628
Views
9
CrossRef citations to date
0
Altmetric
Articles

Self-Care Trajectories and Reference Percentiles for Children with Cerebral Palsy

, , , &
Pages 62-78 | Received 26 Dec 2018, Accepted 05 Jul 2019, Published online: 18 Jul 2019

References

  • Alghmadi, M. S., Chiarello, L. A., Palisano, R. J., & McCoy, S. W. (2017). Understanding participation of children with cerebral palsy in family and recreational activities. Research in Developmental Disabilities, 69, 96–104. doi:10.1016/j.ridd.2017.07.006
  • Bartlett, D. J., Chiarello, L. A., Palisano, R. J., Westcott McCoy, S., Jeffries, L., Laforme Fiss, A., & Wilk, P. (2014). Determinants of self-care participation of young children with cerebral palsy. Developmental Neurorehabilitation, 17(6), 403–413. doi:10.3109/17518423.2014.897398
  • Bartlett, D. J., Chiarello, L. A., Westcott McCoy, S., Palisano, R. J., Rosenbaum, P. R., Jeffries, L., & LaForme Fiss, A. (2010). The Move & PLAY Study: An example of comprehensive rehabilitation outcomes research. Physical Therapy, 90, 1660–1672. doi:10.2522/ptj.20090424
  • Bartlett, D. J., Galuppi, B., Palisano, R. J., & Westcott McCoy, S. (2016). Consensus classifications of gross motor, manual ability, and communication function classification systems between therapists and parents of children with cerebral palsy. Letter to the editor. Developmental Medicine & Child Neurology, 58(1), 98–99. doi:10.1111/dmcn.12933
  • Bartlett, D. J., Gorter, J. W., Jeffries, L. M., Avery, L., & Hanna, S. E, & On Track Study Team (2018). Longitudinal trajectories and reference centiles for the impact of health conditions on daily activities of children with cerebral palsy. Developmental Medicine and Child Neurology, October 23 [Epub ahead of print].
  • Chiarello, L. A., Palisano, R. J., Bartlett, D. J., & McCoy, S. W. (2011). A multivariate model of determinants of change in gross-motor abilities and engagement in self-care and play of young children with cerebral palsy. Physical & Occupational Therapy in Pediatrics, 31(2), 150–168. doi:10.3109/01942638.2010.525601
  • Chiarello, L., Palisano, R., Maggs, J., Orlin, M., Almasri, N., Kang, L. J., & Chang, H. (2010). Family priorities for activity and participation of children and youth with cerebral palsy. Physical Therapy, 90(9), 1254–1264. doi:10.2522/ptj.20090388
  • Chiarello, L. A., Palisano, R. J., Westcott McCoy, S., Bartlett, D., Wood, A., Kang, L. J., … Avery, L. (2014). Child Engagement in Daily Life: A measure of participation for young children with cerebral palsy. Disability and Rehabilitation, 36(21), 1804–1816. doi:10.3109/09638288.2014.882417
  • Chiarello, L. A., Palisano, R. J., Westcott McCoy, S., & Bartlett, D. J. (2017). Child Engagement in Daily Life: Participation in Self-Care (Version 2). https://www.canchild.ca
  • Crawford, J. R., & Garthwaite, P. H. (2008). On the “optimal” size for normative samples in neuropsychology: Capturing the uncertainty when normative data are used to quantify the standing of a neuropsychological test score. Child Neuropsychology, 14(2), 99–117. doi:10.1080/09297040801894709
  • Diller, L., Drew, P., Gilbert, M., Ford, N., Hjorngaard, T., Rayfield, K., & Taylor, B. (2017a). Bringing the family’s voice to research: Parents as members of the research team (part one). Retrieved from www.e-Parent.com, October 27.
  • Diller, L., Drew, P., Gilbert, M., Ford, N., Hjorngaard, T., Rayfield, K., & Taylor, B. (2017b). Bringing the family’s voice to research: How families contribute to research (part two). Retrieved from www.e-Parent.com, December 16.
  • Eliasson, A. C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Öhrvall, A. M., & Rosenbaum, P. (2006). The manual ability classification system (MACS) for children with cerebral palsy: Scale development and evidence of validity and reliability. Developmental Medicine & Child Neurology, 48(07), 549–554. doi:10.1017/S0012162206001162
  • Haley, S. M., Coster, W. J., Ludlow, L. H., Haltiwanger, J., & Andrellos, P. (1992). Pediatric Evaluation of Disability Inventory (PEDI). Boston, MA: New England Medical Center Hospitals.
  • Hanna, S. E., Bartlett, D. J., Rivard, L. M., & Russell, D. J. (2008). Reference curves for the Gross Motor Function Measure: Percentiles for clinical description and tracking over time among children with cerebral palsy. Physical Therapy, 88(5), 596–607. doi:10.2522/ptj.20070314
  • Hanna, S. E., Rosenbaum, P. L., Bartlett, D. J., Palisano, R. J., Walter, S. D., Avery, L., & Russell, D. J. (2009). Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Developmental Medicine & Child Neurology, 51(4), 295–302. doi:10.1111/j.1469-8749.2008.03196.x
  • Hidecker, M. J. C., Paneth, N., Rosenbaum, P. L., Kent, R. D., Lillie, J., Eulenberg, J. B., … Taylor, K. (2011). Developing and validating the communication function classification system (CFCS) for individuals with cerebral palsy. Developmental Medicine & Child Neurology, 53(8), 704–710. doi:10.1111/j.1469-8749.2011.03996.x
