732
Views
25
CrossRef citations to date
0
Altmetric
Health Services

Health utility decreases with increasing clinical stage in amyotrophic lateral sclerosis

, , , , , , , , , , , & show all
Pages 285-291 | Received 22 Aug 2013, Accepted 01 Dec 2013, Published online: 07 Feb 2014

References

  • Talbot K. Motor neuron disease: the bare essentials. Pract Neurol. 2009;9:303–9.
  • Veldink JH, Wokke JHJ, van der Wal G, Vianney de Jong JMB, van den Berg LH. Euthanasia and Physician-Assisted Suicide among Patients with Amyotrophic Lateral Sclerosis in the Netherlands. N Engl J Med. 2002;346:1638–44.
  • Johnston CA, Stanton BR, Turner MR, Gray R, Blunt AH, Butt D, et al. Amyotrophic lateral sclerosis in an urban setting: a population based study of inner city London. J Neurol. 2006;253:1642–3.
  • Zinman L, Cudkowicz M. Emerging targets and treatments in amyotrophic lateral sclerosis. The Lancet Neurol. 2011; 10:481–90.
  • NICE. Guide to the methods of technology appraisal.2008; June.
  • EuroQol. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy. 1990;16: 199–208.
  • Roche JC, Rojas-Garcia R, Scott KM, Scotton W, Ellis CE, Burman R, et al. A proposed staging system for amyotrophic lateral sclerosis. Brain. 2012;135:847–52.
  • Winter Y, Schepelmann K, Spottke A, Claus D, Grothe C, Schröder R, et al. Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy. J Neurol. 2010;257:1473–81.
  • UKMND-LiCALS GS. Lithium in patients with amyotrophic lateral sclerosis (LiCALS): a phase 3 multicentre, randomised, double-blind, placebo-controlled trial. Lancet Neurol. 2013;12:339–45.
  • Al-Chalabi A, Shaw P, Young C, Morrison K, Murphy C, Thornhill M, et al. Protocol for a double-blind randomised placebo-controlled trial of lithium carbonate in patients with amyotrophic Lateral Sclerosis (LiCALS) [Eudract number: 2008-006891-31]. BMC Neurol. 2011;11:111.
  • Dolan P, Stalmeier P. The validity of time trade-off values in calculating QALYs: constant proportional time trade-off versus the proportional heuristic. J Health Econ. 2003;22: 445–58.
  • Greiner W, Claes C, Busschbach JJV, Schulenburg JM. Validating the EQ-5D with time trade off for the German population. Eur J Health Econ. 2005;6:124–30.
  • Dolan P. Modelling valuations for health states: the effect of duration. Health policy. 1996;38:189–203.
  • Gibbons C, Mills R, Thornton E, Ealing J, Mitchell J, Shaw P, et al. Rasch analysis of the Hospital Anxiety and Depression Scale (HADS) for use in motor neurone disease Health Qual Life Outcomes. 2011;9:82.
  • Kiebert GM, Green C, Murphy C, Mitchell JD, O’Brien M, Burrell A, et al. Patients’ health-related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis. J Neurol Sci. 2001;191:87–93.
  • Norquist JM, Jenkinson C, Fitzpatrick R, Swash M. Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003;4:112–7.
  • Chiò A, Gauthier A, Montuschi A, Calvo A, Di Vito N, Ghiglione P, et al. A cross sectional study on determinants of quality of life in ALS. J Neurol Neurosurg Psychiatry. 2004;75:1597–601.
  • Jenkinson C, Fitzpatrick R, Swash M, Peto V. The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe. J Neurol. 2000; 247:835–40.
  • De Groot IJM, Post MWM, Heuveln Tv, Van den Berg LH, Lindeman E. Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:356–61.
  • Averill A, Kasarskis E, Segerstrom S. Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:243–54.
  • Dolan P. Using Happiness to Value Health. London, UK: Office of Health Economics. 2011 (Report No. 1).
  • Jensen MP, Abresch RT, Carter GT, McDonald CM. Chronic Pain in Persons With Neuromuscular Disease. Arch Phys Med Rehabil. 2005;86:1155–63.
  • Behari M, Srivastava AK, Pandey RM. Quality of life in patients with Parkinson’s disease. Parkinsonism Relat Disord. 2005;11:221–6.
  • Ho AK, Gilbert AS, Mason SL, Goodman AO, Barker RA. Health-related quality of life in Huntington’s disease: Which factors matter most?Mov Disord. 2009;24:574–8.
  • Oh H, Sin M-K, Schepp KG, Choi-Kwon S. Depressive Symptoms and Functional Impairment Among Amyotrophic Lateral Sclerosis Patients in South Korea. Rehabil Nurs. 2012;37:136–44.
  • Rabkin JG, Wagner GJ, Del Bene M. Resilience and Distress Among Amyotrophic Lateral Sclerosis Patients and Caregivers. Psychosom Med. 2000;62:271–9.
  • Lillo P, Mioshi E, Zoing MC, Kiernan MC, Hodges JR. How common are behavioural changes in amyotrophic lateral sclerosis?Amyotroph Lateral Scler. 2011;12:45–51.
  • Mendez MF, Perryman KM. Neuropsychiatric Features of Frontotemporal DementiaEvaluation of Consensus Criteria and Review. J Neuropsychiatry Clin Neurosci. 2002;14: 424–9.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.