Expert Opinion on Orphan Drugs
Volume 11, 2023 - Issue 1
Open access
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Perspective
Real world data for rare diseases research: The beginner’s guide to registries
Federica Pisaa Bayer AG, Berlin, GermanyView further author information
, Ariel Ariasb Faculty of Pharmacy, Université de Montreal, Montreal, QC, CanadaView further author information
, Emily Brattonc IQVIA, Durham, NC, USA;d University of North Carolina, Chapel Hill, USAView further author information
, Maribel Salase Daiichi Sankyo Inc and University of Pennsylvania, Bernards, NJ, USAView further author information
& Janet Sultanaf Exeter College of Medicine and Health, University of Exeter, Exeter, UKCorrespondence[email protected]
View further author information
View further author information
Pages 9-15
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Received 10 May 2023, Accepted 17 Jul 2023, Published online: 01 Aug 2023
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