  • Ketelaar, M., Gorter, J. W., Westers, P., Hanna, S., & Verhoef, M. (2014). Developmental trajectories of mobility and self-care capabilities in young children with cerebral palsy. Journal of Pediatrics, 164(4), 769–774.e2. doi:10.1016/j.jpeds.2013.11.070
  • McCoy, S. W., Yocum, A., Bartlett, D. J., Mendoza, J., Jeffries, L., Chiarello, L., & Palisano, R. J. (2012). Development of the Early Activity Scale for Endurance for children with cerebral palsy. Pediatric Physical Therapy, 24(3), 232–240. doi:10.1097/PEP.0b013e31825c16f6
  • McCoy, S. W., Bartlett, D., Smersh, M., Galuppi, B., & Hanna, S, & On Track Study Team (2018). Monitoring development of children with cerebral palsy: The On Track Study. Protocol of a longitudinal study of development and services. Retrieved from https://www.canchild.ca/en/resources/294-monitoring-development-of-children-with-cerebral-palsy-the-on-track-study-protocol-of-a-longitudinal-study-of-development-and-services. Accessed October 29, 2018.
  • Muggeo, V., Sciandra, M., Tomasello, A., & Calvo, S. (2013). Estimating growth charts via nonparametric quantile regression: A practical framework with application in ecology. Environmental and Ecological Statistics, 20, (4), 519–531. doi:10.1007/s10651-012-0232-1
  • Palisano, R. J., Avery, L., Gorter, J. W., Galuppi, B., & McCoy, S. W. (2018). Stability of the gross motor function, manual ability, and communication function classification systems. Developmental Medicine & Child Neurology, 60(10), 1026–1032. doi:10.1111/dmcn.13903
  • Palisano, R. J., Cameron, D., Rosenbaum, P. L., Walter, S. D., & Russell, D. (2006). Stability of the Gross Motor Function Classification System. Developmental Medicine & Child Neurology, 48(06), 424–428. doi:10.1017/S0012162206000934
  • Palisano, R. J., Chiarello, L. A., Westcott McCoy, S., Bartlett, D., & An, M. (2015). Use of the child engagement in daily life and ease of caregiving for children to evaluate change in young children with cerebral palsy. Physical & Occupational Therapy in Pediatrics, 35(3), 280–295. doi:10.3109/01942638.2014.907221
  • Palisano, R. J., Rosenbaum, P., Bartlett, D., & Livingston, M. H. (2008). Content validity of the expanded and revised gross motor function classification system. Developmental Medicine & Child Neurology, 50(10), 744–750. doi:10.1111/j.1469-8749.2008.03089.x
  • Palisano, R. J., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and validation of a gross motor function classification system for children with cerebral palsy. Developmental Medicine and Child Neurology, 39(4), 214–223.
  • Pinheiro, B., & Bates, D. (2004). Mixed-effects models in S and S-PLus. New York, NY: Springer.
  • Pinheiro, J., Bates, D., DebRoy, S., & Sarkar, D. (2016). nlme: Linear and nonlinear mixed effects models. Retrieved from http://CRAN.R-project.org/package=nlme
  • R Development Core Team (2016). R: A language and environment for statistical computing. Vienna, Austria: R Foundation for Statistical Computing. Retrieved from http://www.R-project.org
  • Rosenbaum, P. L., Walter, S. D., Hanna, S. E., Palisano, R. J., Russell, D. J., Raina, P., … Galuppi, B. E. (2002). Prognosis for gross motor function in cerebral palsy: Creation of motor development curves. Journal of the American Medical Association, 288(11), 1357–1363. doi:10.1001/jama.288.11.1357
  • Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., & Bax, M. (2007). A report: The definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology, Supplement, 109, 8–14.
  • Russell, D. J., Rosenbaum, P. L., Wright, M., & Avery, L. M. (2013). Gross Motor Function Measure (GMFM-66 and GMFM-88) users' manual (2nd ed.). Clinics in Developmental Medicine, Mac Keith Press: London.
  • Smits, D. W., Ketelaar, M., Gorter, J. W., Van Schie, P., Dallmeijer, A., Jongmans, M., & Lindeman, E. (2011). Development of daily activities in school-age children with cerebral palsy. Research in Developmental Disabilities, 32(1), 222–234. doi:10.1016/j.ridd.2010.09.025
  • Vargus-Adams, J. N., & Martin, L. K. (2009). Measuring what matters in CP: A breadth of important domains and outcome measures. Archives of Physical Medicine and Rehabilitation, 90(12), 2089–2095. doi:10.1016/j.apmr.2009.06.018
  • Ward, K. D., Chiarello, L. A., Bartlett, D. J., Palisano, R. J., Westcott McCoy, S., & Avery, L. (2014). Ease of Caregiving for Children: A measure of parent perceptions of the physical demands of caregiving for young children with cerebral palsy. Research in Developmental Disabilities, 35(12), 3403–3415. doi:10.1016/j.ridd.2014.08.023
  • Willse, J. T. (2015). Mixture Rasch Models with JMLE. Retrieved CRAN from https://cran.r-project.org/web/packages/mixRasch/mixRasch.pdf
  • Wright, B. D., & Masters, G. N. (1982). Rating scale analysis: Rasch Measurement. Chicago, IL: MESA Press.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.