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Nicola Glennie, Fiona M. Harris & Emma F. France. (2023) Perceptions and experiences of control among people living with motor neurone disease: a systematic review and thematic synthesis. Disability and Rehabilitation 45:16, pages 2554-2566.
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C. Paynter, S. Mathers, H. Gregory, A. P. Vogel & M. Cruice. (2022) How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration. Disability and Rehabilitation 44:13, pages 3095-3103.
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Susan Kathryn Baxter, Maxine Johnson, Mark Clowes, David O’Brien, Paul Norman, Theocharis Stavroulakis, Stephen Bianchi, Mark Elliott, Christopher McDermott & Esther Hobson. (2019) Optimizing the noninvasive ventilation pathway for patients with amyotrophic lateral sclerosis/motor neuron disease: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:7-8, pages 461-472.
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Rachel McCauley, Karen Ryan, Regina McQuillan & Geraldine Foley. (2023) Mutual support between patients and family caregivers in palliative care: A qualitative study. Palliative Medicine 37:10, pages 1520-1528.
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Elisa Aust, René Günther, Andreas Hermann & Katharina Linse. (2023) Psychologisch geleitete Gruppentreffen für Angehörige
von ALS-Patient*innen. Fortschritte der Neurologie · Psychiatrie.
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Rachel McCauley, Karen Ryan, Regina McQuillan & Geraldine Foley. (2023) Patient and Caregiver Reciprocal Support: Impact on Decision Making in Specialist Palliative Care. Journal of Pain and Symptom Management 66:5, pages 570-577.
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Sean White, Alicia O'Cathain, Vanessa Halliday, Liz Croot & Christopher J. McDermott. (2023) Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis. Health Expectations 26:4, pages 1418-1435.
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Arsh Haj Mohamad Ebrahim Ketabforoush, Rojin Chegini, Shirin Barati, Fatemeh Tahmasebi, Bardia Moghisseh, Mohammad Taghi Joghataei, Faezeh Faghihi & Fereshteh Azedi. (2023) Masitinib: The promising actor in the next season of the Amyotrophic Lateral Sclerosis treatment series. Biomedicine & Pharmacotherapy 160, pages 114378.
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Marion Sommers-Spijkerman, Neele Rave, Esther Kruitwagen-van Reenen, Johanna M. A. Visser-Meily, Melinda S. Kavanaugh & Anita Beelen. (2022) Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs. BMC Psychology 10:1.
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Karin E. Thomas, Kathryn Lyndes & Katie Jackson. (2022) The Amyotrophic Lateral Sclerosis Caregiver Experience During the Pandemic: A Preliminary Qualitative Exploration and Reflection of Interview Data. Perspectives of the ASHA Special Interest Groups 7:4, pages 1182-1188.
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Helen Brewah, Kevin Borrett, Nuno Tavares & Nikki Jarrett. (2022) Perceptions of people with motor neurone disease, families and HSCPs: a literature review. British Journal of Community Nursing 27:4, pages 188-198.
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Katharina Linse, Elisa Aust, René Günther & Andreas Hermann. (2022) Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?. Journal of Clinical Medicine 11:1, pages 254.
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Katy Tobin, Sinead Maguire, Bernie Corr, Charles Normand, Orla Hardiman & Miriam Galvin. (2021) Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers. BMC Health Services Research 21:1.
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Jacqueline Gillespie, Antoine Przybylak-Brouillard & Christine L Watt. (2021) The Palliative Care Information Needs of Patients with Amyotrophic Lateral Sclerosis and their Informal Caregivers: A Scoping Review. Journal of Pain and Symptom Management 62:4, pages 848-862.
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Jashelle Caga, Emma Devenney, William Huynh, Margaret C. Zoing, Rebekah M. Ahmed & Matthew C. Kiernan. (2021) Illness Cognitions in ALS: New Insights Into Clinical Management of Behavioural Symptoms. Frontiers in Neurology 12.
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Mitsuko Ushikubo, Emiko Nashiki, Tadahiro Ohtani & Hiromi Kawabata. (2021) Practical Measures for Dealing With the Struggles of Nurses Caring for People With Amyotrophic Lateral Sclerosis Comorbid With Cognitive Impairment in Japan. Frontiers in Psychology 12.
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Rachel McCauley, Regina McQuillan, Karen Ryan & Geraldine Foley. (2021) Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis. Palliative Medicine 35:5, pages 875-885.
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Anne Hogden, Camille Paynter & Karen Hutchinson. (2020) How can we improve patient-centered care of motor neuron disease?. Neurodegenerative Disease Management 10:2, pages 91-97.
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Geraldine Foley. (2018) The supportive relationship between palliative patients and family caregivers. BMJ Supportive & Palliative Care 8:2, pages 184-186.
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Anne Hogden & Ashley Crook. (2017) Patient-centered decision making in amyotrophic lateral sclerosis: where are we?. Neurodegenerative Disease Management 7:6, pages 377-386.
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