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Expert Opinion on Orphan Drugs Volume 11, 2023 - Issue 1
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Real world data for rare diseases research: The beginner’s guide to registries

Federica Pisaa Bayer AG, Berlin, GermanyView further author information
,
Ariel Ariasb Faculty of Pharmacy, Université de Montreal, Montreal, QC, CanadaView further author information
,
Emily Brattonc IQVIA, Durham, NC, USA;d University of North Carolina, Chapel Hill, USAView further author information
,
Maribel Salase Daiichi Sankyo Inc and University of Pennsylvania, Bernards, NJ, USAView further author information
&
Janet Sultanaf Exeter College of Medicine and Health, University of Exeter, Exeter, UKCorrespondence[email protected]
View further author information
Pages 9-15 | Received 10 May 2023, Accepted 17 Jul 2023, Published online: 01 Aug 2023

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