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Mira Ahmad, Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2023) Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 246-255.
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Stefan Sennfält, Ulf Kläppe, Sebastian Thams, Kristin Samuelsson, Rayomand Press, Fang Fang & Caroline Ingre. (2023) Dying from ALS in Sweden: clinical status, setting, and symptoms. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 237-245.
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Paul Mehta, Jaime Raymond, Reshma Punjani, Moon Han, Theodore Larson, Wendy Kaye, Lorene M. Nelson, Barbara Topol, Oleg Muravov, Corina Genson & D. Kevin Horton. (2023) Prevalence of amyotrophic lateral sclerosis in the United States using established and novel methodologies, 2017. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 108-116.
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Stefan Sennfält, Ulf Kläppe, Sebastian Thams, Kristin Samuelsson, Rayomand Press, Fang Fang & Caroline Ingre. (2023) The path to diagnosis in ALS: delay, referrals, alternate diagnoses, and clinical progression. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 45-53.
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Eleftherios Anestis, Fiona J. R. Eccles, Ian Fletcher, Sofia Triliva & Jane Simpson. (2022) Healthcare professionals’ involvement in breaking bad news to newly diagnosed patients with motor neurodegenerative conditions: a qualitative study. Disability and Rehabilitation 44:25, pages 7877-7890.
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Liam Knox, Christopher McDermott & Esther Hobson. (2022) Telehealth in long-term neurological conditions: the potential, the challenges and the key recommendations. Journal of Medical Engineering & Technology 46:6, pages 506-517.
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Stacy A. Rudnicki, Jinsy A. Andrews, Angela Genge, Carlayne Jackson, Noah Lechtzin, Timothy M. Miller, Bettina M. Cockroft, Fady I. Malik, Lisa Meng, Jenny Wei, Andrew A. Wolff & Jeremy M. Shefner. (2022) Prescription and acceptance of durable medical equipment in FORTITUDE-ALS, a study of reldesemtiv in ALS: post hoc analyses of a randomized, double-blind, placebo-controlled clinical trial. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:3-4, pages 263-270.
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Vanessa Halliday, Nicolò Zarotti, Elizabeth Coates, Alexander McGeachan, Isobel Williams, Sean White, Daniel Beever, Paul Norman, Sarah Gonzalez, Gemma Hackney, Naseeb Ezaydi, Theocharis Stavroulakis, Mike Bradburn & Christopher McDermott. (2021) Delivery of nutritional management services to people with amyotrophic lateral sclerosis (ALS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 350-359.
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Xavier Busquet-Duran, Eva Maria Jiménez-Zafra, Josep Maria Manresa-Domínguez, Magda Tura-Poma, Olga Bosch-delaRosa, Anna Moragas-Roca, Maria Concepción Galera Padilla, Susana Martin Moreno, Emilio Martínez-Losada, Silvia Crespo-Ramírez, Ana Isabel López-Garcia & Pere Torán-Monserrat. (2020) Describing Complexity in Palliative Home Care Through HexCom: A Cross-Sectional, Multicenter Study. Journal of Multidisciplinary Healthcare 13, pages 297-308.
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Esther V. Hobson, Wendy O. Baird, Rebecca Partridge, Cindy L. Cooper, Susan Mawson, Ann Quinn, Pamela J. Shaw, Theresa Walsh, Daniel Wolstenholme & Christopher J. Mcdermott. (2018) The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:5-6, pages 351-361.
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Noah D. Gold, Austin J. MallardJacob C. HermannRichard J. ZeifmanBroc A. PagniMichael P. BogenschutzStephen Ross. (2023) Exploring the Potential Utility of Psychedelic Therapy for Patients With Amyotrophic Lateral Sclerosis. Journal of Palliative Medicine.
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M. Álvarez Saúco, R. García- Ramos, I. Legarda Ramírez, F. Carrillo García, J. Fernández Bueno, S. Martí Martínez, B. González García, A. Moya-Martínez & D. Santos-García. (2023) Palliative care management in patients with Parkinson’s disease and other movement disorders in Spain. National survey of neurologists. Neurología (English Edition).
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John A. Morren, Carol Rheaume & Erik P. Pioro. (2023) Self-reported factors contributing to delay in ALS diagnosis among primary care providers in a large Ohio-based US healthcare network. Journal of the Neurological Sciences 445, pages 120532.
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Filipe Gonçalves, Margarida I. Teixeira & Bruno Magalhães. (2022) The role of spirituality in people with amyotrophic lateral sclerosis and their caregivers: Scoping review. Palliative and Supportive Care, pages 1-11.
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M. L. Dontje, E. Kruitwagen-van Reenen, E. van Wijk, E. Baars, J. M. A. Visser-Meily, A. Beelen, Jim van Os, Leonard van den Berg, Conny van der Meijden, Vincent Cornelissen, Marietta Eimers, Anja Horemans, Esther Kruitwagen, Janneke Sterk, Laura Peeters, Evelien Pirard, Trees Spendel, Anne-Wil Koopman, Remco Timmermans, Germaine Kramer, Evert Schouten & Rineke Jaspers Focks. (2022) Evaluation of the nation-wide implementation of ALS home monitoring & coaching: an e-health innovation for personalized care for patients with motor neuron disease. BMC Health Services Research 22:1.
