References
- Alghamdi, M., Chiarello, L. A., Palisano, R., & McCoy, S. (2017). Understanding participation of children with cerebral palsy in family and recreational activities. Research in Developmental Disabilities, 69, 96–104. https://doi.org/10.1016/j.ridd.2017.07.006
- Anaby, D., Law, M., Teplicky, R., & Turner, L. (2015). Focusing on the environment to improve youth participation. International Journal of Environmental Research and Public Health, 12(10), 13388–13398. https://doi.org/10.3390/ijerph121013388
- Anaby, D., Hand, C., Bradley, L., DiRezze, B., Forhan, M., DiGiacomo, A., & Law, M. (2013). The effect of the environment on participation of children and youth with disabilities: a scoping review. Disability and Rehabilitation, 35(19), 1589–1598. https://doi.org/10.3109/09638288.2012.748840
- Bartlett, D. J., Galuppi, B., Palisano, R. J., & McCoy, S. W. (2016). Consensus classifications of gross motor, manual ability, and communication function classification systems between therapists and parents of children with cerebral palsy. Developmental Medicine & Child Neurology, 58(1), 98–99. https://doi.org/10.1111/dmcn.12933
- Bartlett, D. J., Gorter, J. W., Jeffries, L. M., Avery, L., Hanna, S. E., McCoy, W., Chiarello, L., Palisano, R., Fiss, A., Galuppi, B., Smersh, M., Diller, L., Drew, P., Ford, N., Gilbert, M., Hjorngaard, T., Rayfield, K., & Taylor, S., On Track Study Team. (2018b). Longitudinal trajectories and reference centiles for the impact of health conditions on daily activities of children with cerebral palsy. Developmental Medicine & Child Neurology, 61(4), 469–476. https://doi.org/10.1111/dmcn.14080
- Bartlett, D., McCoy, S., Chiarello, L. A., Avery, L., & Galuppi, B., On Track Study Team. (2018a). A collaborative approach to decision making through developmental monitoring to provide individualized services for children with cerebral palsy. Physical Therapy, 98(10), 865–875. https://doi.org/10.1093/ptj/pzy081
- Carey, H., & Long, T. (2012). The pediatric therapist’s role in promoting and measuring participation in children with disabilities. Pediatric Physical Therapy, 24, 163–170.
- Chiarello, L. A. (2017). Excellence in promoting participation: Striving for the 10 Cs. Pediatric Physical Therapy, 29, S16–S22. https://doi.org/10.1097/PEP.0000000000000382
- Chiarello, L. A., Bartlett, D., Palisano, R., McCoy, S., Fiss, A., Jeffries, L., & Wilk, P. (2016). Determinants of participation in family and recreational activities of young children with cerebral palsy. Disability and Rehabilitation, 38(25), 2455–2468. https://doi.org/10.3109/09638288.2016.1138548
- Chiarello, L. A., Palisano, R. J., McCoy, S. W., Bartlett, D. J., Wood, A., Chang, H.-J., Kang, L.-J., & Avery, L. (2014). Child Engagement in Daily Life: A measure of participation for children with cerebral palsy. Disability and Rehabilitation, 36(21), 1804–1816. https://doi.org/10.3109/09638288.2014.882417
- Chiarello, L. A., Palisano, R., Orlin, M., Chang, H., Begnoche, D., & An, M. (2012). Understanding participation of young children with cerebral palsy. Journal of Early Intervention, 34(1), 3–19. https://doi.org/10.1177/1053815112443988
- Coster, W., Law, M., Bedell, G., Khetani, M., Cousins, M., & Teplicky, R. (2012). Development of the participation and environment measure for children and youth: conceptual basis. Disability and Rehabilitation, 34(3), 238–246. https://doi.org/10.3109/09638288.2011.603017
- Eliasson, A. C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Öhrvall, A. M., & Rosenbaum, P. (2006). The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Developmental Medicine & Child Neurology, 48(7), 549–554. https://doi.org/10.1017/S0012162206001162
- Fiss, A. L., McCoy, S. W., Bartlett, D., Avery, L., & Hanna, S., On Track Study Team. (2019). Developmental trajectories for the early clinical assessment of balance by gross motor function classification system level for children with cerebral palsy. Physical Therapy, 99(2), 217–228. https://doi.org/10.1093/ptj/pzy132
- Gorter, J. W., Rosenbaum, P. L., Hanna, S. E., Palisano, R. J., Bartlett, D. J., Russell, D. J., Walter, S. D., Raina, P., Galuppi, B. E., & Wood, E. (2004). Limb distribution, type of motor disorder and functional classification of cerebral palsy: How do they relate? Developmental Medicine & Child Neurology, 46(07), 461–467. https://doi.org/10.1017/S0012162204000763
