Psychological health in patients with ALS is maintained as physical function declines

References

• Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S. Quality of life in ALS depends on factors other than strength and physical function. Neurology. 2000;55:388–92.
   PubMed Web of Science ®Google Scholar
• McDonald E, Wiedenfeld S, Hillel A, Carpenter C, Walter R. Survival in amyotrophic lateral sclerosis: the role of psychological factors. Arch Neurol. 1994;51:17–23.
   PubMed Web of Science ®Google Scholar
• Rabkin JG, Wagner GJ, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med. 2000;62:271–9.
   PubMed Web of Science ®Google Scholar
• Rabkin JG, Albert SM, del Bene ML, O'Sullivan I, Tider T, Rowland LP, . Prevalence of depressive disorders and change over time in late-stage ALS. Neurology. 2005;65:62–7.
   PubMed Web of Science ®Google Scholar
• Wicks P, Abrahams S, Masia D, Hejda-Fordea S, Leigh PN, Goldstein LH. Prevalence of depression in a 12-month consecutive sample of patients with ALS. Eur J Neurol. 2007; 14:993–1001.
   PubMed Web of Science ®Google Scholar
• McElhiney MC, Rabkin JG, Gordon PH, Goetz R, Mitsumoto H. Prevalence of fatigue and depression in ALS patients and change over time. J Neurol Neurosurg Psychiatry. 2009;80:1146–9.
   PubMed Web of Science ®Google Scholar
• Johnston M, Earll L, Giles M, McClenahan R, Stevens D, Morrison V. Mood as a predictor of disability and survival in patients newly diagnosed with ALS/MND. Br J Health Psychol. 1999;4:127–36.
   Web of Science ®Google Scholar
• Felgoise SH, Chakraborty BH, Bond E, Rodriguez J, Bremer BA, Walsh SM, . Psychological morbidity in ALS: the importance of psychological assessment beyond depression alone. Amyotroph Lateral Scler. 2010;11:351–8.
   PubMed Web of Science ®Google Scholar
• Bergner M, Bobbitt RA, Carter WB, Gilson BS. The sickness impact profile: development and final revision of a health status measure. Med Care. 1981;19:787–805.
   PubMed Web of Science ®Google Scholar
• McGuire D, Garrison L, Armon C, Barohn R, Bryan W, Miller R, . Relationship of the Tufts quantitative neuromuscular exam (TQNE) and the sickness impact profile (SIP) in measuring progression of ALS. Neurology. 1996; 46:1442–4.
   PubMed Web of Science ®Google Scholar
• McGuire D, Garrison L, Armon C, Barohn R, Bryan W, Miller R, . A brief quality-of-life measure for ALS clinical trials based on a subset of items from the sickness impact profile. J Neurol Sci. 1997;152 (Suppl):S18–22.
   Google Scholar
• Jenkinson C, Fitzpatrick R, Brennan C, Swash M. Evidence for the validity and reliability of the ALS assessment questionnaire: the ALSAQ-40. Amyotroph Lateral Scler Other Motor Neuron Disord. 1999;1:33–40.
   PubMed Web of Science ®Google Scholar
• Robbins RA, Simmons Z, Bremer BA, Walsh SM, Fischer S. Quality of life in ALS is maintained as physical function declines. Neurology. 2001;56:442–4.
   PubMed Web of Science ®Google Scholar
• Simmons Z, Felgoise SH, Bremer BA, Walsh SM, Hufford DJ, Bromberg MB, . The ALSSQoL: balancing physical and non-physical factors in assessing quality of life in ALS. Neurology. 2006;67:1659–64.
   PubMed Web of Science ®Google Scholar
• van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Graaff, . Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65:1264–7.
   PubMed Web of Science ®Google Scholar
• Aboussouan LS, Khan SU, Banerjee M, Arroliga AC, Mitsumoto H. Objective measures of the efficacy of non-invasive positive-pressure ventilation in amyotrophic lateral sclerosis. Muscle Nerve. 2001;24:403–9.
