Advanced search
Publication Cover
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 15, 2014 - Issue 3-4
Submit an article Journal homepage
732
Views
25
CrossRef citations to date
0
Altmetric
Health Services

Health utility decreases with increasing clinical stage in amyotrophic lateral sclerosis

Ashley R. JonesDepartment of Clinical Neuroscience, Institute of Psychiatry, King's College London, London
,
Naheed JivrajDepartment of Clinical Neuroscience, Institute of Psychiatry, King's College London, London
,
Rubika BalendraDepartment of Clinical Neuroscience, Institute of Psychiatry, King's College London, London
,
Caroline MurphyKing's Clinical Trials Unit and King's Health Partners, King's College London, London
,
Joanna KellyKing's Clinical Trials Unit and King's Health Partners, King's College London, London
,
Marie ThornhillKing's Clinical Trials Unit and King's Health Partners, King's College London, London
,
Carolyn YoungWalton Centre for Neurology & Neurosurgery, Liverpool
,
Pamela J. ShawAcademic Neurology Unit, Sheffield Institute for Translational Neuroscience (SITraN), University of Sheffield
,
P. Nigel LeighDepartment of Clinical Neuroscience, Institute of Psychiatry, King's College London, London;Brighton and Sussex Medical School, Trafford Centre for Biomedical Research, University of Sussex, Sussex
,
Martin R. TurnerNuffield Department of Clinical Neurosciences, Oxford University, Oxford
,
I Nick SteenInstitute of Health and Safety, Newcastle University, Newcastle Upon Tyne, UK
,
Paul McCroneHealth Service and Population Research, Institute of Psychiatry, King's College London, London
&
Ammar Al-ChalabiDepartment of Clinical Neuroscience, Institute of Psychiatry, King's College London, LondonCorrespondence[email protected]
 show all
Pages 285-291 | Received 22 Aug 2013, Accepted 01 Dec 2013, Published online: 07 Feb 2014

Citations (25)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (10)

Rubika Balendra, Ashley R. Jones, Ahmad Al Khleifat, Theresa Chiwera, Paul Wicks, Carolyn A. Young, Pamela J. Shaw, Martin R. Turner, P. Nigel Leigh & Ammar Al-Chalabi. (2023) Comparison Of King’s Clinical Staging In Multinational Amyotrophic Lateral Sclerosis Cohorts. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 71-81.
Read now
Nicole Peters, Vanina Dal Bello-Haas, Tara Packham, Marvin Chum, Colleen O’Connell, Wendy S Johnston, Joy C MacDermid, John Turnbull, Jill Van Damme & Ayse Kuspinar. (2021) Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study. Patient Related Outcome Measures 12, pages 191-203.
Read now
Ahmad Al Khleifat, Rubika Balendra, Ton Fang & Ammar Al-Chalabi. (2021) Intuitive Staging Correlates With King’s Clinical Stage. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 336-340.
Read now
. (2019) Theme 1 Epidemiology and informatics. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:sup1, pages 101-113.
Read now
Carolyn Anne Young, John Ealing, Christopher McDermott, Tim Williams, Ammar Al-Chalabi, Tahir Majeed, Georgina Burke, Ashwin Pinto, David Dick, Kevin Talbot, Timothy Harrower, Jannette Walsh, Siddharthan Chandran, C. Oliver Hanemann, Roger Mills & Alan Tennant. (2019) The relationships between symptoms, disability, perceived health and quality of life in amyotrophic lateral sclerosis/motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:5-6, pages 317-327.
Read now
Rubika Balendra, Ahmad Al Khleifat, Ton Fang & Ammar Al-Chalabi. (2019) A standard operating procedure for King’s ALS clinical staging. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:3-4, pages 159-164.
Read now
. (2018) Theme 9 Clinical trials and trial design. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:sup1, pages 264-281.
Read now
Nimish J. Thakore, Brittany R. Lapin, Tyler G. Kinzy & Erik P. Pioro. (2018) Deconstructing progression of amyotrophic lateral sclerosis in stages: a Markov modeling approach. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:7-8, pages 483-494.
Read now
Francesca Trojsi, Gabriella Santangelo, Giuseppina Caiazzo, Mattia Siciliano, Teresa Ferrantino, Giovanni Piccirillo, Cinzia Femiano, Viviana Cristillo, Maria Rosaria Monsurrò, Fabrizio Esposito & Gioacchino Tedeschi. (2016) Neuropsychological assessment in different King's clinical stages of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 228-235.
Read now
Rubika Balendra, Ashley Jones, Naheed Jivraj, Catherine Knights, Catherine M. Ellis, Rachel Burman, Martin R. Turner, P. Nigel Leigh, Christopher E. Shaw & Ammar Al-Chalabi. (2014) Estimating clinical stage of amyotrophic lateral sclerosis from the ALS Functional Rating Scale. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 279-284.
Read now