- Granlund, M. (2013). Participation—challenges in conceptualization, measurement and intervention. Child: Care, Health and Development, 39(4), 470–473. https://doi.org/10.1111/cch.12080
- Hammal, D., Jarvis, S. N., & Colver, A. F. (2004). Participation of children with cerebral palsy is influenced by where they live. Developmental Medicine & Child Neurology, 46(5), 292–298. https://doi.org/10.1017/S0012162204000489
- Hanna, S. E., Bartlett, D. J., Rivard, L. M., & Russell, D. J. (2008). Reference curves for the Gross Motor Function Measure: percentiles for clinical description and tracking over time among children with cerebral palsy. Physical Therapy, 88(5), 596–607. https://doi.org/10.2522/ptj.20070314
- Hidecker, M. J. C., Paneth, N., Rosenbaum, P. L., Kent, R. D., Lillie, J., Eulenberg, J. B., Chester Jr, K. E. N., Johnson, B., Michalsen, L., Evatt, M., & Taylor, K. (2011). Developing and validating the Communication Function Classification System (CFCS) for individuals with cerebral palsy. Developmental Medicine & Child Neurology, 53(8), 704–710. https://doi.org/10.1111/j.1469-8749.2011.03996.x
- Imms, C., & Adair, B. (2017). Participation trajectories: impact of school transitions on children and adolescents with cerebral palsy. Developmental Medicine & Child Neurology, 59(2), 174–182. https://doi.org/10.1111/dmcn.13229
- Imms, C. (2008). Children with cerebral palsy participate: A review of the literature. Disability and Rehabilitation, 30(24), 1867–1884. https://doi.org/10.1080/09638280701673542
- Imms, C., Adair, B., Keen, D., Ullenhag, A., Rosenbaum, P., & Granlund, M. (2016). Participation”: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Developmental Medicine & Child Neurology, 58(1), 29–1104. https://doi.org/10.1111/dmcn.12932
- Imms, C., Granlund, M., Wilson, P. H., Steenbergen, B., Rosenbaum, P. L., & Gordon, A. M. (2017). Participation, both a means and an end: A conceptual analysis of processes and outcomes in childhood disability. Developmental Medicine & Child Neurology, 59, 16–25. https://doi.org/10.1111/dmcn.13237
- Imms, C., Reilly, S., Carlin, J., & Dodd, K. J. (2009). Characteristics influencing participation of Australian children with cerebral palsy. Disability and Rehabilitation, 31(26), 2204–2215. https://doi.org/10.3109/09638280902971406
- Khetani, M. A., Graham, J. E., Davies, P. L., Law, M. C., & Simeonsson, R. J. (2015). Psychometric properties of the Young Children’s Participation and Environment Measure. Archives of Physical Medicine and Rehabilitation, 96(2), 307–316. https://doi.org/10.1016/j.apmr.2014.09.031
- King, G., Law, M., Hanna, S., King, S., Hurley, P., Rosenbaum, P., Kertoy, M., & Petrenchik, T. (2006). Predictors of the leisure and recreation participation of children with physical disabilities: A structural equation modeling analysis. Children's Health Care, 35(3), 209–234. https://doi.org/10.1207/s15326888chc3503_2
- King, G., Law, M., King, S., Hurley, P., Hanna, S., Kertoy, M., Rosenbaum, P., & Young, N. (2004). Children’s Assessment of Participation and Enjoyment (CAPE) and Preferences for Activities of Children (PAC). Harcourt Assessment.
- Law, M., Anaby, D., Imms, C., Teplicky, R., & Turner, L. (2015). Improving the participation of youth with physical disabilities in community activities: an interrupted time series design. Australian Occupational Therapy Journal, 62(2), 105–115. https://doi.org/10.1111/1440-1630.12177
- Law, M., King, G., Petrenchik, T., Kertoy, M., & Anaby, D. (2012). The assessment of preschool children’s participation: internal consistency and construct validity. Physical & Occupational Therapy in Pediatrics, 32(3), 272–287. https://doi.org/10.3109/01942638.2012.662584
- Majnemer, A., Shevell, M., Law, M., Birnbaum, R., Chilingaryan, G., Rosenbaum, P., & Poulin, C. (2008). Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Developmental Medicine & Child Neurology, 50(10), 751–758. https://doi.org/10.1111/j.1469-8749.2008.03068.x
- Majnemer, A., Shikako-Thomas, K., Schmitz, N., Shevell, M., & Lach, L. (2015). Stability of leisure participation from school-age to adolescence in individuals with cerebral palsy. Research in Developmental Disabilities, 47, 73–79. https://doi.org/10.1016/j.ridd.2015.08.009
- Masters, G. N., & Wright, B. D. (1982). Rating scale analysis: Rasch measurement. Mesa Press.
