764
Views
36
CrossRef citations to date
0
Altmetric
Cognition, Neuropsychology

Psychological as well as illness factors influence acceptance of non-invasive ventilation (NIV) and gastrostomy in amyotrophic lateral sclerosis (ALS): A prospective population study

, , , , , , , , , , , & show all
Pages 376-387 | Received 27 Oct 2013, Accepted 19 Jan 2014, Published online: 06 Mar 2014

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (9)

Carolyn Young, Susana Pinto, Julian Grosskreutz, Orla Hardiman, Lora L. Clawson, Merit E. Cudkowicz & Jinsy A. Andrews. (2022) Medical therapies for amyotrophic lateral sclerosis-related respiratory decline: an appraisal of needs, opportunities and obstacles. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:1-2, pages 66-75.
Read now
Rebecca Francis, Stacie Attrill & Sebastian Doeltgen. (2021) The impact of cognitive decline in amyotrophic lateral sclerosis on swallowing. A scoping review. International Journal of Speech-Language Pathology 23:6, pages 604-613.
Read now
Faith Hodgins, Sharon Mulhern & Sharon Abrahams. (2020) The clinical impact of the Edinburgh Cognitive and Behavioural ALS Screen (ECAS) and neuropsychological intervention in routine ALS care. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:1-2, pages 92-99.
Read now
Susan Kathryn Baxter, Maxine Johnson, Mark Clowes, David O’Brien, Paul Norman, Theocharis Stavroulakis, Stephen Bianchi, Mark Elliott, Christopher McDermott & Esther Hobson. (2019) Optimizing the noninvasive ventilation pathway for patients with amyotrophic lateral sclerosis/motor neuron disease: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:7-8, pages 461-472.
Read now
George H. Gorrie, Siddharthan Chandran, Shuna Colville, Judith Newton, Danielle Leighton, Menai Mcdonald, Suvankar Pal, Raeburn Forbes, Mario Hair & Robert Swingler. (2019) Improved survival and 30-day mortality after gastrostomy in Scottish motor neurone disease patients: evidence from a national retrospective cohort study using STROBE criteria. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:3-4, pages 165-171.
Read now
Geraldine Foley & Geralyn Hynes. (2018) Decision-making among patients and their family in ALS care: a review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 173-193.
Read now
Christopher Crockford, Judith Newton, Katie Lonergan, Caoifa Madden, Iain Mays, Meabhdh O’Sullivan, Emmet Costello, Marta Pinto-Grau, Alice Vajda, Mark Heverin, Niall Pender, Ammar Al-Chalabi, Orla Hardiman & Sharon Abrahams. (2018) Measuring reliable change in cognition using the Edinburgh Cognitive and Behavioural ALS Screen (ECAS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:1-2, pages 65-73.
Read now
Jürgen Keller, Amon Krimly, Lisa Bauer, Sarah Schulenburg, Sarah Böhm, Helena E. A. Aho-Özhan, Ingo Uttner, Martin Gorges, Jan Kassubek, Elmar H. Pinkhardt, Sharon Abrahams, Albert C. Ludolph & Dorothée Lulé. (2017) A first approach to a neuropsychological screening tool using eye-tracking for bedside cognitive testing based on the Edinburgh Cognitive and Behavioural ALS Screen. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:5-6, pages 443-450.
Read now
Dagmar Kettemann, Andreas Funke, André Maier, Simone Rosseau, Robert Meyer, Susanne Spittel, Christoph Münch & Thomas Meyer. (2017) Clinical characteristics and course of dying in patients with amyotrophic lateral sclerosis withdrawing from long-term ventilation. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:1-2, pages 53-59.
Read now

Articles from other publishers (27)

