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Research Article

Caring burden and quality of life among the caregivers of people living with dementia – a cross-sectional study in Udupi district of Karnataka

, M.Sc., , MBBS, MD, , Ph D, , PhD, , MBBS, DNB, DPM, , PhD, , PhD, , PhD & , PhD show all

References

  • Andreakou, M. I., Papadopoulos, A. A., Panagiotakos, D. B., & Niakas, D. (2016). Assessment of health-related quality of life for caregivers of Alzheimer’s disease patients. International Journal of Alzheimer’s Disease, 2016, 1–7. doi:10.1155/2016/9213968
  • Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228. National Library of Medicine. doi:10.31887/DCNS.2009.11.2/hbrodaty
  • Brodaty, H., & Hadzi-Pavlovic, D. (1990). Psychosocial effects on carers of living with persons with dementia. Australian & New Zealand Journal of Psychiatry, 24(3), 351–361. doi:10.3109/00048679009077702
  • CDC. (2023, September 20). CDC’s Alzheimer’s disease and healthy aging program. Centers for disease Control and Prevention. https://www.cdc.gov/aging/index.html#:~:text=Alzheimer
  • Chen, Y.-J., Su, J.-A., Chen, J.-S., Liu, C., Griffiths, M. D. … Lin, C.-Y. (2023). Examining the association between neuropsychiatric symptoms among people with dementia and caregiver mental health: Are caregiver burden and affiliate stigma mediators? BMC Geriatrics, 23(1). doi:10.1186/s12877-023-03735-2
  • Chiari, A., Pistoresi, B., Galli, C., Tondelli, M., Vinceti, G. … Zamboni, G. (2021). Determinants of Caregiver Burden in Early-Onset Dementia. Dementia and Geriatric Cognitive Disorders Extra, 11(2), 189–197. doi:10.1159/000516585
  • Conrad, I., Alltag, S., Matschinger, H., Kilian, R., & Riedel-Heller, S. G. (2018). Quality of life among older informal caregivers of people with dementia. Der Nervenarzt, 89(5), 500–508. doi:10.1007/s00115-018-0510-8
  • Duggleby, W., Williams, A., Ghosh, S., Moquin, H., Ploeg, J., Markle-Reid, M., & Peacock, S. (2016). Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. Health and Quality of Life Outcomes, 14(1). doi:10.1186/s12955-016-0486-7
  • Etters, L., Goodall, D., & Harrison, B. E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20(8), 423–428. doi:10.1111/j.1745-7599.2008.00342.x
  • Garzón-Maldonado, F. J., Gutiérrez-Bedmar, M., García-Casares, N., Pérez-Errázquin, F., Gallardo-Tur, A., & Torres, M. M. V. (2017). Health-related quality of life in caregivers of patients with Alzheimer disease. Neurología (English Edition), 32(8), 508–515. doi:10.1016/j.nrleng.2016.02.011
  • Hazzan, A. A., Dauenhauer, J., Follansbee, P., Hazzan, J. O., Allen, K., & Omobepade, I. (2022). Family caregiver quality of life and the care provided to older people living with dementia: Qualitative analyses of caregiver interviews. BMC Geriatrics, 22(1). doi:10.1186/s12877-022-02787-0
  • Herat-Gunaratne, R., Cooper, C., Mukadam, N., Rapaport, P., Leverton, M. … Bowers, B. J. (2019). “In the Bengali vocabulary, there is no such word as care home”: Caring experiences of UK Bangladeshi and Indian family carers of people living with dementia at home. The Gerontologist, 60(2). doi:10.1093/geront/gnz120
  • Hu, Y. L., Chang, C. C., Lee, C. H., Liu, C. H., Chen, Y. J., Su, J. A., … Griffiths, M. D. (2023). Associations between affiliate stigma and quality of life among caregivers of individuals with dementia: Mediated roles of caregiving burden and psychological distress. Asian Journal of Social Health and Behavior, 6(2), 64.
  • Huang, W. C., Chang, M. C., Wang, W. F., & Jhang, K. M. (2022). A comparison of caregiver burden for different types of dementia: An 18-month retrospective cohort study. Frontiers in Psychology, 12, 798315. doi:10.3389/fpsyg.2021.798315
  • Karg, N., Graessel, E., Randzio, O., & Pendergrass, A. (2018). Dementia as a predictor of care-related quality of life in informal caregivers: A cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers. BMC Geriatrics, 18(1). doi:10.1186/s12877-018-0885-1
  • Kim, H., Chang, M., Rose, K., & Kim, S. (2011). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68(4), 846–855. doi:10.1111/j.1365-2648.2011.05787.x
  • Lin, C. Y., Hwang, J. S., Wang, W. C., Lai, W.-W., Su, W. C. … Wang, J.-D. (2019). Psychometric evaluation of the WHOQOL-BREF, Taiwan version, across five kinds of Taiwanese cancer survivors: Rasch analysis and confirmatory factor analysis. Journal of the Formosan Medical Association, 118(1), 215–222. doi:10.1016/j.jfma.2018.03.018
  • Lin, C.-Y., Ku, L.-J. E., & Pakpour, A. H. (2017). Measurement invariance across educational levels and gender in 12-item Zarit Burden Interview (ZBI) on caregivers of people with dementia. International Psychogeriatrics, 29(11), 1841–1848. doi:10.1017/s1041610217001417
