Citations (32)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (4)
Samar M. Aoun, Paul A. Cafarella, Bruce Rumbold, Geoff Thomas, Anne Hogden, Leanne Jiang, Sonia Gregory & David W. Kissane. (2021) Who cares for the bereaved? A national survey of family caregivers of people with motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 12-22.
Read now
Read now
Samar M Aoun, David W Kissane, Paul A. Cafarella, Bruce Rumbold, Anne Hogden, Leanne Jiang & Natasha Bear. (2020) Grief, depression, and anxiety in bereaved caregivers of people with motor neurone disease: a population-based national study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 593-605.
Read now
Read now
Sylvie Lambert, Thomas Bellamy & Afaf Girgis. (2018) Routine assessment of unmet needs in individuals with advanced cancer and their caregivers: A qualitative study of the palliative care needs assessment tool (PC-NAT). Journal of Psychosocial Oncology 36:1, pages 82-96.
Read now
Read now
Anne Hogden, Geraldine Foley, Robert D Henderson, Natalie James & Samar M Aoun. (2017) Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. Journal of Multidisciplinary Healthcare 10, pages 205-215.
Read now
Read now
Articles from other publishers (28)
Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2023)
What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the
ALS
Talk Project
. Muscle & Nerve 68:3, pages 286-295.
Crossref
Crossref
Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2022) Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis. BMC Neurology 22:1.
Crossref
Crossref
V.M. Leavitt, A.M. Kever, S.M. Weinstein, R.T. Shinohara, H. Schmidt, S.M. Aoun, A. Solari & A.J. Solomon. (2022) Diagnosis concealment is prevalent in MS, and associated with diagnosis experience. Multiple Sclerosis and Related Disorders 68, pages 104373.
Crossref
Crossref
Sara Alquati, Luca Ghirotto, Ludovica De Panfilis, Cristina Autelitano, Elisabetta Bertocchi, Giovanna Artioli, Francesca Sireci, Silvia Tanzi & Simona Sacchi. (2022) Negotiating the Beginning of Care: A Grounded Theory Study of Health Services for Amyotrophic Lateral Sclerosis. Brain Sciences 12:12, pages 1623.
Crossref
Crossref
Isabella Araujo Mota Fernandes, Renata Oliveira Almeida Menezes & Guilhermina Rego. (2022) EMPATIA: A Guide for Communicating the Diagnosis of Neuromuscular Diseases. International Journal of Environmental Research and Public Health 19:16, pages 9792.
Crossref
Crossref
Lauren J. Breen, Taha Huseini, Anne Same, Carolyn J. Peddle-McIntyre & Y.C. Gary Lee. (2022) Living with mesothelioma: A systematic review of patient and caregiver psychosocial support needs. Patient Education and Counseling 105:7, pages 1904-1916.
Crossref
Crossref
Takehisa Hirayama, Yuishin Izumi, Yuki Nakayama, Mari Shibukawa, Satoru Ebihara & Osamu Kano. (2021) Communicating the diagnosis: a survey of patients with amyotrophic lateral sclerosis and their families in Japan. Acta Neurologica Belgica 122:2, pages 471-478.
Crossref
Crossref
Wesleigh F. EdwardsSahana MalikJonathan PetersIvy ChippendaleJohn Ravits. (2021) Delivering Bad News in Amyotrophic Lateral Sclerosis. Neurology Clinical Practice 11:6, pages 521-526.
Crossref
Crossref
Eleftherios Anestis, Fiona J. R. Eccles, Ian Fletcher & Jane Simpson. (2021) Neurologists’ current practice and perspectives on communicating the diagnosis of a motor neurodegenerative condition: a UK survey. BMC Neurology 21:1.
Crossref
Crossref
Shelagh K. Genuis, Westerly Luth, Sandra Campbell, Tania Bubela & Wendy S. Johnston. (2021) Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Frontiers in Neurology 12.
Crossref
Crossref
Winston ChiongAmy Y. TsouZachary SimmonsRichard J. BonnieJames A. RussellKatharina M. Busl, Robin A. Conwit, Salvador Cruz-Flores, Leon G. Epstein, William D. Graf, Matthew Kirschen, Julie A. Kurek, Daniel G. Larriviere, Ariane Lewis, Justin A. Sattin, Ericka P. Simpson, Lynne P. Taylor & Laura Vernon. (2021) Ethical Considerations in Dementia Diagnosis and Care. Neurology 97:2, pages 80-89.
