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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 25, 2024 - Issue 3-4
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Meeting Report

The ALSFRS-R Summit: a global call to action on the use of the ALSFRS-R in ALS clinical trials

Angela Genge1 Montreal Neurological Institute-Hospital, ALS Center of Excellence, Montreal, Quebec, CanadaCorrespondence[email protected]
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Jesse M. Cedarbaum2 Yale School of Medicine, Section of Movement Disorders, Coeruleus Clinical Sciences LLC, Woodbridge, CT, USAView further author information
,
Jeremy Shefner3 Barrow Neurological Institute, Phoenix, AZ, USAView further author information
,
Adriano Chio4 Department of Neuroscience, University of Turin, Torino, ItalyView further author information
,
Ammar Al-Chalabi5 Department of Basic and Clinical Neuroscience, King’s College London, Institute of Psychiatry Psychology and Neuroscience, Maurice Wohl Clinical Neuroscience Institute, London, UKView further author information
,
Philip Van Damme6 Department of Neurology, KU Leuven, Leuven, BelgiumView further author information
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Chris McDermott7 Department of Neurology, The University of Sheffield, Sheffield, UKORCID Iconhttps://orcid.org/0000-0002-1269-9053View further author information
ORCID Icon,
Jonathan Glass8 Department of Neurology, Emory University, Atlanta, GA, USAView further author information
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James Berry9 Massachusetts General Hospital, Neurology, Boston, MA, USAView further author information
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Ruben P.A. van Eijk10 Department of Neurology and Biostatistics, UMC Utrecht Hersencentrum Rudolf Magnus, Utrecht, NetherlandsORCID Iconhttps://orcid.org/0000-0002-7132-5967View further author information
ORCID Icon,
Christina Fournier8 Department of Neurology, Emory University, Atlanta, GA, USAView further author information
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Julian Grosskreutz11 Precision Neurology of Neuromuscular and Motoneuron Diseases, University of Lübeck, Lübeck, GermanyView further author information
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Jinsy Andrews12 Columbia Presbyterian Medical Center, Neurology, New York, NY, USAView further author information
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Vanessa Bertone13 Montreal Neurological Institute and Hospital, McGill University, Montreal, QC, CanadaView further author information
,
Tommy M Bunte14 Department of Neurology, UMC Utrecht Hersencentrum Rudolf Magnus, Utrecht, NetherlandsView further author information
,
Mathias Couillard13 Montreal Neurological Institute and Hospital, McGill University, Montreal, QC, CanadaView further author information
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Cathy Cummings15 International Alliance of ALS/MND Associations, Northampton, Northamptonshire, UK, andView further author information
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Gale Kittle3 Barrow Neurological Institute, Phoenix, AZ, USAView further author information
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John Polzer16 QurAlis, Cambridge, MA, USAView further author information
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Kristiana Salmon16 QurAlis, Cambridge, MA, USAView further author information
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Corey Straub16 QurAlis, Cambridge, MA, USAView further author information
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Leonard H. van den Berg14 Department of Neurology, UMC Utrecht Hersencentrum Rudolf Magnus, Utrecht, NetherlandsView further author information
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Pages 382-387 | Received 14 Dec 2023, Accepted 12 Feb 2024, Published online: 23 Feb 2024

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