   PubMed Web of Science ®Google Scholar
• Jackson CE, Rosenfeld J, Moore DH, Bryan WW, Barohn RJ, Wrench M, . A preliminary evaluation of a prospective study of pulmonary function studies and symptoms of hypoventilation in ALS/MND patients. J Neurol Sci. 2001; 191:75–8.
   PubMed Web of Science ®Google Scholar
• Lyall RA, Donaldson N, Fleming T, Wood C, Newson-Davis I, Polkey MI, . A prospective study of quality of life in ALS patients treated with non-invasive ventilation. Neurology. 2001;57:153–6.
   PubMed Web of Science ®Google Scholar
• Bourke SC, Bullock RE, Williams TL, Shaw PJ, Gibson GJ. Non-invasive ventilation in ALS: indications and effect on quality of life. Neurology. 2003;61:171–7.
   PubMed Web of Science ®Google Scholar
• Butz M, Wollinsky KH, Wiedemuth-Catrinescu U, Sperfeld A, Winter S, Mehrkens H, . Longitudinal effects of non-invasive positive-pressure ventilation in patients with amyotrophic lateral sclerosis. Am J Phys Med Rehabil. 2003; 82:597–604.
   PubMed Web of Science ®Google Scholar
• Brooks BR, Miller RG, Swash M, Munsat TL. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2000;1:293–9.
   PubMed Web of Science ®Google Scholar
• Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, . The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (phase III). J Neurol Sci. 1999;169:13–21.
   PubMed Web of Science ®Google Scholar
• Wijesekera LC, Leigh PN. Amyotrophic lateral sclerosis. Orphanet J Rare Dis. 2009;4:3.
   PubMed Web of Science ®Google Scholar
• Averill AJ, Kasarskis EJ, Segerstrom SC. Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:243–54.
   PubMed Web of Science ®Google Scholar
• Norquist JM, Fitzpatirck R, Jenkinson C. Health-related quality of life in amyotrophic lateral sclerosis: determining a meaningful deterioration. Qual Life Res. 2004;13:1409–14.
   PubMed Web of Science ®Google Scholar
• de Groot IJM, Post MWM, van Heuveln T, van den Berg LH, Lindeman E. Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:356–61.
   PubMed Web of Science ®Google Scholar
• Jenkinson C, Fitzpatrick R, Swash M, Peto V, the ALS-HPS Steering Group. The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol. 2000;247:835–40.
   PubMed Web of Science ®Google Scholar
• Carr AJ, Gibson B, Robinson PG. Measuring quality of life: is quality of life determined by expectations or experience? Br Med J. 2001;322:1240–3.
   PubMed Web of Science ®Google Scholar
• Neudert C, Wasner M, Borasio GD. Individual quality of life is not correlated with health related quality of life or physical function in patients with amyotrophic lateral sclerosis. J Palliat Med. 2004;7:551–7.
   PubMedGoogle Scholar
• Bromberg MB, Forshew DA. Comparison of instruments addressing quality of life in patients with ALS and their caregivers. Neurology. 2002;58:320–2.
   PubMed Web of Science ®Google Scholar
• O'Doherty LJ, Hickey A, Hardiman O. Measuring life quality, physical function and psychological well-being in neurological illness. Amyotroph Lateral Scler. 2010;11:461–8.
   PubMed Web of Science ®Google Scholar
• Roach AR, Averill AJ, Segerstrom SC, Kasarskis EJ. The dynamics of quality of life in ALS patients and caregivers. Ann Behav Med. 2009;37:197–206.
   PubMed Web of Science ®Google Scholar
• Kurt A, Nijboer F, Matuz T, Kübler A. Depression and anxiety in individuals with amyotrophic lateral sclerosis: epidemiology and management. CNS Drugs. 2007;21:279–91.
   PubMed Web of Science ®Google Scholar
• Foley G, O'Mahony P, Hardiman O. Perceptions of quality of life in people with ALS: effects of coping and health care. Amyotroph Lateral Scler. 2007;8:164–9.
   PubMed Web of Science ®Google Scholar