The burden experienced by Brazilian family members affected by their relatives’ alcohol or drug misuse

Abstract

Purpose: There is a virtual absence of previous research about the experiences of people affected by the presence of a substance misuser in the family in Brazil.

Materials and methods: A diverse sample of 3158 (80.6% female) affected family members (AFMs) was recruited in the largest cities in all five Brazilian regions. A Brazilian Portuguese translation of a set of standard measures for the assessment of AFM stress, strain, coping, hopefulness and total family burden, based on the stress–strain–coping–support (SSCS) model, was employed.

Results: Mothers and wives reported the greatest burden. Burden was also related to a number of other demographic and background variables, notably being higher for AFMs of lower socio-economic status and for those whose substance misusing relatives were currently receiving hospital treatment. Results offer some support for additive and moderation coping hypotheses, suggesting that greater engaged and tolerant-inactive coping add to stressful impact in the prediction of symptoms, and that lower engaged and tolerant-inactive coping in the face of relatively high stressful impact may be particularly useful in reducing symptom levels.

Conclusions: This is the first national sample of AFMs to be studied in Brazil and the largest to have been reported from any country. The results should help build an emerging picture of how AFMs are affected and assist in planning services for AFMs.

Keywords:

• Affected family members
• substance using relative
• characteristics
• family burden

Note: It should be noted that Cop-With, as scored for the present analysis, unlike in earlier reports (Orford, Templeton, et al., 2005), is based only on six positively worded items, excluding two reversed-scored items.

Disclosure statement

No potential conflict of interest was reported by the authors.

Funding

This work was supported by the National Council for Scientific and Technological Development (CNPq) [grant number 550023/2011-9] and São Paulo Research Foundation (FAPESP) [grant number 57714-7].