) Impact of a Health Management Program on Healthcare Outcomes among Patients on Augmentation Therapy for Alpha 1-Antitrypsin Deficiency: An Insurance Claims Analysis. Advances in Therapy 35:4, pages 467-481.
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Ignacio Blanco. 2017. Blanco's Overview of Alpha-1 Antitrypsin Deficiency. Blanco's Overview of Alpha-1 Antitrypsin Deficiency 193 206 .
Michael Campos & Jorge Lascano. 2017. Alpha-1 Antitrypsin Deficiency. Alpha-1 Antitrypsin Deficiency 249 262 .
Catherine M. Greene, Stefan J. Marciniak, Jeffrey Teckman, Ilaria Ferrarotti, Mark L. Brantly, David A. Lomas, James K. Stoller & Noel G. McElvaney. (2016) α1-Antitrypsin deficiency. Nature Reviews Disease Primers 2:1.
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Robert A. Sandhaus. 2016. Alpha-1 Antitrypsin. Alpha-1 Antitrypsin 99 110 .
Kristen E. Holm, Melissa R. Plaufcan, Dee W. Ford, Robert A. Sandhaus, Matthew Strand, Charlie Strange & Frederick S. Wamboldt. (2013) The impact of age on outcomes in chronic obstructive pulmonary disease differs by relationship status. Journal of Behavioral Medicine 37:4, pages 654-663.
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Valentin Prieto-Centurion, Hélène A. Gussin, Andrew J. Rolle & Jerry A. Krishnan. (2013) Chronic Obstructive Pulmonary Disease Readmissions at Minority-serving Institutions. Annals of the American Thoracic Society 10:6, pages 680-684.
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Dareen Siri, Humam Farah & D. Kyle Hogarth. (2013) Distinguishing alpha1-antitrypsin deficiency from asthma. Annals of Allergy, Asthma & Immunology 111:6, pages 458-464.
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Marilyn G. Foreman, Michael Campos & Juan C. Celedón. (2012) Genes and Chronic Obstructive Pulmonary Disease. Medical Clinics of North America 96:4, pages 699-711.
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Giancarlo Liumbruno, Angelo D’Alessandro, Giuliano Grazzini & Lello Zolla. (2010) How has proteomics informed transfusion biology so far?. Critical Reviews in Oncology/Hematology 76:3, pages 153-172.
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. (2013) Disease management programme improves health outcomes. PharmacoEconomics & Outcomes News 576:1, pages 12-12.
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