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Original Research

Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals

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Pages 691-701 | Published online: 27 Sep 2012

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (7)

Mariana P. Branco, Elmar G. M. Pels, Femke Nijboer, Nick F. Ramsey & Mariska J. Vansteensel. (2023) Brain-Computer interfaces for communication: preferences of individuals with locked-in syndrome, caregivers and researchers. Disability and Rehabilitation: Assistive Technology 18:6, pages 963-973.
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C. Paynter, S. Mathers, H. Gregory, A. P. Vogel & M. Cruice. (2022) How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration. Disability and Rehabilitation 44:13, pages 3095-3103.
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Anne Hogden, Geraldine Foley, Robert D Henderson, Natalie James & Samar M Aoun. (2017) Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. Journal of Multidisciplinary Healthcare 10, pages 205-215.
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Silvana Castillo-Parra, Sandra Oyarzo Torres, Mónica Espinoza Barrios, Ana María Rojas-Serey, Juan Diego Maya, Valeria Sabaj Diez, Verónica Aliaga Castillo, Manuel Castillo Niño, Luis Romero Romero, Jennifer Foster & Gustavo Hawes Barrios. (2017) The implementation of multiple interprofessional integrated modules by health sciences faculty in Chile. Journal of Interprofessional Care 31:6, pages 777-780.
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David Oliver, Aleksandar Radunovic, Alexander Allen & Christopher McDermott. (2017) The development of the UK National Institute of Health and Care Excellence evidence-based clinical guidelines on motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:5-6, pages 313-323.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2013) What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?. Patient Preference and Adherence 7, pages 171-181.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Preference and Adherence 6, pages 829-838.
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Articles from other publishers (21)

Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2022) Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis. BMC Neurology 22:1.
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Daniel J Paul, Maree Wright, Jonathan M Palmer & Thomas B Russell. (2022) Perioperative management of patients with amyotrophic lateral sclerosis: A narrative review. Anaesthesia and Intensive Care 50:5, pages 345-360.
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Anke Erdmann, Celia Spoden, Irene Hirschberg & Gerald Neitzke. (2022) Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review. Palliative Care and Social Practice 16, pages 263235242210836.
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Mitsuko Ushikubo, Emiko Nashiki, Tadahiro Ohtani & Hiromi Kawabata. (2021) Practical Measures for Dealing With the Struggles of Nurses Caring for People With Amyotrophic Lateral Sclerosis Comorbid With Cognitive Impairment in Japan. Frontiers in Psychology 12.
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Shelagh K. Genuis, Westerly Luth, Sandra Campbell, Tania Bubela & Wendy S. Johnston. (2021) Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Frontiers in Neurology 12.
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Xiaoxu Zeng, Bin Li & Yang Zou. (2021) The relationship between non-alcoholic fatty liver disease and hypothyroidism. Medicine 100:17, pages e25738.
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Julie Labra, Anne Hogden, Emma Power, Natalie James & Victoria M Flood. (2020) Gastrostomy uptake in motor neurone disease: a mixed-methods study of patients’ decision making. BMJ Open 10:2, pages e034751.
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Christoph Heesen, Anne Rahn & Insa Schiffmann. 2020. Diagnostik und Therapie neurologischer Erkrankungen. Diagnostik und Therapie neurologischer Erkrankungen 535 549 .
Camille Paynter, Madeline Cruice, Susan Mathers, Heidi Gregory & Adam P. Vogel. (2019) Communication and cognitive impairments and health care decision making in MND: A narrative review. Journal of Evaluation in Clinical Practice 25:6, pages 1182-1192.
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Jashelle Caga, Sharpley Hsieh, Patricia Lillo, Kaitlin Dudley & Eneida Mioshi. (2019) The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers. Frontiers in Neurology 10.
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Anne Hogden, Samar M. Aoun & Peter L. Silbert. (2018) Palliative Care in Neurology: Integrating a Palliative Approach to Amyotrophic Lateral Sclerosis Care. EMJ Neurology, pages 68-76.
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Liselott Årestedt, Carina Persson, Margareta Rämgård & Eva Benzein. (2017) Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness. Journal of Clinical Nursing 27:3-4, pages 836-847.
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Michiko Nakai, Yugo Narita & Hidekazu Tomimoto. (2017) An Investigation of Perspectives of Respite Admission Among People Living With Amyotrophic Lateral Sclerosis and the Hospitals That Support Them. Journal of Primary Care & Community Health 8:3, pages 163-168.
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Sverre Vigeland Lerum, Kari Nyheim Solbraekke & Jan C. Frich. (2017) Healthcare professionals’ accounts of challenges in managing motor neurone disease in primary healthcare: a qualitative study. Health & Social Care in the Community 25:4, pages 1355-1363.
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Helena E. A. Aho-Özhan, Sarah Böhm, Jürgen Keller, Johannes Dorst, Ingo Uttner, Albert C. Ludolph & Dorothée Lulé. (2017) Experience matters: neurologists’ perspectives on ALS patients’ well-being. Journal of Neurology 264:4, pages 639-646.
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Naomi H. Martin, Vanessa Lawrence, Joanna Murray, Anna Janssen, Irene Higginson, Rebecca Lyall, Rachel Burman, P. Nigel Leigh, Ammar Al-Chalabi & Laura H. Goldstein. (2015) Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis. Qualitative Health Research 26:10, pages 1366-1381.
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Samar M. Aoun, Lauren J. Breen, Robert Edis, Robert D. Henderson, David Oliver, Rodney Harris, Denise Howting, Margaret O'Connor & Carol Birks. (2016) Breaking the news of a diagnosis of motor neurone disease: A national survey of neurologists' perspectives. Journal of the Neurological Sciences 367, pages 368-374.
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Shahla Siddiqui. (2016) Dying within dying: Ethical dilemmas of treating terminally ill patients with acute life-threatening illnesses. Indian Journal of Critical Care Medicine 20:5, pages 308-309.
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Anne Hogden, David Greenfield, Jashelle Caga & Xiongcai Cai. (2016) Development of patient decision support tools for motor neuron disease using stakeholder consultation: a study protocol. BMJ Open 6:4, pages e010532.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2015) Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care. Health Expectations 18:5, pages 1769-1782.
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Anne Hogden. (2014) Optimizing patient autonomy in amyotrophic lateral sclerosis: inclusive decision-making in multidisciplinary care. Neurodegenerative Disease Management 4:1, pages 1-3.
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