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Robert Klebbe, Stefan Scherzinger & Cornelia Eicher. (2022) Assistive Robots for Patients With Amyotrophic Lateral Sclerosis: Exploratory Task-Based Evaluation Study With an Early-Stage Demonstrator. JMIR Rehabilitation and Assistive Technologies 9:3, pages e35304.
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Sarah Jensen, Julia Hafer, Martina Wiedau‐Pazos & Ambereen K. Mehta. (2022) Longitudinal specialty palliative care for people with amyotrophic lateral sclerosis using a universal referral method. Muscle & Nerve 66:2.
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Sophy Chan-Nguyen, Mustafa Karacam, Benjamin Ritsma & Ramana Appireddy. (2021) Patient Perceptions on the Virtual Amyotrophic Lateral Sclerosis Clinic during COVID-19. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 49:4, pages 618-622.
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Vittoria Anita Bilenchi, Paolo Banfi, Francesco Pagnini & Eleonora Volpato. (2022) Psychoeducational groups for people with Amyotrophic Lateral Sclerosis and their caregiver: a qualitative study. Neurological Sciences 43:7, pages 4239-4255.
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Filipe Gonçalves & Bruno Magalhães. (2021) Effects of prolonged interruption of rehabilitation routines in amyotrophic lateral sclerosis patients. Palliative and Supportive Care 20:3, pages 369-374.
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Raffaele Pugliese, Riccardo Sala, Stefano Regondi, Benedetta Beltrami & Christian Lunetta. (2022) Emerging technologies for management of patients with amyotrophic lateral sclerosis: from telehealth to assistive robotics and neural interfaces. Journal of Neurology 269:6, pages 2910-2921.
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Isabel Vandenbogaerde, Rose Miranda, Jan L De Bleecker, Emma Carduff, Agnes van der Heide, Lieve Van den Block, Luc Deliens & Aline De Vleminck. (2022) Advance care planning in amyotrophic lateral sclerosis (ALS): study protocol for a qualitative longitudinal study with persons with ALS and their family carers. BMJ Open 12:5, pages e060451.
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Karla T. Washington, Klaudia Kukulka, Raghav Govindarjan & David R. Mehr. (2020) Engaging Specialist Palliative Care in the Management of Amyotrophic Lateral Sclerosis: A Patient-, Family-, and Provider-Based Approach. Journal of Palliative Care 37:2, pages 170-176.
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Denise Andrea Harris. (2021) Interpreting end-of-life experiences of the person with motor neurone disease. Palliative and Supportive Care 20:2, pages 300-301.
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Paola Masiello. (2022) Technology to support autonomy in patients with Amyotrophic Lateral Sclerosis. Journal of Advanced Health Care, pages 47-52.
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Aarti Chopra, Ravi Kumar & Girendra Kumar Gautam. (2022) A review: Management of motor neuron diseases. IP Indian Journal of Neurosciences 7:4, pages 292-294.
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Narges Daneshafrooz, Mohammad Taghi Joghataei, Mehdi Mehdizadeh, Afagh Alavi, Mahmood Barati, Bahman Panahi, Shahram Teimourian & Babak Zamani. (2022) Identification of let-7f and miR-338 as plasma-based biomarkers for sporadic amyotrophic lateral sclerosis using meta-analysis and empirical validation. Scientific Reports 12:1.
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Katharina Linse, Elisa Aust, René Günther & Andreas Hermann. (2022) Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?. Journal of Clinical Medicine 11:1, pages 254.
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Christopher Poppe, Kathi Schweikert, Tanja Krones & Tenzin Wangmo. (2022) Supportive needs of informal caregivers of people with amyotrophic lateral sclerosis in Switzerland: a qualitative study. Palliative Care and Social Practice 16, pages 263235242210777.
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Sanjay K. Agarwal, Oscar Antunez-Flores, Warren G. Foster, Ashwaq Hermes, Shahrokh Golshan, Ahmed M. Soliman, Amanda Arnold & Rebecca Luna. (2021) Real-world characteristics of women with endometriosis-related pain entering a multidisciplinary endometriosis program. BMC Women's Health 21:1.
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M. Álvarez Saúco, R. García- Ramos, I. Legarda Ramírez, F. Carrillo García, J. Fernández Bueno, S. Martí Martínez, B. González García, A. Moya-Martínez & D. Santos-García. (2021) Manejo de la atención paliativa de los pacientes con enfermedad de Parkinson y otros trastornos del movimiento en España. Encuesta Nacional a neurólogos. Neurología.
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Katarzyna Patrycja Dzik, Damian Józef Flis, Zofia Kinga Bytowska, Mateusz Jakub Karnia, Wieslaw Ziolkowski & Jan Jacek Kaczor. (2021) Swim Training Ameliorates Hyperlocomotion of ALS Mice and Increases Glutathione Peroxidase Activity in the Spinal Cord. International Journal of Molecular Sciences 22:21, pages 11614.
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