Citations (27)
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Nicola Glennie, Fiona M. Harris & Emma F. France. (2023) Perceptions and experiences of control among people living with motor neurone disease: a systematic review and thematic synthesis. Disability and Rehabilitation 45:16, pages 2554-2566.
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Dominika Lisiecka, Helen Kelly & Jeanne Jackson. (2021) How do people with Motor Neurone Disease experience dysphagia? A qualitative investigation of personal experiences. Disability and Rehabilitation 43:4, pages 479-488.
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Arianna Palmieri, Johann R. Kleinbub, Francesco Pagnini, Gianni Sorarù & Sabrina Cipolletta. (2021) Empathy-based supportive treatment in amyotrophic lateral sclerosis: A pragmatic study. American Journal of Clinical Hypnosis 63:3, pages 202-216.
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Kirsty R. Weeks, Rebecca L. Gould, Christopher Mcdermott, Jessica Lynch, Laura H. Goldstein, Christopher D. Graham, Lance McCracken, Marc Serfaty, Robert Howard, Ammar Al-Chalabi, David White, Mike Bradburn, Tracey Young, Cindy Cooper, Dame Pamela J. Shaw & Vanessa Lawrence. (2019) Needs and preferences for psychological interventions of people with motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:7-8, pages 521-531.
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Louise Sofia Madsen, Jørgen Jeppesen & Charlotte Handberg. (2019) “Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation. Disability and Rehabilitation 41:12, pages 1410-1418.
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Gillean Hilton, Carolyn Unsworth & Gregory Murphy. (2018) The experience of attempting to return to work following spinal cord injury: a systematic review of the qualitative literature. Disability and Rehabilitation 40:15, pages 1745-1753.
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. (2014) THEME 5 MULTIDISCIPLINARY CARE AND QUALITY OF LIFE. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:sup1, pages 107-127.
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Remko M. van Eenennaam, Neele Rave, Willeke J. Kruithof, Esther T. Kruitwagen-van Reenen, Leonard H. van den Berg, Johanna A. Visser-Meily & Anita Beelen. (2023) Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals. PLOS ONE 18:9, pages e0290508.
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Paolo Bongioanni, Gian Domenico Borasio, David J Oliver, Andrea Romagnoli, Karl P Kapitza, Katie Sidle & Francesco Tramonti. (2023) Methods for informing people with amyotrophic lateral sclerosis/motor neuron disease of their diagnosis. Cochrane Database of Systematic Reviews 2023:2.
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Srestha Mazumder, Matthew C. Kiernan, Glenda M. Halliday, Hannah C. Timmins & Colin J. Mahoney. (2022) The contribution of brain banks to knowledge discovery in amyotrophic lateral sclerosis: A systematic review. Neuropathology and Applied Neurobiology 48:7.
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Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) The impact of communication on healthcare involvement for people living with motor neurone disease and their carers: A longitudinal qualitative study. International Journal of Language & Communication Disorders 57:6, pages 1318-1333.
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Helen Brewah, Kevin Borrett, Nuno Tavares & Nikki Jarrett. (2022) Perceptions of people with motor neurone disease, families and HSCPs: a literature review. British Journal of Community Nursing 27:4, pages 188-198.
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Stuart Cleary, John E. Misiaszek, Sonya Wheeler, Sanjay Kalra, Shelagh K. Genuis & Wendy S. Johnston. (2021) Lung volume recruitment improves volitional airway clearance in amyotrophic lateral sclerosis. Muscle & Nerve 64:6, pages 676-682.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Hannah Stott. 2021. Immobility and Medicine. Immobility and Medicine
155
183
.
Kate Flemming, Victoria Turner, Samantha Bolsher, Bill Hulme, Elizabeth McHugh & Ian Watt. (2020) The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliative Medicine 34:6, pages 708-730.
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Lucimara Fabiana Fornari, Isabel Pinho, Carla Azevedo de Almeida & Antonio Pedro Costa. (2019) Systematic Literature Review with Support of Digital Tools. Systematic Literature Review with Support of Digital Tools.
Lucy Holkham & Andy Soundy. (2017) The experience of informal caregivers of patients with motor neurone disease: A thematic synthesis. Palliative and Supportive Care 16:4, pages 487-496.
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Margaret O'Connor, Samar M. Aoun & Lauren J. Breen. (2018) Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease-“Our life has changed forever”. Health & Social Care in the Community 26:3, pages e415-e421.
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Sabrina Cipolletta, Giorgia Rosamaria Gammino & Arianna Palmieri. (2017) Illness trajectories in patients with amyotrophic lateral sclerosis: How illness progression is related to life narratives and interpersonal relationships. Journal of Clinical Nursing 26:23-24, pages 5033-5043.
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Barbara Bassola & Maura Lusignani. (2017) Self-care in People With Motor Neuron Disease. Journal of Neuroscience Nursing 49:5, pages 311-317.
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Sverre Vigeland Lerum, Kari Nyheim Solbraekke & Jan C. Frich. (2017) Healthcare professionals’ accounts of challenges in managing motor neurone disease in primary healthcare: a qualitative study. Health & Social Care in the Community 25:4, pages 1355-1363.
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Dikaios Sakellariou. (2016) Enacting Varieties of Subjectivity Through Practices of Care. Qualitative Health Research 26:14, pages 1902-1910.
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Jørgen Jeppesen, Jes Rahbek, Ole Gredal & Helle Ploug Hansen. (2014) How Narrative Journalistic Stories Can Communicate the Individual’s Challenges of Daily Living with Amyotrophic Lateral Sclerosis. The Patient - Patient-Centered Outcomes Research 8:1, pages 41-49.
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Jacquelyn Allen-Collinson & Amanda Pavey. (2014) Touching moments: phenomenological sociology and the haptic dimension in the lived experience of motor neurone disease. Sociology of Health & Illness 36:6, pages 793-806.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2014) Exerting control and adapting to loss in amyotrophic lateral sclerosis. Social Science & Medicine 101, pages 113-119.
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Dikaios Sakellariou, Gail Boniface & Paul Brown. (2013) Using Joint Interviews in a Narrative-Based Study on Illness Experiences. Qualitative Health Research 23:11, pages 1563-1570.
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