Rebecca Francis, Stacie Attrill, Ratko Radakovic & Sebastian Doeltgen. (2023) Exploring clinical management of cognitive and behavioural deficits in MND. A scoping review. Patient Education and Counseling 116, pages 107942.
Crossref
Anna Annunziata, Cecilia Calabrese, Francesca Simioli, Antonietta Coppola, Paola Pierucci, Domenica Francesca Mariniello & Giuseppe Fiorentino. (2023) Psychological Factors Influencing Adherence to NIV in Neuromuscular Patients Dependent on Non Invasive Mechanical Ventilation: Preliminary Results. Journal of Clinical Medicine 12:18, pages 5866.
Crossref
Sean White, Alicia O'Cathain, Vanessa Halliday, Liz Croot & Christopher J. McDermott. (2023) Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis. Health Expectations 26:4, pages 1418-1435.
Crossref
Sebastiano Mercadante & Lou'i Al-Husinat. (2023) Palliative Care in Amyotrophic Lateral Sclerosis. Journal of Pain and Symptom Management.
Crossref
Anna Annunziata, Antonietta Coppola, Francesca Simioli & Giuseppe Fiorentino. 2023. Noninvasive Mechanical Ventilation. Noninvasive Mechanical Ventilation 221 226 .
Munira Essat, Elizabeth Coates, Mark Clowes, Daniel Beever, Gemma Hackney, Sean White, Theocharis Stavroulakis, Vanessa Halliday & Christopher McDermott. (2022) Understanding the current nutritional management for people with amyotrophic lateral sclerosis - A mapping review. Clinical Nutrition ESPEN 49, pages 328-340.
Crossref
Anke Erdmann, Celia Spoden, Irene Hirschberg & Gerald Neitzke. (2021) The wish to die and hastening death in amyotrophic lateral sclerosis: A scoping review. BMJ Supportive & Palliative Care 11:3, pages 271-287.
Crossref
Emmet Costello, James Rooney, Marta Pinto-Grau, Tom Burke, Marwa Elamin, Peter Bede, Roisin McMackin, Stefan Dukic, Alice Vajda, Mark Heverin, Orla Hardiman & Niall Pender. (2021) Cognitive reserve in amyotrophic lateral sclerosis (ALS): a population-based longitudinal study. Journal of Neurology, Neurosurgery & Psychiatry 92:5, pages 460-465.
Crossref
Barbara Poletti, Laura Carelli, Christian Lunetta, Nicola Ticozzi & Vincenzo Silani. (2020) Advance care planning and mental capacity in ALS: a current challenge for an unsolved matter. Neurological Sciences 41:10, pages 2997-2998.
Crossref
Julie Labra, Anne Hogden, Emma Power, Natalie James & Victoria M Flood. (2020) Gastrostomy uptake in motor neurone disease: a mixed-methods study of patients’ decision making. BMJ Open 10:2, pages e034751.
Crossref
Camille Paynter, Madeline Cruice, Susan Mathers, Heidi Gregory & Adam P. Vogel. (2019) Communication and cognitive impairments and health care decision making in MND: A narrative review. Journal of Evaluation in Clinical Practice 25:6, pages 1182-1192.
Crossref
Linda Clare, Julia C. Teale, Gill Toms, Aleksandra Kudlicka, Isobel Evans, Sharon Abrahams, Laura H. Goldstein, John V. Hindle, Aileen K. Ho, Marjan Jahanshahi, Dawn Langdon, Robin Morris, Julie S. Snowden, Rhys Davies, Ivana Markova, Monica Busse & Jo Thompson-Coon. (2019) Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: A scoping review. NeuroRehabilitation 43:4, pages 443-471.
Crossref
David J. Oliver. (2019) Palliative care in motor neurone disease: where are we now?. Palliative Care: Research and Treatment 12, pages 117822421881391.
Crossref
Lorna Hollowood. (2018) Issues affecting people with motor neurone disease and their carers: a literature review. British Journal of Neuroscience Nursing 14:6, pages 278-284.
Crossref
Faith Hodgins, Steve Bell & Sharon Abrahams. (2018) Factors influencing implementation of cognitive and behavioural screening in motor neurone disease. British Journal of Neuroscience Nursing 14:3, pages 115-119.
Crossref
Ton Fang, Ahmad Al Khleifat, Jacques-Henri Meurgey, Ashley Jones, P Nigel Leigh, Gilbert Bensimon & Ammar Al-Chalabi. (2018) Stage at which riluzole treatment prolongs survival in patients with amyotrophic lateral sclerosis: a retrospective analysis of data from a dose-ranging study. The Lancet Neurology 17:5, pages 416-422.
Crossref
Christopher Crockford, Craig Stockton & Sharon Abrahams. (2017) Clinicians' attitudes towards cognitive and behavioural screening in motor neurone disease. British Journal of Neuroscience Nursing 13:3, pages 116-123.
Crossref
Samuel Maiser & Ezgi Tiryaki. (2017) Psychiatric Disease in Amyotrophic Lateral Sclerosis. Psychiatric Annals 47:5, pages 258-262.
Crossref
V. Danel-Brunaud, L. Touzet, L. Chevalier, C. Moreau, D. Devos, S. Vandoolaeghe & L. Defebvre. (2017) Ethical considerations and palliative care in patients with amyotrophic lateral sclerosis: A review. Revue Neurologique 173:5, pages 300-307.
Crossref
Timothy Benstead, Caitlin Jackson-Tarlton & Desmond Leddin. (2016) Nutrition with Gastrostomy Feeding Tubes for Amyotrophic Lateral Sclerosis in Canada. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 43:6, pages 796-800.
Crossref
Naomi H. Martin, Vanessa Lawrence, Joanna Murray, Anna Janssen, Irene Higginson, Rebecca Lyall, Rachel Burman, P. Nigel Leigh, Ammar Al-Chalabi & Laura H. Goldstein. (2015) Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis. Qualitative Health Research 26:10, pages 1366-1381.
Crossref
Christina Faull & David Oliver. (2016) Withdrawal of ventilation at the request of a patient with motor neurone disease: guidance for professionals: Table 1. BMJ Supportive & Palliative Care 6:2, pages 144-146.
Crossref
Sharpley Hsieh, Jashelle Caga, Felicity V. C. Leslie, Marlene Shibata, Naomi Daveson, David Foxe, Eleanor Ramsey, Patricia Lillo, Rebekah M. Ahmed, Emma Devenney, James R. Burrell, John R. Hodges, Matthew C. Kiernan & Eneida Mioshi. (2015) Cognitive and Behavioral Symptoms in ALSFTD. Journal of Geriatric Psychiatry and Neurology 29:1, pages 3-10.
Crossref
Alex H. Gifford. 2016. Noninvasive Mechanical Ventilation. Noninvasive Mechanical Ventilation 473 479 .
Jürgen Keller, Martin Gorges, Hannah T. Horn, Helena E. A. Aho-Özhan, Elmar H. Pinkhardt, Ingo Uttner, Jan Kassubek, Albert C. Ludolph & Dorothée Lulé. (2015) Eye-tracking controlled cognitive function tests in patients with amyotrophic lateral sclerosis: a controlled proof-of-principle study. Journal of Neurology 262:8, pages 1918-1926.
Crossref
Sheelah Connolly, Miriam Galvin & Orla Hardiman. (2015) End-of-life management in patients with amyotrophic lateral sclerosis. The Lancet Neurology 14:4, pages 435-442.
Crossref
L. P. Greenaway, N. H. Martin, V. Lawrence, A. Janssen, A. Al-Chalabi, P. N. Leigh & L. H. Goldstein. (2015) Accepting or declining non-invasive ventilation or gastrostomy in amyotrophic lateral sclerosis: patients’ perspectives. Journal of Neurology 262:4, pages 1002-1013.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.