Crossref
Crossref
Eleftherios Anestis, Fiona Eccles, Ian Fletcher, Maddy French & Jane Simpson. (2020) Giving and receiving a diagnosis of a progressive neurological condition: A scoping review of doctors’ and patients’ perspectives. Patient Education and Counseling 103:9, pages 1709-1723.
Crossref
Crossref
Anne Hogden, Camille Paynter & Karen Hutchinson. (2020) How can we improve patient-centered care of motor neuron disease?. Neurodegenerative Disease Management 10:2, pages 91-97.
Crossref
Crossref
Lauren J. Breen & Samar M. Aoun. 2020. Neurologic and Neurodegenerative Diseases of the Larynx. Neurologic and Neurodegenerative Diseases of the Larynx
277
284
.
Antje A. Seeber, A. Jeannette Pols, Albert Hijdra, Hepke F. Grupstra, Dick L. Willems & Marianne de Visser. (2019) Advance care planning in progressive neurological diseases: lessons from ALS. BMC Palliative Care 18:1.
Crossref
Crossref
Catherine Lamouille-Chevalier, Julie Toporski, Alina Pop, Nathalie Tilly, Thérèse Rivasseau-Jonveaux, Gaëlle Guyon, Agata Zielinski & Frédérique Claudot. (2019) Sclérose Latérale Amyotrophique ou comment penser et dire l’impensable. Revue internationale de soins palliatifs Vol. 33:4, pages 171-175.
Crossref
Crossref
Hannah A. W. Walter, Antje A. Seeber, Dick L. Willems & Marianne de Visser. (2019) The Role of Palliative Care in Chronic Progressive Neurological Diseases—A Survey Amongst Neurologists in the Netherlands. Frontiers in Neurology 9.
Crossref
Crossref
David J. Oliver. (2019) Palliative care in motor neurone disease: where are we now?. Palliative Care: Research and Treatment 12, pages 117822421881391.
Crossref
Crossref
Toni L. Glover & Benzi M. Kluger. 2019. Geriatric Neurology. Geriatric Neurology
545
561
.
Laila Andoni, Wendy L. Hobson, John C. Carey & Karin M. Dent. (2018) Training Methods for Delivering Difficult News in Genetic Counseling and Genetics Residency Training Programs. Journal of Genetic Counseling 27:6, pages 1497-1505.
Crossref
Crossref
Anne Hogden, Samar M. Aoun & Peter L. Silbert. (2018) Palliative Care in Neurology: Integrating a Palliative Approach to Amyotrophic Lateral Sclerosis Care. EMJ Neurology, pages 68-76.
Crossref
Crossref
Margaret O'Connor, Samar M. Aoun & Lauren J. Breen. (2018) Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease-“Our life has changed forever”. Health & Social Care in the Community 26:3, pages e415-e421.
Crossref
Crossref
Hiroshi Mitsumoto. (2018) What if you knew the prognosis of your patients with ALS?. The Lancet Neurology 17:5, pages 386-388.
Crossref
Crossref
Samar M. Aoun, Mary R. O'Brien, Lauren J. Breen & Margaret O'Connor. (2018) ‘The shock of diagnosis’: Qualitative accounts from people with Motor Neurone Disease reflecting the need for more person-centred care. Journal of the Neurological Sciences 387, pages 80-84.
Crossref
Crossref
Rinat Gold & Azgad Gold. (2018) Delivering Bad News: Attitudes, Feelings, and Practice Characteristics Among Speech-Language Pathologists. American Journal of Speech-Language Pathology 27:1, pages 108-122.
Crossref
Crossref
Orla Hardiman, Ammar Al-Chalabi, Adriano Chio, Emma M. Corr, Giancarlo Logroscino, Wim Robberecht, Pamela J. Shaw, Zachary Simmons & Leonard H. van den Berg. (2017) Amyotrophic lateral sclerosis. Nature Reviews Disease Primers 3:1.
Crossref
Crossref
Samar M Aoun, Lauren J Breen, David Oliver, Robert D Henderson, Robert Edis, Margaret O'Connor, Denise Howting, Rodney Harris & Carol Birks. (2017) Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey. Journal of the Neurological Sciences 372, pages 144-151.
Crossref
Crossref
Samar M. Aoun, Lauren J. Breen, Robert Edis, Robert D. Henderson, David Oliver, Rodney Harris, Denise Howting, Margaret O'Connor & Carol Birks. (2016) Breaking the news of a diagnosis of motor neurone disease: A national survey of neurologists' perspectives. Journal of the Neurological Sciences 367, pages 368-374.
Crossref
Crossref