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Research Article

Initial evaluation of the Consent Support Tool: A structured procedure to facilitate the inclusion and engagement of people with aphasia in the informed consent process

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Madeleine Harrison, Rebecca Palmer & Cindy Cooper. (2023) Identifying the Active Ingredients of a Computerized Speech and Language Therapy Intervention for Poststroke Aphasia: Multiple Methods Investigation Alongside a Randomized Controlled Trial. JMIR Rehabilitation and Assistive Technologies 10, pages e47542.
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Jeanne Gallée, Victoria E. Tilton-Bolowsky & Brielle C. Stark. (2023) The Communication Success Screener: A Preliminary Investigation of Perceived Communicative Success Across Modalities, Environments, and Demands. Journal of Speech, Language, and Hearing Research, pages 1-21.
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Alexandra M. Stipinovich, Kerstin Tönsing & Shakila Dada. (2023) Communication strategies to support decision‐making by persons with aphasia: A scoping review. International Journal of Language & Communication Disorders 58:6, pages 1955-1976.
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Eileen Vaughan & Molly X Manning. (2023) Are People with Aphasia Included in Stroke Trials? A Systematic Review and Narrative Synthesis. Clinical Rehabilitation 37:10, pages 1375-1385.
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Amy M. Russell, Victoria Shepherd, Kerry Woolfall, Bridget Young, Katie Gillies, Anna Volkmer, Mark Jayes, Richard Huxtable, Alexander Perkins, Nurulamin M. Noor, Beverley Nickolls & Julia Wade. (2023) Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action. Trials 24:1.
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Lula Albar, Vitaveska Lanfranchi & Suvodeep Mazumdar. 2023. Universal Access in Human-Computer Interaction. Universal Access in Human-Computer Interaction 491 508 .
Ciara Shiggins, Brooke Ryan, Robyn O'Halloran, Emma Power, Julie Bernhardt, Richard I. Lindley, Gordon McGurk, Graeme J. Hankey & Miranda L. Rose. (2022) Towards the Consistent Inclusion of People With Aphasia in Stroke Research Irrespective of Discipline. Archives of Physical Medicine and Rehabilitation 103:11, pages 2256-2263.
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Karen Bunning, Oluseyi Florence Jimoh, Rob Heywood, Anne Killett, Hayley Ryan, Ciara Shiggins & Peter E Langdon. (2022) How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales. BMJ Open 12:3, pages e059036.
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Julia Milden, Piper Dickhout & Seonaid Nolan. (2021) Hospital-based Buprenorphine/Naloxone Initiation in a Patient With Limited Communication Abilities: A Case Report. Journal of Addiction Medicine 15:6, pages 519-521.
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Oluseyi Florence Jimoh, Hayley Ryan, Anne Killett, Ciara Shiggins, Peter E. Langdon, Rob Heywood & Karen Bunning. (2021) A systematic review and narrative synthesis of the research provisions under the Mental Capacity Act (2005) in England and Wales: Recruitment of adults with capacity and communication difficulties. PLOS ONE 16:9, pages e0256697.
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Helena Hybbinette, Ellika Schalling, Jeanette Plantin, Catharina Nygren-Deboussard, Marika Schütz, Per Östberg & Påvel G. Lindberg. (2021) Recovery of Apraxia of Speech and Aphasia in Patients With Hand Motor Impairment After Stroke. Frontiers in Neurology 12.
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Madeleine Harrison, Rebecca Palmer & Cindy Cooper. (2020) Factors Associated With Adherence to Self-Managed Aphasia Therapy Practice on a Computer—A Mixed Methods Study Alongside a Randomized Controlled Trial. Frontiers in Neurology 11.
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Katerina Hilari, Nicholas Behn, Jane Marshall, Alan Simpson, Shirley Thomas, Sarah Northcott, Chris Flood, Sally McVicker, Mireia Jofre-Bonet, Becky Moss, Kirsty James & Kimberley Goldsmith. (2019) Adjustment with aphasia after stroke: study protocol for a pilot feasibility randomised controlled trial for SUpporting wellbeing through PEeR Befriending (SUPERB). Pilot and Feasibility Studies 5:1.
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Shirley A Thomas, Avril ER Drummond, Nadina B Lincoln, Rebecca L Palmer, Roshan das Nair, Nicholas R Latimer, Gemma L Hackney, Laura Mandefield, Stephen J Walters, Rachael D Hatton, Cindy L Cooper, Timothy F Chater, Timothy J England, Patrick Callaghan, Elizabeth Coates, Katie E Sutherland, Sarah Jacob Eshtan & Gogem Topcu. (2019) Behavioural activation therapy for post-stroke depression: the BEADS feasibility RCT. Health Technology Assessment 23:47, pages 1-176.
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Faye Wray, David Clarke & Anne Forster. (2019) How do stroke survivors with communication difficulties manage life after stroke in the first year? A qualitative study. International Journal of Language & Communication Disorders 54:5, pages 814-827.
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Rebecca Palmer, Munyaradzi Dimairo, Cindy Cooper, Pam Enderby, Marian Brady, Audrey Bowen, Nicholas Latimer, Steven Julious, Elizabeth Cross, Abualbishr Alshreef, Madeleine Harrison, Ellen Bradley, Helen Witts & Tim Chater. (2019) Self-managed, computerised speech and language therapy for patients with chronic aphasia post-stroke compared with usual care or attention control (Big CACTUS): a multicentre, single-blinded, randomised controlled trial. The Lancet Neurology 18:9, pages 821-833.
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Xu Wang, Connie Smith, Laura Ashley & Michael E. Hyland. (2019) Tailoring Self-Help Mindfulness and Relaxation Techniques for Stroke Survivors: Examining Preferences, Feasibility and Acceptability. Frontiers in Psychology 10.
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Lynne C. Brady Wagner. (2018) Ethical Framework of Supporting Medical Decision Making for Persons With Aphasia. Perspectives of the ASHA Special Interest Groups 3:2, pages 80-87.
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Margaret W. Leung, Lawrence E. Kaplan & James A. Bourgeois. 2018. Geriatric Psychiatry. Geriatric Psychiatry 671 690 .
Tony Ryan, Madeleine Harrison, Clare Gardiner & Amanda Jones. (2017) Challenges in building interpersonal care in organized hospital stroke units: The perspectives of stroke survivors, family caregivers and the multidisciplinary team. Journal of Advanced Nursing 73:10, pages 2351-2360.
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Rebecca Palmer, Helen Hughes & Tim Chater. (2017) What do people with aphasia want to be able to say? A content analysis of words identified as personally relevant by people with aphasia. PLOS ONE 12:3, pages e0174065.
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Shirley A. Thomas, Elizabeth Coates, Roshan das Nair, Nadina B. Lincoln, Cindy Cooper, Rebecca Palmer, Stephen J. Walters, Nicholas R. Latimer, Timothy J. England, Laura Mandefield, Timothy Chater, Patrick Callaghan & Avril E. R. Drummond. (2016) Behavioural Activation Therapy for Depression after Stroke (BEADS): a study protocol for a feasibility randomised controlled pilot trial of a psychological intervention for post-stroke depression. Pilot and Feasibility Studies 2:1.
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Rebecca Palmer, Cindy Cooper, Pam Enderby, Marian Brady, Steven Julious, Audrey Bowen & Nicholas Latimer. (2015) Clinical and cost effectiveness of computer treatment for aphasia post stroke (Big CACTUS): study protocol for a randomised controlled trial. Trials 16:1.
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