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Research Article

Psychological health in patients with ALS is maintained as physical function declines

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Pages 290-296 | Received 03 Oct 2010, Accepted 09 Jan 2011, Published online: 05 Feb 2011

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Silvia Giusiano, Laura Peotta, Barbara Iazzolino, Enza Mastro, Martina Arcari, Francesca Palumbo, Maria Claudia Torrieri, Alessandro Bombaci, Maurizio Grassano, Sara Cabras, Francesca Di Pede, Filippo DeMattei, Enrico Matteoni, Luca Solero, Margherita Daviddi, Paolina Salamone, Giuseppe Fuda, Umberto Manera, Antonio Canosa, Adriano Chiò, Andrea Calvo, Cristina Moglia & Rosario Vasta. (2022) Amyotrophic lateral sclerosis caregiver burden and patients’ quality of life during COVID-19 pandemic. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:1-2, pages 146-148.
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Peter Fisher, Rachel Dodd, Emma Barrow, Selina Makin & Mary Gemma Cherry. (2019) Predictors of distress in amyotrophic lateral sclerosis: A systematic review. Cogent Psychology 6:1.
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Divisha Raheja, Helen E. Stephens, Erik Lehman, Susan Walsh, Chengwu Yang & Zachary Simmons. (2016) Patient-reported problematic symptoms in an ALS treatment trial. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 198-205.
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Timothy Fullam, Helen E. Stephens, Stephanie H. Felgoise, Jacqueline K. Blessinger, Susan Walsh & Zachary Simmons. (2016) Compliance with recommendations made in a multidisciplinary ALS clinic. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:1-2, pages 30-37.
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Helen E. Stephens, Stephanie Felgoise, Jared Young & Zachary Simmons. (2015) Multidisciplinary ALS clinics in the USA: A comparison of those who attend and those who do not. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:3-4, pages 196-201.
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Francesco Tramonti, Paolo Bongioanni, Rebecca Leotta, Irene Puppi & Bruno Rossi. (2015) Age, gender, kinship and caregiver burden in amyotrophic lateral sclerosis. Psychology, Health & Medicine 20:1, pages 41-46.
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Geraldine Foley. (2014) Loss and wellbeing in amyotrophic lateral sclerosis: Challenging the consensus. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 161-162.
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Articles from other publishers (26)