Articles from other publishers (15)

Katie Stenson, Lasair O'Callaghan, Jennifer Mellor, Jack Wright, Gregor Gibson, Lucy Earl, Sophie Barlow & Christina Nicole Fournier. (2023) Healthcare resource utilization at different stages of amyotrophic lateral sclerosis: Results from a real-world survey. Journal of the Neurological Sciences 452, pages 120764.
Crossref
Sean W. Willemse, Kit C. B. Roes, Philip Van Damme, Orla Hardiman, Caroline Ingre, Monica Povedano, Naomi R. Wray, Marleen Gijzen, Mirjam S. de Pagter, Koen C. Demaegd, Annemarie F. C. Janse, Roel G. Vink, Boudewijn T. H. M. Sleutjes, Adriano Chiò, Philippe Corcia, Evy Reviers, Ammar Al-Chalabi, Matthew C. Kiernan, Leonard H. van den Berg, Michael A. van Es & Ruben P. A. van Eijk. (2022) Lithium carbonate in amyotrophic lateral sclerosis patients homozygous for the C-allele at SNP rs12608932 in UNC13A: protocol for a confirmatory, randomized, group-sequential, event-driven, double-blind, placebo-controlled trial. Trials 23:1.
Crossref
Qian-Qian Wei, Yanbing Hou, Yongping Chen, Ruwei Ou, Bei Cao, Lingyu Zhang, Tianmi Yang & Huifang Shang. (2021) Health-related quality of life in amyotrophic lateral sclerosis using EQ-5D-5L. Health and Quality of Life Outcomes 19:1.
Crossref
Nesreen Jaafar, Elia Malek, Helen Ismail & Johnny Salameh. (2021) Nonmotor Symptoms in Amyotrophic Lateral Sclerosis and Their Correlation With Disease Progression. Journal of Clinical Neuromuscular Disease 23:1, pages 1-6.
Crossref
Ammar Al-Chalabi, Adriano Chiò, Charlotte Merrill, Gerry Oster, Rebecca Bornheimer, Wendy Agnese & Stephen Apple. (2021) Clinical staging in amyotrophic lateral sclerosis: analysis of Edaravone Study 19. Journal of Neurology, Neurosurgery & Psychiatry 92:2, pages 165-171.
Crossref
Nicole Peters, Vanina Dal Bello-Haas, Tara Packham, Ava Mehdipour & Ayse Kuspinar. (2021) Psychometric Properties of Preference-Based Measures for Economic Evaluation in Amyotrophic Lateral Sclerosis: A Systematic Review. Neurology Research International 2021, pages 1-13.
Crossref
Ammar Al-ChalabiLeo M. A. HeunksZoltán Papp & Piero Pollesello. (2019) Potential of the Cardiovascular Drug Levosimendan in the Management of Amyotrophic Lateral Sclerosis: An Overview of a Working Hypothesis. Journal of Cardiovascular Pharmacology 74:5, pages 389-399.
Crossref
Alan Moore, Carolyn A. Young & Dyfrig A. Hughes. (2019) Health Utilities and Costs for Motor Neurone Disease. Value in Health 22:11, pages 1257-1265.
Crossref
P. Corcia, S. Beltran, G. Lautrette, S. Bakkouche & P. Couratier. (2019) Staging amyotrophic lateral sclerosis: A new focus on progression. Revue Neurologique 175:5, pages 277-282.
Crossref
Alan Moore, Carolyn A. Young & Dyfrig A. Hughes. (2018) Mapping ALSFRS-R and ALSUI to EQ-5D in Patients with Motor Neuron Disease. Value in Health 21:11, pages 1322-1329.
Crossref
Nerea Gallardo, María Arantzamendi & Ana Carvajal. (2018) Revisión narrativa sobre la calidad de vida relacionada con la salud en personas con esclerosis lateral amiotrófica. Medicina Paliativa 25:2, pages 105-113.
Crossref
Alan Moore, Carolyn A. Young & Dyfrig A. Hughes. (2016) Economic Studies in Motor Neurone Disease: A Systematic Methodological Review. PharmacoEconomics 35:4, pages 397-413.
Crossref
Ton Fang, Felix Jozsa & Ammar Al-Chalabi. 2017. Nonmotor Parkinson’s: The Hidden Face - Management and the Hidden Face of Related Disorders. Nonmotor Parkinson’s: The Hidden Face - Management and the Hidden Face of Related Disorders 1409 1441 .
Rubika Balendra & Rickie Patani. (2016) Quo vadis motor neuron disease?. World Journal of Methodology 6:1, pages 56.
Crossref
Alessia Pizzimenti, Maria Cristina Gori, Emanuela Onesti, Bev John & Maurizio Inghilleri. (2015) Communication of diagnosis in amyotrophic lateral sclerosis: stratification of patients for the estimation of the individual needs. Frontiers in Psychology 6.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.