Patient Preference and Adherence
Volume 14, 2020 - Issue
Original Research
Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©)
Karen Kaiser1 Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USACorrespondence[email protected]
https://orcid.org/0000-0002-6550-5240
https://orcid.org/0000-0002-6550-5240, Susan E Yount1 Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USAhttps://orcid.org/0000-0003-2940-2073
https://orcid.org/0000-0003-2940-2073, , Kimberly A Webster1 Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USAhttps://orcid.org/0000-0003-1495-1459
https://orcid.org/0000-0003-1495-1459, , , John Devin Peipert1 Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USAhttps://orcid.org/0000-0001-5762-7881
https://orcid.org/0000-0001-5762-7881, , , Bonnie M K Donato2 Alexion Pharmaceuticals Inc, Boston, MA, USAhttps://orcid.org/0000-0001-5099-2456
https://orcid.org/0000-0001-5099-2456, & show all