  • Lin, C.-Y., Li, Y.-P., Lin, S.-I., & Chen, C.-H. (2016). Measurement equivalence across gender and education in the WHOQOL-BREF for community-dwelling elderly Taiwanese. International Psychogeriatrics, 28(8), 1375–1382. doi:10.1017/s1041610216000594
  • Lin, C.-Y., Shih, P.-Y., & Ku, L.-J. E. (2019). Activities of daily living function and neuropsychiatric symptoms of people with dementia and caregiver burden: The mediating role of caregiving hours. Archives of Gerontology and Geriatrics, 81, 25–30. doi:10.1016/j.archger.2018.11.009
  • Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438–445. doi:10.1016/j.ijnss.2020.07.012
  • Liu, Z., Sun, W., Chen, H., Zhuang, J., Wu, B. … Yin, Y. (2022). Caregiver burden and its associated factors among family caregivers of persons with dementia in Shanghai, China: A cross-sectional study. British Medical Journal Open, 12(5), e057817. doi:10.1136/bmjopen-2021-057817
  • Mondal, S., Tandon, R., & Dasgupta, J. (2021). An exploratory study of caregiver burden amongst urban upper class adults in India during COVID‐19. Alzheimer’s & Dementia, 17(S7). doi:10.1002/alz.052800
  • Otobe, Y., Kimura, Y., Suzuki, M., Koyama, S., Kojima, I., & Yamada, M. (2022). Factors associated with increased caregiver burden of informal caregivers during the COVID-19 pandemic in Japan. The Journal of Nutrition, Health & Aging, 26(2), 157–160. doi:10.1007/s12603-022-1730-y
  • Romero-Mas, M., Ramon-Aribau, A., de Souza, D. L. B., Cox, A. M., & Gómez-Zúñiga, B. (2021). Improving the quality of life of family caregivers of people with Alzheimer’s disease through virtual communities of practice: A quasiexperimental study. International Journal of Alzheimer’s Disease, 2021, 1–10. doi:10.1155/2021/8817491
  • Seidel, D., & Thyrian, J. R. (2019). Burden of caring for people with dementia – comparing family caregivers and professional caregivers. A descriptive study. Journal of Multidisciplinary Healthcare, 12, 655–663. doi:10.2147/jmdh.s209106
  • Settineri, S., Rizzo, A., Liotta, M., & Mento, C. (2014). Caregiver’s burden and quality of life: Caring for physical and mental illness. International Journal of Psychological Research, 7(1), 30–39. doi:10.21500/20112084.665
  • Su, J.-A., Chang, C.-C., Wang, H.-M., Chen, K.-J., Yang, Y.-H., & Lin, C.-Y. (2019). Antidepressant treatment and mortality risk in patients with dementia and depression: A nationwide population cohort study in Taiwan. Therapeutic Advances in Chronic Disease, 10, 204062231985371. doi:10.1177/2040622319853719
  • Su, J.-A., Chang, C.-C., Yang, Y.-H., Chen, K.-J., Li, Y.-P., & Lin, C.-Y. (2020). Risk of incident dementia in late-life depression treated with antidepressants: A nationwide population cohort study. Journal of Psychopharmacology, 34(10), 1134–1142. doi:10.1177/0269881120944152
  • Tripathi, R., Srivastava, G., Tiwari, S., Singh, B., & Tripathi, S. (2016). Caregiver burden and quality of life of key caregivers of patients with dementia. Indian Journal of Psychological Medicine, 38(2), 133. doi:10.4103/0253-7176.178779
  • Tsai, C.-F., Huang, M.-H., Lee, J.-J., Jhang, K.-M., Huang, L.-C. … Fuh, J.-L. (2022). Factors associated with burden among male caregivers for people with dementia. Journal of the Chinese Medical Association, 85(4), 462–468. doi:10.1097/jcma.0000000000000704
  • Tsai, C.-F., Hwang, W.-S., Lee, J.-J., Wang, W.-F., Huang, L.-C. … Fuh, J.-L. (2021). Predictors of caregiver burden in aged caregivers of demented older patients. BMC Geriatrics, 21(1). doi:10.1186/s12877-021-02007-1
  • Tulek, Z., Baykal, D., Erturk, S., Bilgic, B., Hanagasi, H., & Gurvit, I. H. (2020). Caregiver burden, quality of life and related factors in family caregivers of dementia patients in Turkey. Issues in Mental Health Nursing, 41(8), 741–749. doi:10.1080/01612840.2019.1705945
  • Vellone, E., Piras, G., Talucci, C., & Cohen, M. Z. (2008). Quality of life for caregivers of people with Alzheimer’s disease. Journal of Advanced Nursing, 61(2), 222–231. doi:10.1111/j.1365-2648.2007.04494.x
  • Vun, I. J., Cheah, W. L., & Helmy, H. (2020). Quality of life and its associated factors among caregivers of patients with dementia–A crosssectional study in Kuching, Sarawak, Malaysia. Neurology Asia, 25(2), 165–172.
  • World Health Organization. (2023, March 15). Dementia. World Health Organization. https://www.who.int/news-room/fact-sheets/detail/dementia
  • Zacharopoulou, G., Zacharopoulou, V., & Lazakidou, A. (2015). Quality of life for caregivers of elderly patients with dementia and measurement tools: A review. International Journal of Health Research and Innovation, 3(1), 2051–5065. https://www.scienpress.com/Upload/IJHRI/Vol%203_1_4.pdf
  • Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. doi:10.1093/geront/20.6.649
  • Zwerling, J., Cohen, J. A., & Verghese, J. (2016). Dementia and caregiver stress. Neurodegenerative Disease Management, 6(2), 69–72. doi:10.2217/nmt-2015-0007