- McCoy, S. W., Bartlett, D., Smersh, M., Galuppi, B., Hanna, S, Collaboration Group: On Track Study Team. (2018). Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services. Retrieved December 26, 2018, from https://www.canchild.ca/en/resources/294-monitoring-development-of-children-with-cerebralpalsy-the-on-track-study-protocol-of-a-longitudinal-study-of-development-and-services.
- McCoy, S., Bartlett, D., Palisano, R., Chiarello, L. A., Jeffries, L., Fiss, A., …Taylor, B. S. (2019). Understanding the development of children with cerebral palsy and how therapy may affect patient-centered outcomes. Washington, DC: Patient-Centered Outcomes Research Institute (PCORI). https://doi.org/10.25302/7.2019.CE.12115321
- Muggeo, V., Sciandra, M., Tomasello, A., & Calvo, S. (2013). Estimating growth charts via nonparametric quantile regression: a practical framework with application in ecology. Environmental and Ecological Statistics, 20(4), 519–531. https://doi.org/10.1007/s10651-012-0232-1
- Palisano, R. J., Almarsi, N., Chiarello, L. A., Orlin, M. N., Bagley, A., & Maggs, J. (2010). Family needs of parents of children and youth with cerebral palsy. Child: Care, Health and Development, 36(1), 85–92. https://doi.org/10.1111/j.1365-2214.2009.01030.x
- Palisano, R. J., Chiarello, L. A., Orlin, M., Oeffinger, D., Polansky, M., Maggs, J., Bagley, A., & Gorton, G., and the Children’s Activity and Participation Group. (2011). Determinants of intensity of participation in leisure and recreational activities by children with cerebral palsy. Developmental Medicine & Child Neurology, 53(2), 142–149. https://doi.org/10.1111/j.1469-8749.2010.03819.x
- Palisano, R. J., Rosenbaum, P. L., Walter, S., Russell, D., Wood, E., & Galuppi, B. (2008). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39(4), 214–223. https://doi.org/10.1111/j.1469-8749.1997.tb07414.x
- Palisano, R., Chiarello, L. A., King, G., Novak, I., Stoner, T., & Fiss, A. (2012). Participation-based therapy for children with physical disabilities. Disability and Rehabilitation, 34(12), 1041–1052. https://doi.org/10.3109/09638288.2011.628740
- Palisano, R., Chiarello, L. A., McCoy, S., Bartlett, D., & An, M. (2015). Use of the Child Engagement in Daily Life and Ease of Caregiving for Children to measure change in young children with cerebral palsy. Physical & Occupational Therapy in Pediatrics, 35(3), 280–295. https://doi.org/10.3109/01942638.2014.907221
- Palisano, R., Rosenbaum, P., Bartlett, D., & Livingston, M. (2008). Content validity of the expanded and revised Gross Motor Function Classification System. Developmental Medicine & Child Neurology, 50(10), 744–750. https://doi.org/10.1111/j.1469-8749.2008.03089.x
- Pinheiro, B., & Bates, D. (2004). Mixed-Effects Models in S and S-Plus. Springer.
- Pinheiro, J., Bates, D., DebRoy, S., Sarkar, D., Core Team, R. (2018). nlme: Linear and Nonlinear Mixed Effects Models, R package version 3.1-137. https://CRAN.R-project.org/package=nlme.
- Reid, S. M., Carlin, J. B., & Reddihough, D. S. (2011). Using the Gross Motor Function Classification System to describe patterns of motor severity in cerebral palsy. Developmental Medicine & Child Neurology, 53(11), 1007–1012. https://doi.org/10.1111/j.1469-8749.2011.04044.x
- Rosenbaum, P. L., Walter, S. D., Hanna, S. E., Palisano, R. J., Russell, D. J., Raina, P., Wood, E., Bartlett, D. J., & Galuppi, B. E. (2002). Prognosis for gross motor function in cerebral palsy; creation of motor development curves. Journal of the American Medical Association, 288(11), 1357–1363. https://doi.org/10.1001/jama.288.11.1357
- Shikako-Thomas, K., Majnemer, A., Law, M., & Lach, L. (2008). Determinants of participation in leisure activities in children and youth with cerebral palsy: systematic review. Physical & Occupational Therapy in Pediatrics, 28(2), 155–169. https://doi.org/10.1080/01942630802031834
- Williams, U., Law, M., Hanna, S., & Gorter, J. W. (2019). Using the Young Children’s Participation and Environment Measure (YC-PEM) to describe young children’s participation and relationship to disability and complexity. Journal of Developmental and Physical Disabilities, 31(1), 135–148. October 22, https://doi.org/10.1111/cch.12621
- Willse, J. T. (2015). Mixture Rasch Models with JMLE. https://cran.rproject.org/web/packages/mixRasch/mixRasch.pdf.