Birgitta Jakobsson Larsson, Karin Nordin & Ingela Nygren. (2023) Symptoms of anxiety and depression in patients with amyotrophic lateral sclerosis and their relatives during the disease trajectory. Journal of the Neurological Sciences 455, pages 122780.
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Davide Gentili, Giovanna Deiana, Vanna Chessa, Annalisa Calabretta, Elisabetta Marras, Costanzo Solinas, Carmelo Gugliotta & Antonio Azara. (2023) Quality of Life in Amyotrophic Lateral Sclerosis Patients and Care Burden of Caregivers in Sardinia during COVID-19 Pandemic. Healthcare 11:11, pages 1641.
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Emily M. Lund, Trisha A. Hostetter, Jeri E. Forster, Claire A. Hoffmire, Kelly A. Stearns‐Yoder, Lisa A. Brenner & Maryam Tahmasbi Sohi. (2021) Suicide among veterans with amyotrophic lateral sclerosis. Muscle & Nerve 63:6, pages 807-811.
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Rachel Dodd, Peter L. Fisher, Selina Makin, Perry Moore & Mary Gemma Cherry. (2021) The Association Between Maladaptive Metacognitive Beliefs and Emotional Distress in People Living With Amyotrophic Lateral Sclerosis. Frontiers in Psychology 12.
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Miriam Galvin, Tommy Gavin, Iain Mays, Mark Heverin & Orla Hardiman. (2020) Individual quality of life in spousal ALS patient-caregiver dyads. Health and Quality of Life Outcomes 18:1.
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Tino Prell, Nayana Gaur, Robert Steinbach, Otto W. Witte & Julian Grosskreutz. (2020) Modelling disease course in amyotrophic lateral Sclerosis: pseudo-longitudinal insights from cross-sectional health-related quality of life data. Health and Quality of Life Outcomes 18:1.
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Yu Kageyama, Xin He, Toshio Shimokawa, Jinichi Sawada, Takufumi Yanagisawa, Morris Shayne, Osamu Sakura, Haruhiko Kishima, Hideki Mochizuki, Toshiki Yoshimine & Masayuki Hirata. (2020) Nationwide survey of 780 Japanese patients with amyotrophic lateral sclerosis: their status and expectations from brain–machine interfaces. Journal of Neurology 267:10, pages 2932-2940.
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Maisa Vitória Gayoso, Flávia Seullner Domingues, Marcondes Cavalcante França Junior, Stephanie H. Felgoise, Acary Souza Bulle Oliveira & Guilherme Antonio Moreira de Barros. (2019) Cross-cultural adaptation and validation for the Brazilian population of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF). Quality of Life Research 29:3, pages 805-813.
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Leila Bond, Gloria Bowen, Benjamin Mertens, Keelie Denson, Kathleen Jordan, Branislav Vidakovic & Cassie S. Mitchell. (2020) Associations of Patient Mood, Modulators of Quality of Life, and Pharmaceuticals with Amyotrophic Lateral Sclerosis Survival Duration. Behavioral Sciences 10:1, pages 33.
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Dorothée Lulé, Andrea Kübler & Albert C. Ludolph. (2019) Ethical Principles in Patient-Centered Medical Care to Support Quality of Life in Amyotrophic Lateral Sclerosis. Frontiers in Neurology 10.
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B. Jakobsson Larsson, A. G. Ozanne, K. Nordin & I. Nygren. (2017) A prospective study of quality of life in amyotrophic lateral sclerosis patients. Acta Neurologica Scandinavica 136:6, pages 631-638.
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Susana Pinto & Mamede de Carvalho. (2017) Health Status Perspectives in Amyotrophic Lateral Sclerosis. Neurodegenerative Diseases 17:6, pages 323-329.
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Annerieke C. van Groenestijn, Esther T. Kruitwagen-van Reenen, Johanna M. A. Visser-Meily, Leonard H. van den Berg & Carin D. Schröder. (2016) Associations between psychological factors and health-related quality of life and global quality of life in patients with ALS: a systematic review. Health and Quality of Life Outcomes 14:1.
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Birgitta Jakobsson Larsson, Karin Nordin & Ingela Nygren. (2016) Coping with amyotrophic lateral sclerosis; from diagnosis and during disease progression. Journal of the Neurological Sciences 361, pages 235-242.
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Tamara Matuz, Niels Birbaumer, Martin Hautzinger & Andrea Kübler. (2015) Psychosocial adjustment to ALS: a longitudinal study. Frontiers in Psychology 6.
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Sabrina Paganoni, Chafic Karam, Nanette Joyce, Richard Bedlack & Gregory T. Carter. (2015) Comprehensive rehabilitative care across the spectrum of amyotrophic lateral sclerosis. NeuroRehabilitation 37:1, pages 53-68.
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Zachary Simmons. (2014) Patient-Perceived Outcomes and Quality of Life in ALS. Neurotherapeutics 12:2, pages 394-402.
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Dezhi Chen, Xiaoyan Guo, Zhenzhen Zheng, Qianqian Wei, Wei Song, Bei Cao, Rui Huang, Rong Yang & Huifang Shang. (2015) Depression and anxiety in amyotrophic lateral sclerosis: Correlations between the distress of patients and caregivers. Muscle & Nerve 51:3, pages 353-357.
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Benjamin Ilse, Tino Prell, Mario Walther, Viktor Hartung, Susanne Penzlin, Florian Tietz, Otto-Wilhelm Witte, Bernhard Strauss & Julian Grosskreutz. (2014) Relationships Between Disease Severity, Social Support and Health-Related Quality of Life in Patients with Amyotrophic Lateral Sclerosis. Social Indicators Research 120:3, pages 871-882.
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Jonathan R. Wolpaw & Chadwick B. Boulay. 2014. Textbook of Neural Repair and Rehabilitation. Textbook of Neural Repair and Rehabilitation 565 576 .
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Chris J. Gibbons, Everard W. Thornton, John Ealing, Pamela J. Shaw, Kevin Talbot, Alan Tennant & Carolyn A. Young. (2013) Assessing social isolation in motor neurone disease: A Rasch analysis of the MND Social Withdrawal Scale. Journal of the Neurological Sciences 334:1-2, pages 112-118.
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Shih-Chao Kang, Shinn-Jang Hwang, Pin-Yuan Wu & Ching-Piao Tsai. (2013) The utilization of hospice care among patients with motor neuron diseases: The experience in Taiwan from 2005 to 2010. Journal of the Chinese Medical Association 76:7, pages 390-394.
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Sébastien MontelLaurence AlbertiniClaude DesnuelleElisabeth Spitz. (2012) Evolution of Quality of Life, Mental Health, and Coping Strategies in Amyotrophic Lateral Sclerosis: A Pilot Study. Journal of Palliative Medicine 15:11, pages 1181-1184.
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Ted M. Burns, Christopher D. Graham, Michael R. Rose & Zachary Simmons. (2012) Quality of life and measures of quality of life in patients with neuromuscular disorders. Muscle & Nerve 46:1, pages 9-25.
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Orla Hardiman, Leonard H. van den Berg & Matthew C. Kiernan. (2011) Clinical diagnosis and management of amyotrophic lateral sclerosis. Nature Reviews Neurology 7:11, pages 639-649.
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