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Anne Hogden, Geraldine Foley, Robert D Henderson, Natalie James & Samar M Aoun. (2017) Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. Journal of Multidisciplinary Healthcare 10, pages 205-215.
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Minne Bakker, Karen Schipper, Alexander C. Geurts & Tineke A. Abma. (2017) It’s not just physical: a qualitative study regarding the illness experiences of people with facioscapulohumeral muscular dystrophy. Disability and Rehabilitation 39:10, pages 978-986.
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Articles from other publishers (21)
Cindy Kruijthof, Marike E. de Boer, Anouk M. van Loon, Jonieke Bredewold & Loes van Dusseldorp. (2024) Experiences of Ambulatory Patients With Huntington's Disease With Case Management. Professional Case Management 29:1, pages 13-21.
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Anna Huynh, Kerry Adams, Carolina Barnett-Tapia, Sanjay Kalra, Lorne Zinman & Yana Yunusova. (2023) Accessing and Receiving Speech-Language Pathology Services at the Multidisciplinary Amyotrophic Lateral Sclerosis Clinic: An Exploratory Qualitative Study of Patient Experiences and Needs. Journal of Speech, Language, and Hearing Research, pages 1-13.
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Heather M. Young, Tina R. Kilaberia, Robin Whitney, Benjamin M. Link, Janice F. Bell, Orly Tonkikh, Jessica Famula & Björn Oskarsson. (2023)
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Elizabeth Coates, Nicolò Zarotti, Isobel Williams, Sean White, Vanessa Halliday, Daniel Beever, Gemma Hackney, Theocharis Stavroulakis, David White, Paul Norman & Christopher McDermott. (2021) Patient, carer and healthcare professional perspectives on increasing calorie intake in Amyotrophic Lateral Sclerosis. Chronic Illness 19:2, pages 368-382.
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Hakan Şevki AYVACI, Gürhan BEBEK & Selenay YAMAÇLI. (2023) Experiences of Pre-Service Science Teachers in “Teaching Practice” During the Covid-19 Pandemic. International e-Journal of Educational Studies 7:13, pages 134-152.
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Robert Klebbe, Stefan Scherzinger & Cornelia Eicher. (2022) Assistive Robots for Patients With Amyotrophic Lateral Sclerosis: Exploratory Task-Based Evaluation Study With an Early-Stage Demonstrator. JMIR Rehabilitation and Assistive Technologies 9:3, pages e35304.
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Katharina Linse, Elisa Aust, René Günther & Andreas Hermann. (2022) Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?. Journal of Clinical Medicine 11:1, pages 254.
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Manjusha G Warrier, Priya Treesa Thomas, Arun Sadasivan, Saraswati Nashi, Seena Vengalil & A. Nalini. (2022) Development of Guidelines for Spouses Engaged in Home-Based Care of Persons With Motor Neuron Disease From Indian Context. Journal of Patient Experience 9, pages 237437352210775.
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Giulia D’Alvano, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Luigi Lavorgna, Gioacchino Tedeschi, Mattia Siciliano & Francesca Trojsi. (2021) Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic. Brain Sciences 12:1, pages 49.
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Melike DURMAZ, Şerife KURŞUN, Keziban ÖZTÜRK & Sevgi GÜR. (2021) Perioperatif Süreçte Hipotermi Açısından İncelenen Hastaların Konfor Durumlarına İlişkin Deneyimleri: Fenomenolojik Bir Çalışma ÖrneğiThe Experiences of the Patients Interested for Hypothermia in the Perioperative Process Regarding the Comfort Status: A Phenomenological Study Example. Bandırma Onyedi Eylül Üniversitesi Sağlık Bilimleri ve Araştırmaları Dergisi 3:3, pages 157-167.
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Daniel Fürstenau, Stefan Klein, Amyn Vogel & Carolin Auschra. (2021) Multi-sided platform and data-driven care research. Electronic Markets 31:4, pages 811-828.
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Sonia Cardoso, Pierre Meneton, Xavier Aimé, Vincent Meininger, David Grabli, Gilles Guezennec & Jean Charlet. (2021) Use of a modular ontology and a semantic annotation tool to describe the care pathway of patients with amyotrophic lateral sclerosis in a coordination network. PLOS ONE 16:1, pages e0244604.
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Kate Flemming, Victoria Turner, Samantha Bolsher, Bill Hulme, Elizabeth McHugh & Ian Watt. (2020) The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliative Medicine 34:6, pages 708-730.
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Joy Read, Sarah Cable, Charlotte Löfqvist, Susanne Iwarsson, Gergely Bartl & Anette Schrag. (2019) Experiences of health services and unmet care needs of people with late-stage Parkinson’s in England: A qualitative study. PLOS ONE 14:12, pages e0226916.
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Cornelia Eicher, Jörn Kiselev, Kirsten Brukamp, Diana Kiemel, Susanne Spittel, André Maier, Thomas Meyer, Ursula Oleimeulen & Marius Greuèl. (2019) Experiences with assistive technologies and devices (ATD) in patients with amyotrophic lateral sclerosis (ALS) and their caregivers. Technology and Disability 31:4, pages 203-215.
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Helen Aret Brewah. (2019) A qualitative study of the preparedness of practitioners to care for people with motor neurone disease in their homes. Primary Health Care 29:5, pages 38-44.
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J.Y. Joo & M.F. Liu. (2018) Experiences of case management with chronic illnesses: a qualitative systematic review. International Nursing Review 65:1, pages 102-113.
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Anna Marconi. (2017) Psychological Intervention in Amyotrophic Lateral Sclerosis: Suggestions for Clinical Practice. Journal of Psychology & Clinical Psychiatry 8:2.
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Jerôme Jean Jacques van Dongen, Maarten de Wit, Hester Wilhelmina Henrica Smeets, Esther Stoffers, Marloes Amantia van Bokhoven & Ramon Daniëls. (2017) “They Are Talking About Me, but Not with Me”: A Focus Group Study to Explore the Patient Perspective on Interprofessional Team Meetings in Primary Care. The Patient - Patient-Centered Outcomes Research 10:4, pages 429-438.
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Sverre Vigeland Lerum, Kari Nyheim Solbraekke & Jan C. Frich. (2017) Healthcare professionals’ accounts of challenges in managing motor neurone disease in primary healthcare: a qualitative study. Health & Social Care in the Community 25:4, pages 1355-1363.
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Huub Creemers, Sandra de Morée, Jan H Veldink, Frans Nollet, Leonard H van den Berg & Anita Beelen. (2016) Factors related to caregiver strain in ALS: a longitudinal study. Journal of Neurology, Neurosurgery & Psychiatry 87:7, pages 775-781.
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